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worried about cholesteatoma op

Posted , 8 users are following.

Guest
Guest

Hi,

My name is Chris and in Oct of last year (2009) I had very bad pain in my right ear and started to get some foul smelling ooze from my ear.

When I visited my docs I was told that I had a very small hole in my eardrum, but it was nothing to worry about as it would heal fine.

After several visits back to docs and various drops and pills I was finally referred to E.N.T. specialist (end of June 2010) and was told that I have cholesteatoma! And have probably had it for years!

I went for my CT scan on 6th July and am expecting results in next few days.

I am worried as I had similar problem years ago and now have constant whooshing in my ear and quite a lot of dull pain and discharge. Also have very serious pains in the back of my head whenever I laugh. I’m hoping that this doesn’t mean the disease hasn't spread as specialist told me that if it has spread to a space behind my ears it could be quite a big op! sad

Can anyone help me to stop worrying so much as I’m doing my other half’s head in.

0 likes, 17 replies

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  • Gabs1998lee
    Gabs1998lee Guest

    Posted

    Hi my name is gabby

    I've had problems with my ear since I was about 6 I'm now 18 nearly 19 it was only august last year I got an appointment with the ENT specialists and they told me I had cholesteatoma and that I need the operation and stuff and then I went on holiday and when I got back I found out I was pregnant so couldn't have the operation and now my baby is 4 months old and it's been nearly a year since I've been seen I'm scared of anything going to go wrong I'm seriously really scared I just need answer as to if anyone else has waited this long to have there operation and what happens after the operation how Likely am I to recover fully without any problems what's the percentage sad sad x

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