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Worms in the Face

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nicolamc
nicolamc

Hi All,  I dont know if anyone has come across this.  I have a worm infestation in my face.  They travel around under the skin leaving tracks and bursting holes into my skin.  they create glass like balls that split the skin open and move around my skin with ease. 

I first reported it 3 months ago and the doctors totally ignored me treating me for a secondary infection that was caused by open wounds in my face.  They have given me 4 courses of antibiotics treating the wrong infect but totally ignored waht I was telling ithem about the worms. 

The worms whatever they are are very sharp and whereever they travel through in my face the skin collapses, leaving it like plastercine and it causes tiny splinters that are as sharp as anything that inbed themselves in the inside and outside of my skin right down to the lowest skin level. My skin is also producing a clear sticky substance which feels like little shards of glass if I touch it.  All in all, it really couldnt be much worse except for the fact they have made a hole around my mouth which they can look out of.  I am totally sane!

I am in pieces.  I've been telling the doctors what it is and they have totally ignored me.  Even refusing to refer after an A & E i visited confirmed I needed to be referred as the lesions had been on my face for so long.   

I discovered I had private medical care through my company which now thank god means I've seen my first dermatologist.  He's referred me to another dermatlogist that apparently knows more about things in the skin who I'm yet to see.  Even though he's now put me in the right direction, I'm not convinced he was sure it is worms.  I can pull 1/2 inch worms out of my skin bit by bit.  They look like thread worms and never come out intact, you pull little bits off of them.  It leaves worm shape dents in my face and they feel like little match sticks under the skin.  Nobody is taking me seriously as people dont really get worms in the face. 

They have totally destroyed me skin and I have bad scaring.  I have never had acne and had no scaring.   This has all been caused in the last 3 months.  I dread to think how many are alive in there now they'v been left so long.

Has anyone ever heard of anything like this?

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  • rachie14
    rachie14 nicolamc

    Edited

    hello! Well sadly I am another new user to this awful, hellish thread. I am sad to say I am the newest member to this thread, but even sadder to say this has been going on for years. HOWEVER until this week, I thought I just had some of the weirdest hormonal cystic acne. Last year while working in my nursing home job I picked up a case of scabies and was treated twice with cream and Vermectin? Oddly enough after that bout of medication my skin was glorious, which it has been all my life except for the last 7 years or so. Right around the one year mark of finishing these scabies medications my face began to act up again. i purchased a very expensive melasma cream, and as my melasma faded I could really see the old white never quite healed skin type papules. Being on a mission to improve my skin i bought more expensive skincare products and last week after a deep exfloiation i notice the papules opening and out pushing this sharp thread like things. OMG i thought this entire time they were ingrown hairs? well that didnt make much sense because i dont even get facial hair. But i let them push to the service another day applying more ingrown oil (also not understanding why they were blond when i am dark haired and skinned) and when i sat down with my mirror to start pulling these threads out I noticed a whiteish long curly type trail leading to each one. I called my daughter in and showed her, telling her i think its long hair that grew straight under my skin? Shes 17 and just didnt see how that could be possible, so we start googling. And come across "subcutaneous filarasis". Now as I read more into it, everything falls into place. Because let me say I have had a bout of immunity issues the last 10 years. in 2010 I was diagnosed with one of the worst cases of Erytheama Nodosum doctors had ever seen, i have terrible edema in my hands feet and legs every morning when i wake up that I literally cant move for hours, I have terrible right sided upper gastric pain to where i can barely eat and if i do i cant take a deep breath without severe pain, I also get diabilitating headaches, and worst off iver the past three years random huge skin lesions that become infected and turn black and have the be lanced and packed- but when swabbed never grow anything remarkable. I am only 36 and have always been healthy until this. I went to Mexico when I was 18 but I think where i got bit was in 2009 I went to Charlotte NC to be a bridesmaid in my friends "indian" wedding. The entire wedding party and guests were flown in from India, i remember shortly after flying home having a bit on my leg that i thought was a spider bite that was lrge ans pussy and having a fever and being very ill. So long story short I am pretty positive its in my lympth system and its probably long past treating or controlling. Ive spent the last two days trying to go to emergency rooms to get doctors to listen to me who just laugh and leave the room, thinking im picking my face. From what ive read IF theyd do an XRAY of my head or an MRI they would see my body being ravaged by theze things..... has anyone been able to get thag testing done? Ill post some pics, the raised white are the worms u der my skin, which i have actually photographed changing shapes and places, Ive got a picture of one going across my eye, but doctors wont even look at then when I go in. I have a telephone consult with dermatology on Monday, and an appointment w my primary doctor wednesday, I am also call infectious disease Monday. If anyone can respond.... there has to be some positive stories? Being able to get the right radiographing testing done? nevermind i cant post a pic its too large but if someone wants to respond id love to converse about this. Im scared, shitless.

    Rachel

  • lane97480
    lane97480 nicolamc

    Edited

    I I hate this forum... it it is so hard to text learn help you if you make a mistake.. don't don't go back with your cursor if you do you'll never get back to where you left off.. anyway anyway Rachel I've had this problem for years and I'm just now getting it figured out. my doctor finally took a biopsy 3 days ago but I'm pretty sure it's Morgellons disease. We have been bitten by a tick (could be years ago) and a bacteria called borrelia burgdorferi is causing our bodies to produce keratin hairs that grow and are embedded in our skin and sometimes like out to make a sore... sadly they don't know how to cure... research Morgellons disease and I think you'll find you have all the symptoms... I also have figured on a bit of a cure..

  • lane97480
    lane97480 nicolamc

    Edited

    not not a cure but relief... where the the sore is I stretch it in all directions and I can feel the small hairs popping inside this has given me tremendous relief and I think it stops them from growing.

  • rachie14
    rachie14 nicolamc

    Edited

    Hello all! Its been a few weeks so I wanted to come back and follow up, because this could possibly help everyone.

    After two emergency room trips and one demertology trip (who by the way didnt even exam me just had her assistant take a quick punch of a random spot on the corner of my chin and ONLY tested for parasites) and being told i was basically crazy and to stop picking my face. I decided to continue on a mission. Heres what I knew. The sores once again healed over; because im not a picker and I was not going to use those peel pads anymore because seeing stringy st coming out of my face scared the ps out of me to be honest i would rather it stay in there. But again they never completely heal they either stay white round boderless circles or light brown ones. I could still see white line paths everywhere to include down my neck chest shoulders arms etc. If and when there was a "thing" sticking out and i pulled it it caused an immediate imflammatory reaction all over my body, i turned red everywhere else, the squiggly lines got puffy, and raised, my heart raised, i burned. And most important if I tried to pull the thing out in the dorection it was going despite the reaction I couldnt because it was too long and if i pulled it the opposite way it peeled back all the skin because it was so long hence causing the open sore!

    Also i just want to note my mother was adopted at birth so i have no prior genetic info on that side.

    On top of that the last five years ive been very sic with all sorts of immunity and infections. Especially the last month.

    Well I happened to come across this genetic mutation called GORLIN SYNDROME.

    Now sometimes people are tested in child hood because they have very prominent distinct features of it. The long face with long forehead (which i do), the dental problems (i also did have an dult tooth stuck in the roof of my mouth they had to pull down with a chain and braces), autism, learning disabilities etc.

    long story short, your hedgehog pathway gene forms wrong which is basically your skin gene and as an embryo that lugano hair you have in the womb continues to grow on the epdermis layer of your skin your entire life. Now typically since your skin replaces a layer every 24 hours its not super noticeable but you have more sensative skin, and if they dont discover this early in life you are prone very prone actually to necroid basal cell carcinoma cancer. Then once you get that these little white hairs seem to be coming to the surface all the time due to these infections in your body. Now the really scary thing is that the cancer can spread and fast to your jaw; Most people with gorlins have jaw tumors, brain tumors, Lung tumors etc. They need to be monitored their entire lives. Our sores our most likely carcinomas and the white things these hairs; i now know for sure mine are as ive been officially diagnose! How they missed it all these years i have no clue! I even had the hairs inside my nose and my septum was shrinking! When id clip my toenails the white hairs were under my clippings!

    So please google people!See if any of these markers sound like symptoms you have! See if your doctors will test

    you!

    Best of luck!

    We truly are NOT crazy!

    • lane97480
      lane97480 rachie14

      Edited

      morgellons disease caused by a tic bite causes your body to produce keratin fibers that grow and are embedded in the skin.. they often poke out causing a sore...i have a link to a article called.. the history of morgellons disease from delusion to definition.... I'm quite sure that this is my problem... had biopsy two weeks ago after i showed the article to my doctor.. still waiting results...i will post when i know.. here is the link to the morgellons story.https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5811176/

    • lane97480
      lane97480

      Edited

      just read about Gorlins syndrome and it's definately not that in my case..

    • mitee16319
      mitee16319 rachie14

      Edited

      Gorlin indeed has similar characterists of morgellons and parasite infestations, but from what I've briefly read about it, no substances or "things" rapidly growinh/channeling under and out of skin. There are many things that look like what we have, and parasites and lyme are not in 99% of clinical doctors' playbook.

      I was diagnosed by my long time dermatologist as having a demodex infection 5 years ago (only after hearing "stop picking at your face" and my pleading with logic to do a skin scrapping and let's see whats what and at least exclude mites as a possibility). Scrapings of course showed many demodex ("abnormally high population"). 1 year of treatment helped but when i moved to new town 400 miles away, we had a phone consuktation and my doc said we threw a lot at this and it's beyond my knowledge - you need to get to an infectious disease specialist".

      well easier said than done - ive tested positive for lyme but zero docs where i am have experience in treating long term lyme infections and im not confident that that is only issue at hand.

      i have 3 microscopic videos of what looks clearly like a living moving parasite from skin samples - plus photos of what looks like a segmented taenia tape worm and matching ID ovum.

      the entire experience is confusing and frustrating mostly because no doctor seems interested in exploring possibilities and leans on the quick fix delusional diagnosis despite my prior demodex scrapings by a doctor and loads of evidence contrary to that thinking.

      We are not alone but no one but one poster on cure zone who beat this or something like it based in their own professional medical experience and parent who is a vet

      Horses have lots of treatment options - humans have almost none

  • rachie14
    rachie14 nicolamc

    Edited

    mmmm thats not what ive read about Morgolleans. The name was created after a mom pushed to have a name for the disease after her son was basically diagnosed nuts by doctors. All the biopsys show cotton and clothing fibers in the sores created by him from his clothing; but to appease her they created a name. To me that basically means they are telling people that they have a sickness and giving it a name; but in reality telling them they are picking sores in their body and then clothing fibers are getting into them. I dont think if i were you i would be throwing that around or accepting that diagnoses unless you actually agree with that; also your biopsy wont show anything if thats the case. Mine didnt show a damn thing, not even clothing fibers, it wont show morgolleans. It has to go to a super detailed lab to show clothong fibers...

    • lane97480
      lane97480

      Posted

      it wrote magelans and i didn't proof read... morgellons...morgellons

    • lane97480
      lane97480

      Posted

      Read the article and watch the video after the first part.

    • lane97480
      lane97480 rachie14

      Posted

      not looking for clothing fibers looking for keratin fibers that grow because a tick had bitten you and injected a borrelia burgdorferi bacteria into you and it causes your body to start producing little hair fibres that are embedded in the skin and grow causing a crawling biting or stinging sensation.. the the article goes into great detail

    • mitee16319
      mitee16319 rachie14

      Edited

      Rachie, Lane is correct on history of Morgellons, but the only pertinent data has collected just over the past 4 years. Four independent studies came up with remarkably common denominators, most notably that 95% - 100% of suspected morgellons disease sufferers were infectdd with Lyme. Oklahoma Stare University took it to another level in taking the fiber looking samples to the FBI laboratory that has the world's largest catalog of fibers, and the samples matched none. DNA testing revealed they were not "fibers" at all but generated by the human body in response to the presense of Lyme spirochetes. Across the board, further studies determined without a doubt that this is not psychological but is indeed a medical malady. For every published research article supporting all this, there are still 25 studies on file from the past implying it is likely a delusional thing. It will take years for the recent studies and future research to replace the old ERRONEOUS data. Until then, sufferers live in the shadow of ridicule and skeptical doctors - a tragedy in itself

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