Posted , 711 users are following.
Hi All, I dont know if anyone has come across this. I have a worm infestation in my face. They travel around under the skin leaving tracks and bursting holes into my skin. they create glass like balls that split the skin open and move around my skin with ease.
I first reported it 3 months ago and the doctors totally ignored me treating me for a secondary infection that was caused by open wounds in my face. They have given me 4 courses of antibiotics treating the wrong infect but totally ignored waht I was telling ithem about the worms.
The worms whatever they are are very sharp and whereever they travel through in my face the skin collapses, leaving it like plastercine and it causes tiny splinters that are as sharp as anything that inbed themselves in the inside and outside of my skin right down to the lowest skin level. My skin is also producing a clear sticky substance which feels like little shards of glass if I touch it. All in all, it really couldnt be much worse except for the fact they have made a hole around my mouth which they can look out of. I am totally sane!
I am in pieces. I've been telling the doctors what it is and they have totally ignored me. Even refusing to refer after an A & E i visited confirmed I needed to be referred as the lesions had been on my face for so long.
I discovered I had private medical care through my company which now thank god means I've seen my first dermatologist. He's referred me to another dermatlogist that apparently knows more about things in the skin who I'm yet to see. Even though he's now put me in the right direction, I'm not convinced he was sure it is worms. I can pull 1/2 inch worms out of my skin bit by bit. They look like thread worms and never come out intact, you pull little bits off of them. It leaves worm shape dents in my face and they feel like little match sticks under the skin. Nobody is taking me seriously as people dont really get worms in the face.
They have totally destroyed me skin and I have bad scaring. I have never had acne and had no scaring. This has all been caused in the last 3 months. I dread to think how many are alive in there now they'v been left so long.
Has anyone ever heard of anything like this?
75 likes, 2736 replies
derek76 nicolamc
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cam33786 derek76
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corinne57263 cam33786
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Diggity corinne57263
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Either way, this discussion with your MD is heading in the right direction.
Best of luck to everyone!
christina56830 Diggity
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Diggity christina56830
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SICKofIGNORANCE corinne57263
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I wanted to ask you what exactly you had to say to your clinician in order to get the ivermectin lotion and pills? I'm so frustrated right now and my hair is falling out because I have these large THICK patches of white and pink lesions on my scalp and if I scratch it, one of the sides will lift up and if I pull, its basically fused to my skin so it bleeds. Looking at the nest like lesion that I pull out which is very moist on the inside, I can see it moving on its own. My doctors tell me to stop picking- but its the only way to remove them without medication. Using lots of garlic, coconut oil, and clove oil, has helped but MAN they move like CRAZY until I remove them manually!!! I try as hard as I can to hold out, but when I cant sleep and when it hurts to scratch while I shampoo my hair, all I want to do is scratch em all out. Its so hard to wash them because they're literally glued to me and my hair. Please let me know what you ended up telling them because my hair is only a small portion of where they all are. Lesions LEGIT COVERING MY BODY. So scarred up its so emabarrasing. Thank you so much. xo
christina56830 Diggity
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aintonya christina56830
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barbara98940 aintonya
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artfather cam33786
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amanda82665 corinne57263
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lesliedoll Diggity
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Diggity lesliedoll
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keeppraying Diggity
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Diggity keeppraying
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ALTHOUGH, one not so referred to NTD crossed my mind. This seems to fit all signs and symptoms. Looking over documented physician notes of interest, outlined within is the issue of difficult stool sample detection sometimes requiring retesting up to 7 TIMES.
This condition, seems to me, as the logical answer to the majority of people in this forum.
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STRONGYLOIDIASIS
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GaUSA lesliedoll
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Very nice person Aman Mongia next to Cartersville Medical Center.
betty50260 corinne57263
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I would appreciate your help,
Betty
venus44581 SICKofIGNORANCE
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1Willie1 cam33786
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tammy919 corinne57263
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Hey. Can you tell me exactly how you did this and where to get everything you used. Have you been symptom free since doing this and what to expect during this "purging"
Guest venus44581
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M8ry0na SICKofIGNORANCE
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It seems to take 20 minutes for them to surface in the beginning, then every 5 minutes for alternating application. Take showers after.
zobie Guest
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After Groundhog Day for the umpteenth time I finally found a GP who (on private script so I wore the entire cost) prescribed me ivermectin tabs and cream. I'd previously had 2 seperate doses of albenzerdole amount many others. I've tried EVERYTHING, I even resorted to putting diluted hydrochloride acid (yes you read that right) on my skin.
I've recently started Hydrogen Peroxide Therapy after reading it's incredible health benefits - even helping your body fight off cancer (I don't believe in camcer cures - besides chemos etc). After only 2 doses (in the same day) It started making a difference!
Google The book 'the truth about food grade hydrogen peroxide' and have a flick through to unde Stand the effects it has on the body from ingesting it daily. I'd been hesitant to try it for more than a year only putting it on my skin and it's the best decision I ever made when I finally did. This is the first time in 2-3 years where I feel confident im on the road to recovery after years of being stuck on dirt track after dirt track with no headlights.
joanne74251 cam33786
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Guest zobie
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joanne74251 derek76
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joanne74251
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melly1824 Diggity
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melly1824 GaUSA
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susan54634 SICKofIGNORANCE
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If you can purchase Dr Sheffield's Triple Antibiotic with Pain Relief and apply when they move about, you will not feel the sensation. DO NOT PICK!!!! That causes more inflammation, which these worms are drawn to. I am speaking from trial and error. The patches I left alone have started healing. If you do you Dr. Sheffield's, you will need to powder your hair several hours before washing to absorb the grease and then use Dawn dish detergent to get the oils out. Hope this brings some relief.
wendya lesliedoll
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pamela1953 lesliedoll
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angela2525 lesliedoll
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Hi I also have been having the same kind of symptoms, I have been to see Physician about 5 times and two ER visits. It itches internally, and I tell my physician that I literally feel things crawling under my skin and feels like some sort of worm and it feels like shards of glass at times when I try and grab ahold of one and also these white scale looking things come up through my skin. This has been going on for three months now. I just went to the Dermatologist and he said he didn't even know what it was and cut out one of the most recent spots that has come up to send off for testing, but I have to wait two weeks for results. This stuff is scaring up my skin and making me plain miserable and I as well live in Albany, Ga. . I need help proving that this is in fact real. Could you please give me some info on what you found out about this and have you found a cure? I would be so grateful for your help.
frustrated61 SICKofIGNORANCE
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Hi SOI ~
Try using mayonnaise. Don't get anything other than full mayonnaise. Put it on your head and rub it in throughout. Cover your head with plastic wrap and keep it on for at least 8 hours...more if you can. Then take a fine comb and comb through your hair. Wash it and repeat the mayonnaise. This is also good if someone has lice.
What you have sounds miserable. If this doesn't work for you, you may want to set up an appt with an Infectious Disease Specialist and/or a Dermatologist as they are specifically trained to know the symmptoms of parasites. A general GP only learns a chapter about them. Go for the one who knows best!
Good luck and please let us know how you are doing.
Warmly,
Frustrated
frustrated61
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I neglected to mention that the mayonnaise suffocates the worms. Do this a few times one day then every other day for about a week and you will see a def change...if not all of them gone! The mayonnaise is also great to make your hair shine so you can use this afterwards as a conditioner a few times a week and it will help rid and keep them at bay! Good luck!!
Frustrated
dawn25956 Diggity
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Gabriellecolton Diggity
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tammy_lynn25124 Diggity
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I'm in SC
I have been to 10 doctors
My son and I are so sick
Any back pain, or chest pain
Legs???
We have all!!!
Please HELP US!!!!
tammy_lynn25124 Gabriellecolton
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I later found out there was a boil water advisory
8 cancers on the street
Two others burning/razor cutting feelings
Awful!
jennifer31916 joanne74251
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tammy_lynn25124 christina56830
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(It almost slouches them away, I use a damp paper towel over sink, prior to re-application I applied MANY TIMES A DAY)
Close wounds with LIQUID BANDAID!!!! Then follow w FLOROZONE CREAM ONCE CLOSED! Many coats of liquid bandaid!!! Do not peel off/let fall off!!!
Blessings!
Lol re MORGELLONS
GEESH peeps EXCUSES/EXCUSES
MUST BE A MEDICAL PROVIDER IN THE COMPRISED EDUCATED USA!!!
DE is amazing also!
XXOO
I pray I made someone’s day
Ivy_guru Diggity
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david42645 tammy_lynn25124
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Sibby Ivy_guru
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donad frustrated61
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leah72649 donad
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hillary90068 corinne57263
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Hi. How much and how often did you take the ivermectin? Did you have any worms that migrated into other parts of your body? I do. . I just feel I'm too far gone to help.
Yaya67 Guest
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mitee16319 Yaya67
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Connection between Morgellons Disease and Lyme is clear - 98% of Morgellons patients have the Lyme spirochetal.
violet_75859 SICKofIGNORANCE
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Hi , I am new on Here..but I use clear shipping tape to get them off,that's the only way I can get the whole thing. I check them through a microscope an it's terrifying. Good luck to all of us.I hope it helps.
tammy_lynn25124 david42645
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Are you still on here?
bleaum angela2525
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T._J._93069 bleaum
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Please let us know when results come in I have suffered for four years and I'm hypersensensitive I go days without food it feels like hair is in my mouth throat pins and needles poking my eyes something is twisting my insides and anchoring down in my bones there is so much more this disease that's just the physical not to mention the mental family thought I was going craY until my daughter also now has it she's 28 now I see her suffering 10 15 doc appts we get quarantined in the back room doc comes in with another false diagnosis gives prescription and practically runs out the door while never taking a test or coming close enough to see anything last diagnosis parasytosis I haven't been back since last year I was doing well for a while trying to stay healthy and alot of chakraedktation but for the past month I feel like I'm at deaths door I'm lifeless and sick aty stomach constantly I'm not having good days anymore I'm lucky to have good minutes I'm starting to give up hope and I have tried all the remedies borax limes etc etc I have found to wash my clothes with 1 cup ammonia and borax heels and to spray fabuoloao diluted with water on your linens curtains carpet several times a day cc the fibres and hair rise so if you take a broom and wisp upward in the corners of a room from floor to top then it will go to carpet and vac uum put borax powder lightly on carpet this helps also well at least it hleped for a couple of years now I'm to sick to even find other remedies I'm a 48 uerols grandmom and I don't want to die from this but no one is helping us please Lord I pray for everyone and hope for God's miracle of a cure
tammy_lynn25124 T._J._93069
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donad T._J._93069
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dona
donad Yaya67
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Dona
Hang in there you know what is true
donad Ivy_guru
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T._J._93069 donad
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I'm in San Bernardino CA a i cant even get a doc to test me for lymes one dr three years ago gave me ivermectin one pill one time because I would.not allow him to ignore my pleas of course there was no help and he then said.after my next visit parasytosis I have had cat scans ultra sounds MRIs and it seems to be extremely intelligent and knows how to camouflage itself it feels like I'm being cocooned or mummified by this.horrible biofilm that rapidly circles my home and body then when I'm cleaning or away from home it breaks free from the tie that is binding tthem only to then feel as if hair is crawling all over me in my mouth eyes ears everywhere anyone got the keys to the nut House for me because if I told everything I have experienced in the past 4 years mentally and physically for sure I would be there new permanent resident I'm relying on chakra meditation balance and the Lord right now having faith is my best I'm so sick I can barely get the energy for sittin to open my chakrasthis is all beyond bizarre
tammy_lynn25124 T._J._93069
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Cure? No
Better? Yes
Although, two days ago... I started drinking baking soda
(Also, add to my epson salt baths)
Wow.... I’ll be continually doing this!!!
I studied the chemistry of it...
I believe it’s a filariasis type worm (same as morgellons) what kills a worm?
TWO DAYS into this... no naps and, productive days.
Yet, my muscles do hurt at times, I believe because it’s working!!
I also use iodine (I read it helps detox metals)
I just keep thinking...
Why isn’t everyone’ sick?
Must build immune system. I question antibiotics (anti= anti-life) may kill bacteria/fungus
But, is it making our immunity stronger???
FEBENDAZOLE and moxidectin are proven in the BILLION DOLLAR HORSE industry to be the only two items to kill strongyloides
36 months of treatments
(Per a source I value)
Funny part...
Cancer galore where I lived, horses backed to our yard...
And, if that’s not enough...
Endemic’ where I lived!!!
(NC)
I don’t look sick?
Doctors don’t look stupid either!
My thighs are getting cellulite (elephantiasis)
Lymthnetic filariasis causes it!
I’m calling BS on these doctors unwilling to help (not all god bless those trying)
Improper waste disposal is main cause...
what do we all have in common?
PUBLIC WATER
there’s a man cured..
A vet cured HIM!!
Just sayin!!!!!
tammy_lynn25124 T._J._93069
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tima28906 tammy_lynn25124
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I’m going to try the baking soda
And also research the worm you mentioned.
I’m waiting on test results from my stool sample.
In one week I saw 5 doctors.
One of the five said I was delusional.
I’m getting IV 3 times a week. Cleaninsing my blood and vitamin C.
Of course insurance is not paying as they did not pay for parasites med that my dr who performed colonoscopy 2 years ago called
in. It took 6 days to get it to the pharmacy after he called it in.
tammy_lynn25124 tima28906
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I got 90% off of my sons and, mine.
Emberm it was 457.00 a pill and manufactured in USA but not FDA approved...
Saved lots of money...
Coupons are out there and legit!
Just print and, drop off w script.
Ivermectin only kills adults this is why moxidectin is preferred.
Menendazole, no longer available so FEBENDAZOLE is chosen.
Good luck w stool tests... it is to my understanding and living proof that western medicine ova and parasite tests are only designed for certain parasites.
Al our were slways negative
I don’t think they even know what this is.
Lack of training.
I’ve been sedated at a hospital after failing an EKG.
I’ve had doctors call child services on me...
Saying I appeared to be on meth
(Obviously pretty darn sick to appear that way)
UNBELIEVABLE
AT LEAST YOUR DOCTORS ARE TRYING
I have paperwork that ordered our tests from CDC
Later informed our tests never went there?
Scary stuff
There’s a YouTube video of the man that healed from this...
Strongyloides (black and white picture entire interview)
Please watch it
Blessings
tammy_lynn25124 tima28906
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Oh yes, I did get tested for aids...
Negative.
That was it.
Said I self harm, and dilutional.
My doctor locked me out of his practice?
Almost as if, they aren’t allowed to help?
Although, they sure make lots of money trying???
I don’t feel they are all this way.
God bless the ones trying!
From all my studies... it’s unfortunate that what I feel kills this, is not approved by FDA and not available for human scripts.
Long/short
Their hands are tied
kaye88996 tammy_lynn25124
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I live in East North ,I think more people are. getting it NC
amy16574 tammy_lynn25124
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that is crazy and i too am suffering from this crap. its the most frustrating debilitating disease. i too feel like the doctors know more than they are letting onto. no pne even offered to take a skin sample- just told me its not possible for me to have worms in mt skin. im trying several home remedies and feel behind the 8 ball bc i didnt know what it was for so long. this stuff is unreal- if anyone has and new found cures please let me know. sending prayers
stephmcd betty00118
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can you possibly email me or message me with any info you have please??
amanda15975 tammy_lynn25124
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if u ever need shoulder to lean on....I know exactly what you went through because word for word I have faced. Cps actually took my babies and I fought hard! they are home. They got lice from school and they kept passing it back and forth. The school requires a Dr to clear them to return to school and the doctor informed me I was crazy because my kids never had lice....even though the school sent them home with lice.that's not even the worst part!
cathleen86162 corinne57263
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where can u get this ist
Izzyblue bleaum
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what were the biopsy result? MINE WAS ACUTE AND CHRONIC folliculitis,
CONSIDER ARTHROPOD. that is an insect bite.
Phil5408 joanne74251
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I have it 3 years also
betty00118 amanda15975
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amanda,
I HAVE BEEN SUFFERING FOR THREE YEARS WITH THIS SKIN ISSUE! I have had a skin biopsy and now waiting for skin scrapings ?! i will accept any help and support! they are also very painful! I had a three month remission then it started again! The lesions started growing again and two months now all inch plus in size?! HeLp! HeLp HELP!
Suzy03 betty00118
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Hi not sure if you will see this since it has been 6 months but I'm curious of what you have found out about this. I have now been suffering for over a month! I have been so miserable and my face looks awful!!
jessirose tammy_lynn25124
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Same thing happened to me! My doctor and the ER thinks Im crazy. They all wrote me off because my stool samples were negative. They said i have paratosis, a condition where I think I have parasites when I really dont. Gave me a referral to a psychologist instead of an infectious disease specialist. THEY DIDNT EVEN EXAMINE ME WITH A FLASHLIGHT OR ANYTHING. One doctor in the ER covered his face with a mask and wouldnt even come into the room and stood in the doorway. He said never heard of this before and said he will google it. OMG. Then he gave me a mystery pill that didnt do anything and he disappeared. IN FACT THE WHOLE ER STAFF DISAPPEARED. NOT JOKING. I WANTED TO CHECK OUT BUT THERE WAS NO ONE AROUND SO I JUST LEFT. LOL. THANK GOD FOR THIS WEBSITE. I THOUGHT I WAS THE ONLY ONE. HOW ARE YOU? DID YOU FIND A CURE YET?
roberta07458 joanne74251
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I fight this same battle an live in US every place i went fir help ssid i was delusional. well my face is a mess they burrow an was told oeroxide would hurt ur new skin growth. i dont know where to turn i have seen s pecialist. what wrong with thedr drs. im going to try iviermrectin. thank u God Bless Us All..
amelia35878 cam33786
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did eating the daitimacious earth help? or bath? i took some (my mom cleans the pool with it) should i bathe in it?
jacqueline56964 Diggity
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yes i thought that too and im sending my bloods to germany to check for lyme, morgs, strongyliodes leishmaniosis , toxiplsmosis ( see the shape of this google it very much same as half moon critters that jump and pour out of lesions , i ca them" flakes" ). Did you take any tests or have any new info?
ddk robbiehook
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hi, wandering if u ever got a diagnosis and how r u? i have same or similar issue. ivermectin made mine worst. mine move in face only at night, thank god. but I have to fend them away from eyes. I too was considering just dying but then I thought, no not b4 I approve to crazy drs they are incompetant
. will try another pet medication in 2 days
. I live in calif
daria1862 ddk
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daria1862 tammy_lynn25124
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world78654 leah72649
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hey ya all I was excited off this site but back now. tiff
world78654
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I meant exited
Sallypal zobie
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With the hydrogen peroxide therapy how many times and how much do you take, and do you dilute it?Or how do you do it?
katelyn07216 Gabriellecolton
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I know i probably wont get a response bcause well you posted two yeas ago, but did you find any answers? everyone thinks im delusional.
lane97480 katelyn07216
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hope everyone sees this post... I've had great results with a mixture of..Neem, black seed oil in a cod liver oil base... it it was mixed for me by a holistic pharmacist and it worked great a week after after I finished they started surfacing dead on my face my nose my hands my arms. try to find a holistic pharmacist... they can call my pharmacist for the dose amounts it has proprietary rights and she won't give them to me but she will tell any other pharmacist that calls what the mixture is...
aplant lane97480
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how would you find a holistic oharmasist ?
lane97480 aplant
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naturopath pharmacist... I'm not sure how to find them.. try googling it in your area.. I'm not sure...i was lucky that my neighbor introduced me to his girlfriend.. she owns a drug store and she helped me... Mortar and Pesto drug store in Red Deer Alberta Canada...... where are you from? Any one else have any ideas what our how to find them?
julie58874 lane97480
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How many ml is the mixture u drink? is it like a cup full or glass full or teaspoonful?
lane97480 julie58874
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i don't know what the pharmacist made for me she wouldn't tell me as it had proprietary right but when i told her the mix i was telling people she just indicated that it's all good stuff and natural and i was doing a good thing lol. do it must be close...i did find out from her that there was also agarikon mushroom powder on it as well to take care of any fungal infections.. do research on these and try find out more than i know.i was doing 10 ml per day..i would guess the mixture at..1ml of Neem..1 ml of blackseed oil ..1 ml of agarikon mishroom powder..mixed together in 7 ml of cod liver oil as a base... all of these things are all l natural and you won't overdose on any of it and it's all good for you... and a week later they will be coming to the surface dead... another person had taken the Neem, black seed oil and had reported that he was finding the same as me.. their dead heads starting to poke through the skin all over... they showed up on my nose my lips my arms the back of my hands.. probably many more that i couldn't see.. good luck everyone take care happy hunting. .
joshua44053 corinne57263
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are you still dealing with this problem
Lvnthenightmare robbiehook
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do you happen to be in VA?
sara84785 Diggity
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just just finished a prescription of ivermectin with absolutely no results I've had this issue about a year now.. Indiana
lane97480 sara84785
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Sara.. I've got them dieing and coming to the surface all over..i did a10 day mixture of approx. 2ml of Neem.. with 2ml of black seed oil... with 2ml of agarikon mushroom powder in 6ml off cod liver oil base.. try that.. they are all mutual products and won't hurt you to try...i had good results.... there's amounts are only a guess because there are proprietary right and the naturopath pharmacist would not tell me but never said i was wrong when i asked..she just said well they are all good for you....
Suzy03 jessirose
Posted
The exact thing happen to me! I swear it is just
like someone is writing my story for me!! It will
be a year for me this month dealing with this!
I think this has to do with a fungal infection but
I've read to completely get rid of it you have to
take antifungal med for 6 weeks. I'm going to
see if my Dr will try it but not sure with all that
is going on with this virus because I'm not
going to office right now!! Best of luck!!
nichole64312 hillary90068
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did you find help
Alanoo92 Diggity
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long shot since this was 4 years ago, but im also in south georgia and going through this now!!! As is my not even two year old daughter. LaGrange to be exact. Who was your doctor??
Miaja Diggity
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I really need this info too please! i am in blackshear Ga. I have the very same things described above. it actually brought tears to my eyes because I thought that I was alone. No one has taken me seriously and I literally feel like I am getting eaten alive!
Lulu831 SICKofIGNORANCE
Posted
Dear Lord I feel horrible for you. Buy pinworm medicine online and take it then put raw crushed garlic on your scalp put a cap on and leave it on as long as you can two nights and day. this will get all live ones and kill them now but any eggs will not die. You have to wait for them to hatch then do same thing. Take the pinworm medicine and garlic on scalp. Its gonna burn your scalp I know but better to suffer one two days and be done with it. God bless you and free you from this evil upon you.
andrew32491 sara84785
Posted
sara im in south bend indinana ive also had this about a yeat everone think im crazy the hospital has had me comitted to metal facilities twice when i went without even examining me said there no way worm can travel under your skin that consistent and that fast it wasnt anatomically possible. really contemplating killing myself i cant take this anymore have you figured anything else out ive been beggin doctors to give me a script of ivermectin but no one will if it didnt help you i may as well jump off a bridge.
aly81805 tammy_lynn25124
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Im from
Santa Cruz Ca
I moved to San Francisco 5 years ago Im a Veterinary Technician and the jobs Ive taken since Ive been in this area of the bay have required me to get very close to a ton of disgusting skin and coat issues including tiks fleas chiggers mold spores fungal infections mange bot flys tape worms and a few skin infections that id never seen before
Im pretty sure I contracted this at one of the animal hospitals At first I thought it was lice then bed bugs then tape worms then bot flys then pin worms maybe moths... NOTHING MATCHED...one thing is I was using methamphetamine when i first moved here and the meth crystals look EXACTLY like the diamond shaped cluster of fuzzy sticky nest with a worm like tail a hook and very sharp claws attached to it. It always shoots out a tiny hair or fiber then when I pull the white scale a sharp claw or thorn pierces my skin making a huge mess of my legs scalp face bavk arms fingers chest inner thighs under arms upper back and now the top of my pelvis dowm to my vagina theres a weird yellow dust on me my body hair pubic hair and head hair is also changing to a rusty color my body has weird odor my snot spit and blood feel gritty stivky and thick im covered in some sort of plasma that makes me never get clean My back hurts bad and my legs feel weird my back feels like something huge is moving around its so scary and the pain as gotten worse over the years im now not well I feel like um dying oh my stomach is very distended I barely eat and can't taste food or smell things properly I feel like im at the end stages Im more yellow every day meaning my liver is being messed with my skin getting worse hair getting thinner im always nausea tired and have head ache please help me any advice is welcome oh there in my teeth and lungs and my lymph modes and ears
caseybeth1988 Suzy03
Posted
i have the same problem and i swear i think it has something to do with fungi too
karenannca10228 corinne57263
Posted
Where do I get this ivermectin lotion
Rhcpchika1 aly81805
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you've described everything we're going through 😦
rachael75037 corinne57263
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Did you have to treat your home or do anything beyond a good cleaning? Spray chemicals or steam clean?
kristina99589 Diggity
Posted
I am having the same problem I live in Dallas Georgia and started recently after receiving treatments for cancer this has been going on for the last three years it briefly stopped for about six months came back stronger than ever it started in my scalp and then went into my face my hands my arms my back and the rest of my body absolutely no one believes me other than a few close friends and my daughters because they live in it with me I am having the same problem I live in Dallas Georgia and started recently after receiving treatments for cancer this has been going on for the last three years it briefly stopped for about six months came back stronger than ever it started in my scalp and then went into my face my hands my arms my back and the rest of my body absolutely no one believes me other than a few close friends and my daughters because they live in it with me and the things that happened and the things that happen unexplainable I had the same exact symptoms as you guys with the the worms in the head blackballs the sleepless nights and the ever hopeful trying to get a doctor to listen can you please get me information to the doctor I am willing to drive as far as I have to
kristina99589 corinne57263
Posted
I desperately need your direction when it comes to the ivermectin I have been dealing with this since November and I have to get rid of this or I’m going to lose it I have tried the ivermectin but I do not think I’m using it right where did you get yours from and what are the milligrams and how often did you take it on another note I know I have it contaminated other areas of my home and my car how did you deal with this please get back to me as soon as possible I really need help
kristina99589 zobie
Edited
please I really need your help I have been dealing with this for three years often on now I am a single mom with two little girls ever since I had cancer treatment this has plagued my life it is the point where it has decreased the The value of my life in my kids lives I need help desperately I have tried so many things and nothing has worked I’ve been to so many doctors and nobody will help me nothing is off the table I literally will try anything
meredith66647 ddk
Edited
hi im in nyc i have been suffering in severe pain and revulsion for 16 months I went from perfect, almost too much so, skin to looking like i carved a steampunk desiign into my face. i just finished albendezole(?) a 3 pills for three days and prior to that i took ivermectin course of days 1,2,8,9,15 i took fluconizole antifungal before i saw the large worms that now occupy my chin and various lesions around my body. i have extreme hyoerasthesia in all 5 senses i can feel them every single movement, texture, their tying up connective tissue and causing awful open lesions with a ring and knot pattern.
im like bllack balled from getting proper medical care it feels like i Know the dr can see how grotesque, intricate and i say im in so much pain i can not take it anymore but they diagnose delusional parasitosis, say i dont know what youre talking about stop picking
i know theyve been in my eyes theyre now in my mouth, have been in my gums fir years i think m concerned they were or are in my nervous system and affecting cognitive abilities
i would like to know if anyone has organized a referral list of practitioners that are helpful? also any daily routine advice woulf be great im like slipping into oblivion every day . thanks please someone dm me
0212 lane97480
Posted
google Pharmaca
Nicnac1002 keeppraying
Posted
omgi, recently went to the hospital because I had something trying to come out of my ear canal. I've worked in psych for 10 years and all the hospital staff were looking at me like I needed to become a patient myself. What is this? I have the twisting up of fibers around and the long blue black red ones. skin lesions. scabs that won't heal. or if they do, it takes forever.
glad someone understands what I'm dealing with.
Nicnac1002 robbiehook
Edited
I feel you here... I have no friends really anymore, my family basically treats me like I'm a mental case. this affected my relationship. I feel like I spend more time in the bathroom than anywhere else. 2 parts apple cidar vinegar with 1 part isopropyl alcohol as an ear rinse, also as a skin cleanse really helps. and it doesn't hurt at all.
kathleen910 derek76
Posted
jow do you find a true diagnosis
Pkhewitt1973 robbiehook
Posted
i honestly feel your pain hun. My man thinks I’m crazy too! I haven’t been able to work and I’m scared to death I may have lost my job! I got my hands on praziquantel tho and so far i think it did the trick!
sie16905 SICKofIGNORANCE
Posted
hey there I know this forum isn't updated but were you ever ever able to find out any answers? diagnosis? successful treatment? I'm extremely curious as my sister is going through the exact same thing. countless doctors have turned her down and act as if she is crazy but I've seen her suffering and it is absolutely horrific. please anybody if you can help I would be eternally grateful. 🙏
Justme1977 corinne57263
Posted
Yup! Ivermectin is the only thing that works for me as well however they wont give me enough to get rid of it completely. This has been a nightmare!
Justme1977 Diggity
Posted
Justme1977 SICKofIGNORANCE
Posted
I am in this boat and have been now for a year! Like you, I've had to remove them myself but over this last year I've found the best solution without medical help is suffocation. I put one of those black masks on my face and neck, let it dry some, put another layer, let dry a little and even a third sometimes. Once it's at least dried to the touch I get any kind of mint conditioner and put it in a hair color type of bottle and put it directly on my scalp without missing a spot and put it on thick! After I get the roots and scalp covered I use make sure the rest of my hair is saturated. I use an entire family size bottle every time. Not only to saturate but it's heavy and harder for them to dig through for air. This next part is most important! I wrap my entire head, minus my face obviously, with saran wrap until it's secure and the conditioner isn't leaking out. This takes away their ability to get through the conditioner to breath and they suffocate! I sit with this on my face and hair for a few hours. longer the better because there will be a little air trapped under the plastic wrap so eventually they have no breathable air. Once I remove the plastic I take lice combs through my hair removing anything that came out and some eggs. the black mask suffocates them on the face but also eliminates your face and neck as an option for them to run to to get away from the conditioner plastic wrap combo. it wont get rid of it all together but it's allowed me to live a more normal life until I am able to finally get rid of it completely. Also it helps with not having to create more abrasions on your face and scalp since they exit on their own rather than picking or pulling them out. I feel your pain. I don't know what is wrong with these doctors. it's made me want to go into dermatology to help people like us.
Justme1977 angie31978
Posted
I thought about doing this but was afraid I'd hurt myself in the process. Any side-effects?
Justme1977 tammy_lynn25124
Posted
Something is seriously going on here. I live in Ohio and have been to multiple emergency rooms, urgent cares, primary doctors, and 2 dermatologists and ALL of them treated me like I was crazy or probably thought I was an addict due to all of the abrasions on my face and scalp!! It's gotten so strange. My last visit the Dr kept saying she couldn't see anything in the pictures I provide even though it was very clear. it was almost as if they've been told this thing exists and is going around and don't acknowledge it or everyone will panic! I first started dealing with this last September and it's now July! I would spend literally all day and night in front of a 10x magnifying lighted mirror manually removing eggs and worms and whatever else from my face as it seemed to be the only area affected. I realized my hairline was the worst and then realized my scalp was the worst! I started looking at pictures from the last few years and I make them clearer and sharper in my picture settings and realized I've had this stuff for years! YES, YEARS!!!! they must be clear or close to it because they blend with whatever area they are on so unless you're really looking for it it's easy to overlook. Then started making pictures of friends clear and literally 90+ percent of everyone in my area has it and doesn't know. I'm thinking they are intentionally blowing us off because it appears to be an undercover pandemic.. as crazy as that sounds. Start pulling your pics and those of friends etc and go in your settings of your photo and make it sharp. then you can go to the picture you just cleared up and clear that pic up. then look at your face and hair and scalp and see what you find.
Justme1977 meredith66647
Edited
I'm not even sure if anyone is active on here anymore but I'm dealing with the exact same.I feel black balled by all doctors. I'd love to get this big group together to force them to help us. I truly don't know what else to do.
michele1313 Rhcpchika1
Posted
Did you figure it out?
michele1313 Justme1977
Posted
I have the same problem do does my family.
michele1313 Justme1977
Posted
Im here and im totally suffering . Ive been to all kinds of doctors and Im looking for the diagnosis. NW suburbs chicago
Justme1977 michele1313
Posted
I never got a diagnosis out of all the doctors I've seen over the last year I've been dealing with this. There is no way these doctors are being truthful when them say they don't see anything. I have spent 75 percent of my life since last September manually removing these things. I was so infested I wanted to die. I was lucky enough to find a few doctors to prescribe Ivermectin but never enough. it did help but I still had to do it myself. by trial and error I've found things that work enough to live a somewhat normal life until someone steps up and helps us. AQUAPHOR helped draw them out because it's like Vaseline but it's also medicated. I put it on my face and take a pair of tweezers with a flat edge and scraped them off and pulled them out. It keeps you from causing your skin to break eliminating alot of the scabs and scars. I did this daily for hours. Then I realized my scalp was the worst and once I started there my face etc got less infested. now I use the black mask that dries and supposed to pulled blackheads out. I put a layer on, let it dry, apply another layer, let it dry.. repeat till the bottle is gone. once dried to the touch I put hairmask, or an entire bottle of conditioner on starting on scalp then wrap my head in saran wrap. The idea is to suffocate them so make sure your hair is saturated. Both masks at the same time eliminate them from being able to run from face to scalp or vice versa. leave them on as long as you can. I mean hours. I did it every single day for a long time and now I'm down to two or three times a week. this is the only method I've found that works since we're having to take care of it ourselves. if you have questions maybe we can exchange numbers. it's so hard to really explain everything through text.
Faithnomore Justme1977
Posted
I agree I have this feeling the drs know but aren't doing anything to treat us. I'm being gang stalked and harassed i wonder if your experiencing anything like that? there's a public smear campaign going on and I feel the medical profession know and are leaving me to scab and scar and if im correct with self diagnosishis, ultimately die if it progesses to attacking the brain.
lucy87175 christina56830
Edited
does anyone know what the hell this is
Forevernever aly81805
Posted
question, did you stop using meth once you noticed the skin problems you're having?
I'm wondering because a good friend of mine started having a lot of these symptoms around the time her meth use picked up. I'm curious whether the drug use could be a cause or an exacerbating factor or maybe these invaders have been there the whole time but the meth possibly creates an inhospitable habitat & these symptoms are them trying to survive.
just spitballing here. also wondering why no one shares images of their condition. there's no way to tell if this is a shared condition or what we're dealing with if literally no one has posted a picture despite having a totally anonymous board on which to do so
M2662 Diggity
Posted
Hi Digigity, Im struggling with the exact same thing.... have been totally taken down with chronic illness having been a athlete all my life prior. Illness meaning fully bedridden for years Ive made a enormous recovery hit this is the last and likely, the first real root cause to it all its been 4 years if trying everything i know I thought it was possibly strongyloides as its everywhere through skin (but primarily the face) . But with the sizes existing after fenbendazole it mist be some form of Ascaris bc of their lengths and webbing now. Although i feel confidentally its the last leg of a very long journey i cant seem to get on top of it and after 4 years of this mountain, im really struggling on just not completely giving up on life entirely....
i read you knew of a solid dr for this in S Ga I live in N Atlanta and ive seen SO many drs who just shame me or blow me off. My physicians who know me well / know my character want to help, are supportive but just dont know how
i could really use your referral if you think this dr actually knows how to help this kind if thing im trying so hard not to lose my willpower
Best to you
M2662 derek76
Edited
unable to post pIctures have PLENTY
Always says files too large Yet after repeatedly shrinking down to 32kb and still rejected i presume its just a technical issue w the site or intentional -not really sure
lesliedoll angela2525
Posted
Hello, I just saw your reply. I have been to a dermatologist as well and they could not tell me anything. I had my face cleared up except for one spot but I went to the beach this weekend. I guess the sun must have been a trigger because my chin and forehead is covered in sores now. I have several in my scalp that never go away no matter what i do. I am just at a loss at this point. I don't even know what to do any more. I hope you had better luck.
lesliedoll GaUSA
Posted
Thank you I just got back on this message board again. I recently had another bad outbreak on my chin and forehead. I will check into this.
mitee16319 M2662
Edited
I struggled with this for 6 years, finally going to a Lyme Disease specialist after getting positive test results back my internal doctor ordered indicating Lyme and coinfections - Note that 4 different independent studies conducted from 2016-2017 on Morgellons patients all found that 97%-100% of patients were infected with Lyme Disease and multiple coninfections (typically Babesia and Bartonella). This was a game changer for Morgellons sufferers which were often diagnosed as having a psychotic disorder. ALL the symptoms you and others have posted in this forum have classic Morgellons like characteristics. Most have gone down same road of self treatment for "worms on their skin". This is a tick borne disease and ticks can carry 65+ infective bio organisms including microscopic nematodes. But it is all related to Lyme and all the coinfections that come with Lyme.
begleysabrina corinne57263
Posted
how and where did you get the ivermectin cream?
begleysabrina tammy_lynn25124
Posted
Hi I am going through the exact same thing and no doctors in Columbia SC will help. My 2 boys and I keep getting reinfected and my television thinks it's from the carpet in our apartment. Did you ever find a treatment plan? I haven't slept in weeks and am an emotional wreck. I haven't been able to work or take care if my kids because if the pain and fatigue. Open to any and all suggestions!!!
begleysabrina Justme1977
Posted
Hi I am going through the exact same thing and no doctors in Columbia SC will help. My 2 boys and I keep getting reinfected and my television thinks it's from the carpet in our apartment. Did you ever find a treatment plan? I haven't slept in weeks and am an emotional wreck. I haven't been able to work or take care if my kids because if the pain and fatigue. Open to any and all suggestions!!!
Shesa M8ry0na
Posted
Have you had any luck receiving help?
melissa01279 meredith66647
Posted
The way you are describing the hell that we all are going through is exactly point on with me as well. They are destroying connective tissue- making my skin thin, wrinkled and feels like plastic. My skin gets really red and burns like crazy. I have sores all over my body. I’m currently going through a bad battle right now with my sinuses being attacked which gives me a dull headache.. I can feel and see them in my eyes nose and throat. They are trying to come up my esophagus and whatever it is it feels large and takes my breath away. Feel like I’m dying and sometimes would rather. My digestive system sucks it always has. Im passing so many different worms and parasites and some of what i see there is also on skin. Our digestive system is a main proponent of our skin issues. I have other skin issues because I pick so probably have other infection. Just started taking a cleanse supplement Scram-microbe, anti-fungal, anti-yeast, anti-bacterial, anti-acne functions with die off control.
stephanie98383 cam33786
Posted
love my kangan amd have used 2.5 baths to help with symptoms and even nebbed it followed by 11.5 respiratory infections but its not killing these critters as promised
stephanie98383 mitee16319
Edited
yep definitly on fhe MD ! im pretty sure thats my issue as the little hairs that itch look like fibers under a microscope, some move ever so slightly, and no treatment has worked to get rid of them. on my fourth cycle of anti parasitics, ivermectin, and tons of other thimgs to help with the biting and coughing and itching any advice well appreciated. ALL occult tests and blood smears for parasites have been megative. getting to the poimt where i feel i cant live like this anymore
jessica8329 GaUSA
Posted
hello I actually just fount some parasites in my poo yesterday it freaked me out because I've never dealt with this. I've been having rashes and body aches and my head tingling and hair falling out. well I went to the er with a stool sample they are looking at me crazy but they send it off to the lab with urine and tell me to take otc pinworm med. well I take it yesterday and by evening time I'm throwing up and I'm seeing worms crawl in my skin. I have one son my face and I have been taking alot of showers. when I got in there the first time it looked as if some were coming out of my skin. this is the weirtd stuff I've ever dealt with. I have been pooping worms out and since I took that med yesterday I feel like I have the flu. I'm in Rome ga by the way so I will try the Dr in cartersville. whatever happened to u? do u still have them?
jessica8329 ddk
Posted
d> u find out anything? well I'm hoping to find some answers soon.
JennyJo begleysabrina
Edited
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destiny1985 Diggity
Posted
are you a health provider? i believe i have strongyloidasis.