Worried about Pancreatic cancer/failure

Posted , 5 users are following.

Hello. I'm coming here to seek advice on my next step. In December I was hospitalized for 5 days. I went in with stomach and back pain and while they took tests, they noticed my Lipase levels were elevated. They also found out I tested positive for H Pylori. I had many tests done, such as CT Scan, ultrasound, HIDA scan, upper endoscopy, urine tests and stool tests. I currently am taking the H Pylori treatment right now. I'm scared however that I do have pancreatic cancer and they missed it. I feel as though because I'm 23 years old they are over looking me. My stomach pain is in the upper middle and upper left area and still hurts. My back hurts when I lay on it in the middle of my spine. My GI dr promises me this is not pancreatic cancer but I cannot help but still worry. I've been having bowel issues, and lots of pain and anxiety. Do I go back to hospital to run more tests again or just trust what he says? I know I am young but and it is very rare but am starting to believe it is possible.

0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    they did lots of tests and scans to rule out anything sinister if you had cancer with that much pain one of these scans would have picked it up. calm down and trust your drs h pylori causes gastritis i have chronic gastritis and the pain is in the upper abdomen and sometimes back and can be quite severe at times. you are super young to have pancreatic cancer i know it has happened before but there are only about 50 cases per year of people in their 30s and even less in people your age.

    Report / Delete Reply
  • Posted

    It's very unlikely unless you have a family history of PC, cystic fibrosis or Pancreas Divisium (rare condition where you're born with two pancreatic ducts that never fuse). It takes years upon years for chronic pancreatitis to form which is why it's usually diagnosed when you're elderly. A CT scan can/will show problems with a pancreas but the best test is a MRCP. Unfortunately, they usually don't order them until you have a ton of symptoms. I was diagnosed with pancreas divisium when I was 37. None of my blood work showed pancreas problems because I was already chronic. If your blood work is showing elevated lipase that means your pancreas is still working. I had to have my pancreas removed last October, it's a massive surgery but you can live without a pancreas. Don't think such negative thoughts. Start eating low fat/carbs and stay away from alcohol. You're young and should be fine but the pancreas takes time to heal after an attack, sometimes it takes months. You also need to watch your foods because food is a trigger for an attack. If there's too much fat or spice that can affect a person but we're all different. Also if you had pancreas issues you wouldn't be keeping food down, you would lose massive amounts of weight in little time, hair falls out/stops growing, extreme fatigue/exhaustion, vomiting undigested foods in the middle of the night, migraines, itching, unbearable pain (worse than labor sometimes). There's so many more symptoms when it comes to the pancreas. You might just be dealing with the bug in your tummy.

    Report / Delete Reply
  • Posted

    If it helps, people with pancreatic typically do not experience a lot of pain. They usually have a general feeling of being unwell.

    It sounds like you may be having an acute pancreatic attack. How long have you been feeling the pain? Can you describe your bowel movements? Can you tell us what you have been eating or drinking lately and habitually? Has anyone in your family ever been sick like this? Is your GI a pancreatic specialist? (You will probably need one.)

    Have you had an EUS or MRCP? Those tests should give you an idea of what the pancreas looks like. You should ask for these tests.

    In the meantime, try to restrict your diet and try to drink water to stay hydrated. Slowly work in low fat / high protein foods with cooked vegetables. No red meat, spicy food or alcohol.

    Don't worry so much. But if you have uncontrolled pain or you are vomiting, get to the A&E or ER quickly. You do not want to cause additional damage by waiting. For now, do as you have been directed.

    I hope you feel better soon.

    Report / Delete Reply
  • Posted

    So here is my current update with this situation. I revisited my GI doctor two days ago and it appears I did not take my H Pylori medication correctly. I took one antibiotic when I was supposed to be taking 4 different medicines at once, so I am restarting the treatment. I am also starting to take Latuda to supposedly help my mood and anxiety. I still have upper pain and it'll be in middle, left and right. My stool is also now completely black and I have lost 15-20 lbs in the last 8 weeks. I was 187 and am now 170. They suggest that my stool is black because I started taking pepto bismo pills with my H Pylori treatment. Also that i am losing weight because I am on a LOW FODMAP diet. My GI dr gave me this diet weeks ago and it helps with digestion for people with IBS. I generally just don't feel well and experiencing a lot of other issues like hot flashes, nausea, no sleep, and just general unwell feeling. I know this is a serious topic, and would never want to waste anyones time and appreciate all who have read and left input. I just feel like something is wrong but every person is reassuring me I am fine so I'll focus on believing everyone through this pain




    Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up