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Worried its Motor Neuron ?

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janet74449
janet74449

Hello  Husband ws put on Venaflaxine for anxiety last August - taken off cold turkey mid Sept as voice started to fade. Then beg of October was prescribed Lyrica and walking problems started. MRI brain scan done - no stroke.Saw a private Neurologist yesterday and he's come up with possibility of Motor Neuron but have to have an EGM done to confirm. We are absolutely devasted as you can imagine. Have read that Lyrica (only on it for 6 weeks - off 21st Nov. 2016) can kill brain nerves.  Has anybody come across this situation please ? Many thanks

1 like, 4 replies

4 Replies

  • Guest
    Guest janet74449

    Posted

    Venaflaxine was  what my husband was put on for pain managment orginally and several years later it was stopp aburtly and put on Cleixia his voice got rough corase he started weakness in hands and other issues he passed away with ALS on Jan 16, 2015 and I felt it was from the Venaflaxine HE WAS FNE until it was stopped suddenly! Venaflaxine is one of the worst drugs ever and once on it basically theres no coming off it without paying a huge health price and with my husband case his life! 
    • janet74449
      janet74449 Guest

      Posted

      OMG  so so sorry to hear this Crosado . I know these drugs are awful and if we knew now what side effects / withdrawals they gave we like you would never have gone on them.  In your case was it actually proved that it was Venaflaxine ?
  • Guest
    Guest janet74449

    Posted

    Janet, the aggravating part is you kow what MOST likely caused it BUT because it was ALS they refused to beleive it was caused by the medicne! My husband and I both know it was but doctor refused to beleive it so what can you do! Please keep me posted I'm Carolyn Rosado on facebook if you like to add me as friend my profile pic is my son Jacob with two thumbs up in swimming water (he has autism) .   I pray its not ALS!  Hugs!

  • Minka62000
    Minka62000 janet74449

    Posted

    Hello Janet,

    I am sorry to hear that you and your husband are going trough. I was on Lyrica over 3 Years along with Cymbalta for pain. I have to say that these 2 combination have helped me to improve quality of life a while having chronic pain. After a while as all other medications the body get resistant to the medication and stop helping. However, I have had brain tumor along 3 surgeries, and Lyrica has not killed brain cells. This medication just numbs nerve perception, and stop sending pain signals to the brain. I would suggest to ask his doctor to prescribe him Cymbalta 60 MG a day along with Lyrica for Central pain. It seems that his walking problems are related to separated issue, possibly cranial nerve VII OR VIII. Ask doctor for MRI IACS to check cranial nerves. I wish you both all the best.

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