Posted , 7 users are following.
cause chest pain and pain over in the upper body including shakyness from inside like vibrating specially at rest . its been 4 weeks still not well . going through a a bad time
0 likes, 16 replies
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diane3579 noor09667
Posted
Have you seen a doctor? Because if you haven't, you need to . Could be fibro, but could me something else
noor09667 diane3579
Posted
ive seen the amergency doctor 8 times they found nothign int he bloods they tok no cr levels raised nothing for the heart they checked troponum levels and clots also nothing there . i aslo my gp he did bloods 2 times dont knw to do with what but they also came out clear . yesterday i had like a little bump on the palm of my hand its just a little one near the wrist on both right and left hand the amergecy docotr saw it he said it doesnt look serious it doesnt hurt when i touch it and its not red he did move some joints they didnt hurt but when he pressed them they did he said its fibro but i have no clue . worried and stuck
anita80306 noor09667
Posted
I've been through that too. Hours and hours in AnE. So many tests, so many painkillers...
8 years later it's Fibro.
Ask your gp to send you to a fibro myalgia specialist clinic. That's where I've been referred now.
chelsey1992x noor09667
Posted
reading this sound exactly like i was before i was officially diagnosed. i spent so many hours in a&e with chest pains and inner vibrations and like you had numerous tests to be told everything is as it should be. whenever i mentioned the vibrations to a doctor they looked at me as if i was lying or crazy, but they were definitely there. this was over 2 years ago and since then i've had even more tests to rule everything else out until i had my fibro diagnosis. the vibrations stopped after a few weeks but i occasionally get them now when im anxious about my pain or if im focusing on it, i put them down to anxiety which caused me so many physical symptoms but now that is under control it rarely happens. id get another opinion even if its just to put your mind at rest but i remember feeling the exact same and i couldnt accept that it wasnt anything serious. it improved once i accepted it and learned to manage it. good luck x
noor09667 chelsey1992x
Posted
Thank u so much x really helps .
did u also had the feeling u were gonna be sick sometimes and warm body but no fever?
chelsey1992x noor09667
Posted
i do occasionally get nausea, and sometimes like a warm and achy feeling in my legs as though im going to be ill with a fever but it doesnt develop. IBS is a common in fibromyalgia sufferers too, its all linked to the nerves in the digestive system. have a word with your gp to explain why youre having the symptoms youre having rather than them just telling you what they think it is, youll need to be able to understand why your body is giving off these symptoms and it helps manage them and i guess you just learn to block them out as much as you can. until youre convinced its nothing serious then youll continue to focus on the pains and become anxious over them. i was having so many panic attacks thinking theres something wrong with my heart and that its going to stop any minute which causes the anxiety and then its just a vicious circle or pain and panic. its amazing how many physical symptoms the anxiety causes and it could all be a bad flare up of fibro in the mix too which must be awful for you, i really feel your pain on this but ive managed to come out the other side youll get there too. just keep pushing your doctor if youre worried you know your body better than anyone else x
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noor09667 chelsey1992x
Posted
Thank u . yes ll explain to the doctor next time . some people say its to do with th nervous but im not convinved with that.
chelsey1992x noor09667
Posted
i've also been on a low dose of amitriptyline for a while now which really helps the nerves to relax, if its fibro it might be worth mentioning something that will help you relax to see if that helps?
noor09667 chelsey1992x
Posted
if it was something like lupus or rhetomoid arthirits it would have shown in the bloods right? X
chelsey1992x noor09667
Posted
yeah did they show you the tests they were doing for your bloods? inflammation would have been picked up which could indicate those conditions i think, so theyd have sent for further tests if anything was abnormal x
noor09667 chelsey1992x
Posted
ys they did it for the hert . any infections or inflamation but everythign was normal that too a good 6 times when i went to a&e. i dont know im so worried
anita80306 chelsey1992x
Posted
It's weird, all the body ever feels is inflamed. Yet it's not even tests are done.
I've been for assessments. It was concluded that I was fit. That's the cost of an invisible illness. I too feel accepting it makes a difference. But it's difficult when "professional" treat you like your making it up.
Only my new gp believes me and diagnosed recently. That's when I, myself was able to accept it. A diagnosis makes a lot of difference.
chelsey1992x anita80306
Posted
yes you're right anita, some doctors seem to not believe in fibro which is frustrating, I lost count of how many appointments, blood tests and scans I've had to be told everything was "normal" when it's not, it just can't be detected that way. It took me two years to get an official diagnosis x
dave0865 noor09667
Posted
Hi have had the same problem for several years! It can come on for no reason, lasts for weeks, then goes for a while. Chest feels tight, heart feels like its pounding etc. have had 24 hour ecgs, echocardiograms, all come back normal. I also have back pain that comes and goes, muscles feel tight in my legs and hips every morning. Ankles always feel weak as well.. Stomach always feels bloated, some days I need to pee every half hour (most days its every hour). Energy levels are low most days... I mentioned Fibro to various GP's over the years and the most I got out of them was could be, then nothing further is said! I've had so many tests for everything over the years but nothing is really ever found. I think women are more likely to be diagnosed with Fibro, for some reason with men I don't think GP's join the dots and think it Fibro they just think your out of shape and need to exercise more! I stay positive by doing a small walk most days (more than 2 miles and I feel worse for the next week or so!) Daily stretches for 10 minutes (given to me by a Physio), Daily epsom salt bathes. Generally trying to stay busy in moderation. I find its walking a fine line, if I do too much of anything I can feel more terrible than usual for 2 to 3 weeks. Hope you feel better soon..
noor09667 dave0865
Posted
Thank u . i have had ecg's done like 8 times doctor says its fine i havent gotten an eco done . but i have had bloods taken and no infection to inflamitery markers . if bloods were fine in a&e it means no auto immune dissease right?
anita80306 dave0865
Posted
Thank you for your post Dave. I'm taking notes of that's OK. To raise more awareness and eliminate the stigma.