Worried about my symptoms

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hello fellow migraine sufferers.

I have struggled with migraines over the past few years, however over the past 3 months or so they have become constant. This has had a huge impact on my day to day life and my relationships. I manage my migraines with painkillers, I was prescribed a migraine preventative, it did not work. The following new symptoms are making me worried that there is something different going on or I have something more seriously wrong in my head, any advice would be great.

Migraines – 3 years

Constant migraines – 3 months

Migraine with aura ( flashing light ) – 3 months

Pulsating Tinnitus with migraine – 2 weeks

Dizziness and extreme fatigue – 2 weeks.

If anyone can give me any advice as to whether these new symptoms are normal to experience with migraine that may put my mind at rest because I don’t want to google anymore as the words that come up with a migraine and pulsating tinnitus search are tumours and anyreasms ( sorry for spelling there )

Thank you.

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5 Replies

  • Posted

    There are all kinds of perfectly harmless explanations for your symptoms, particularly as you have a history of migraine, but you do need to see a doctor. If you're allowed to self-refer in your country then see a neurologist or an ENT specialist. If you're in the UK you'll need to start with your GP.

    I'd put money on a recent life change that's increased your stress levels, but you still need to get checked out by a doctor.

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  • Posted

    hi I so agree that there can be so many causes of migraine but I had fierce migraine like this associated with auto immune disease. There can be causes underlying migraine and dizziness like that. I would honestly recommend getting full blood work down including vitamin b12 esr crp and ana which are inflammatory markers which can be associated with underlying conditions. 

    If you have other issues as well then you should make a note of these too. In particular things like stomach issues or joint pain can point to inflammatory conditions. I had been diagnosed with ibs which I knew didn't make sense and also developed joint pain at some point along the way. The joint pain came later as I remember it and finally led to a diagnosis. Hope this helps.

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    • Posted

      Hi Margaret, did a scan help you get diagnosed. I'm scared about what I might find but I need to know. Interesting that you mention ibs. I've had problems too but didn't link the two. 

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    • Posted

      The scan didn't help no. The up side if it is something similar is that there is absolutely no impact on my btain at all. Everything comes back normal it is inflammation which causes the symptoms. So you can return to normal if you find a way of controlling the inflammation.

      Symptoms are always so random that they are often not connected by sufferers or medics.

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  • Posted

    I've had  migraines for 15 years now but recently they got so bad that I was always in a migrainous state.  In my experience, the symptoms of migraines have really changed as the years have gone by. I used to get really severe pain and my sense of smell would heighten. Then I'd lose my coordination a little, but only during a migraine attack,  and would sometimes  forget names and chew on my words a bit. I used to get a temperature too, and feel really really nauseous. In the last year or so I've been experiencing pain travelling down my neck and I also have pain on my head behind both ears about the size of a tennis ball, after a migraine.  It feels a bit like tenderness or swelling. I've just started on propranolol and that's causing me a few side-effects like insomnia. I'm also going to be referred to neurology for a brain scan, just to be sure  there is nothing else going on. 

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