Working with Grave's Disease

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I'm a full time student going to cosmetology school. I am 23 years old and have been battling Grave's disease since March 2013. I am on Ptu 3 pills 3 times a day. My mom and step dad want me to get a job on the weekends. Though i feel like that would be too much being that I come home from school exhausted. Thoughts on this please.

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  • Posted

    In my humble opinion I wouldnt consider taking on any more commitments.  I think you are doing enough being a full time student.  You have to listen to what your body is telling you.  Whats the point in pushing yourself too far.  Sometimes its hard for other people to understand just how hard graves disease is on your body. 
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  • Posted

    Yeah that is what i thought too. But my step dad says that i'm acting like a kid for not wanting to work while being in school and that i need to get my self together. and he talks down to me and then wonders why i'm depressed. He says i dont think about other people and i only think about myself. and he keeps bring up stuff i have done in the past.
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  • Posted

    Unfortunately as much as you would like to have a job and live a normal life, it's difficult, it is an achievement you are doing your course.  My life is on hold while I get this under control and you really can't push yourself and over do it.  I remember a post saying just do one thing a day and rest.  If I over do it I am just ill for a few days.  Unfortunately other people just don't understand or can't as it is not a visible illness, your mental, emotional and physical health are really fragile.   You don't need stress, but time to get better, which you will.  You can get plenty of jobs then! 
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  • Posted

    I cant believe your stepdads attitude. Ive been off work for 3 months now as i am unable to do much. I am totally drained and so weak, it hurts. Maybe you should get him to read this forum and actually learn about what you are going through. Well done to you for continuing with your cosmetology school. That alone is quite an achievement and i think you deserve more support for that and less pressuring of finding a weekend job!!  Your body cannot cope with more. Take care.
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    • Posted

      I have no support from my mom or my step dad. My step dad has diabetes and my mom had neck surgery in July. No one cares that i'm mentally exhausted. I come home from school and just am ready to crash. My step dad says if i'm not working then the house needs to be clean, in other words i'm now the house maid. My step dad complains when i don't talk to him, or they don't see me, or i sleep too much. I'm like why does it matter how much i sleep as long as stuff gets done around the house? Everyone i talk to except for my grandma and a couple of friends all run and tell my mom what i said and then it gets thrown back in my face.
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  • Posted

    Aw i feel so sorry for you. However you have your grandma and some friends you said so at least you have someone to turn to. Have you thought of living with your grandma for a while until you feel better? I find that stress makes you feel worse anyway so if you could get a few weeks away it might help the situation. Take care
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    • Posted

      I have thought about living with my grandma, but the problem is that she lives in an assisted living place. So i can't really live with her. I had tried to go this past summer to stay with her for the month of July, but my step dad did everything to not let me go, and i ended up getting a back to school seasonal job. Yes stress is my big issue. I tend to get stressed out a lot and him hounding me to get a job and getting mad at me for little things is not helping and my mom tells me one thing then tells him another and the thing she tells him gets thrown in my face. He thinks he's mister perfect and he's not. No one is perfect. When he yells at me he doesn't give me a chance to defend myself and anyway he says all that comes out of my mouth is excuses. I haven't liked him from the start and my mom knows it.
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    • Posted

      I have thought about living with my grandma, but the problem is that she lives in an assisted living place. So i can't really live with her. I had tried to go this past summer to stay with her for the month of July, but my step dad did everything to not let me go, and i ended up getting a back to school seasonal job. Yes stress is my big issue. I tend to get stressed out a lot and him hounding me to get a job and getting mad at me for little things is not helping and my mom tells me one thing then tells him another and the thing she tells him gets thrown in my face. He thinks he's mister perfect and he's not. No one is perfect. When he yells at me he doesn't give me a chance to defend myself and anyway he says all that comes out of my mouth is excuses. I haven't liked him from the start and my mom knows it.
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  • Posted

    The problem is that people who do not have this don't truly understand how bad it can be.

    We all experience differing levels of Graves, so it's hard for us to fully understand each other as I may be better off than someone else so don't feel their difficulties and someone may not be as bad off as I am and they don't feel my difficulties, however we all know it's not nice and have an understanding of sorts of each other.

    So, for me, with the thought in my mind that no-one is going to understand, I have to accept that but be more forceful with people and tell them how it is and not back down.

    You are not ready to work, so you say that you are not. I appreciate that it may be difficult as i'm not sure of the extent of your relationship with your folks.

    How is your step dad with regards to you living with him? Does he want you there? How would he feel if you moved out? Would 'accidently' leaving a leaflet about alternate housing lying around affect things? To make them think you are moving out and when brought up then put your foot down and say you want to move out due to lack of understanding over your needs? You don't have to go ahead with it, but how would they react? It may give you the chance to say how all the pressure is getting to you and they may take you more seriously if you show signs of wanting not to be around them.

    If they don't understand Graves, educate them. Show them a worst case scenario.

    People don't understand me, they don't want to be educated so I put up with it, but I don't back down.

     

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    • Posted

      My step dad doesn't want me here. He wants me to be on my own. He thinks that being that i'm 23 I should be on my own. I have told my mom all about Grave's disease and she doesn't i guess understand how it is affecting me. She says all my symptoms can't be from the Grave's and i'm like yes it can. I have not liked my step dad from the start. I have started looking for a job so they can get off of my back.  I'm on Ptu which is making my levels come down, but i'm afraid that it won't keep it down if i'm stressed out by working and going to school full time.
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