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Working with Meniere's

Posted , 8 users are following.

jkrushal
jkrushal

How are people here making the decision of when to stop working, or how to modify things so you can continue to work. I am getting to the point where I am out of sick days and am worried that in the next few years it won't be possible to maintain full time employment.

0 likes, 7 replies

7 Replies

  • frances101
    frances101 jkrushal

    Posted

    Dear Jkrushal.

    I am so sorry this is happening to you. I am only able to work part time too; however my bosses understand that I have Menieres and as long as I'm not absent too much, they will hold my job for me. The only setback is that I won't get paid for anymore days off. It sucks but this is what Menieres does. I plan to keep working as long as I can and wait for the future.

    Good luck and my prayers are with you.

  • cherylgold
    cherylgold jkrushal

    Posted

    I have not been able to work for quite some time. Driving is even out of the question for the last 6 months.

    It's not easy. You save for retirement but have to use your savings prematurity to live off of.

  • maryduff
    maryduff jkrushal

    Posted

    Hi this is a difficult one. I am fortunate now that I work from home and am able to be flexible with what I do. It means that if an attack does happen I can deal with it.
  • dizzysand
    dizzysand jkrushal

    Posted

    Hello. I am in this predicament too. I feel ill most of the time and am in a very bad patch with vertigo attacks occurring every day or every other day. I had an appointment with the doctor this morning but was too ill to make it. My partner had to phone and cancel and ask if they would do another sick note for employer. Then he foned my boss. They are sympathetic at the moment but there are limits. I just do not know what to do. I need a job but am too ill to work.
    • maryduff
      maryduff dizzysand

      Posted

      As mentioned above I had similar problems fortunately when first diagnosed I had an understanding boss and made up hours when I could. I then moved to a different area and found it very difficult to find a job. I am now fortunate enough to be able to work from home with complete flexibility and can if necessary take a break if I have attacks. I hope you are able to find something that you can do as well. Good luck x

       

  • donna16710
    donna16710 jkrushal

    Posted

    I had to take a force retirement shortly after my diagnosis. My position I worked in was closed and they wouldn't let me move into a new position. This was happening to a lot of long time employees so I think they were doing it to save money on salaries. It was very difficult to find a new job that was willing to work with the issues I had so considering the number of times I was falling, my sound sensitivity and headaches I applied for SSI disability and got it. It is an adjustment as I am getting about half of what I made. It will be two years in August and I will start Medicare. If you have a company that is flexible enough to let you make the changes you need you are extremely lucky. I would be looking for alternatives now if possible.

  • paula08289
    paula08289 jkrushal

    Posted

    I know the feeling overy the situation of working. I have had Menieres for almost 10 years and have finally applied for full disability which I really resisted doing for years. it just was something that I could not make myself believe. I lost my good full time job after a while after being 1st diagnosed....then over the years I lost 17 more jobs. I refused to give up. this was causing me so much anxiety it was rediculous. I know everyone's case is different but I wish you the best of luck on your journey with this illness. it's very good to talk to people who actually know what you are going through and I certainly do for one.

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