Worried Wife

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Hello All! I have been reading everyones stories and just feel for all of you! My husband has such a severe case and its now to the point I am losing sleepsad My husband was diagnosed when he was 18 yrs old with having LP He is now 33 and this is his second outbreak EVERsad But this is affecting him so bad I am turning to others for as much advice as possible! Many medications, UV treatment, and every ointment I feel there is! He has always had the LP from 18 on his feet and legs also his wrists. Now my concern is his mouth! He was hospitalized a month ago for having a 2.2 WBC count and his platelets were dropping. Every morning is just awful! Lips are so very tender, blood running down his cheeks and all over his pillow. He now has this lump like mass on his left side "jaw line" towards back of the throat. My main concern is getting his mouth under control and the bleeding to stop. Any ideas? Thank you!!

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  • Posted

    Oh Crystal, I really feel for you both.  I have had OLP for over a year but I have to say, nothing like your husband. I am so sorry.  But, the treatment I have had that is working for me to keep it under control somewhat is washing my mouth and gargling wth warm water and prednisalone tablets from the GP each evening, buying Neals Yard Aloe Vera liquid and holding a small amount of that in my mouth for a little while gives relief but not long lasting. I use eumovate cream, the smallest amount on my tongue and gums (which you can buy over the counter as advised by my GP) which is great but you should only use that for up to 7 days in one go at the most as its a mild steroid cream.  I avoid all fruit except bananas and very little alcohol, definatley no spirits. I used Aloe Vera toothpaste for a while but my dentist wasnt happy for me to use it long term so I have managed to go back to colgate prorelief for sensitive teeth and that seems ok now but wasnt for a long time.  So perhaps a warm solution of the prednisolone tablets if your doctor will prescribe them for your husband, might help and white foods if he can manage to eat to keep irritation down to a minimum. Im sorry if you know all of this and hope that some part of it may be helpful to you both. please give him my best wishes for some relief very soon.  I will be thinking of you both. Gailx
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  • Posted

    Sounds like you need to also work on building up his immune system. I have it to my knees, in my mouth and the private area...but am keeping it pretty well under control with natural remedies...taking supplements and improving my diet. Make him banana smoothies with a good yogurt...and a refrigerated probiotic. Lots of veggies...lightly steamed so that he can eat them. Since he is so tender in his mouth...do salt water rinses...a scant teaspoon per pint of warm water....do this several times a day. He can use a little baking soda or activated charcoal made from bamboo to brush his teeth. I know the charcoal sounds gross...but it is the least aggravating to the condition and does a good job of cleaning...just put a small amount in the palm of your hand...dip a damp toothbrush in it and carefully clean your teeth and tongue. Rinse thoroughly with the salt water rinse.  Put a cup of bicarbonate of soda in a warm bath and soak for 15 to 20 minutes. Also, witch hazel is healing.  I put it in a spray bottle and spray it on my legs and private area...it may sting just a bit...but goes away quickly. For protein...if he is having difficulty eating...try mashed potatoes with and egg whipped in. Keep the liquids going...vegetable juices...other than tomatoe are also a good idea. If you have a juicer...a granny smith apple to 3 carrots is a good cleansing and fortifying drink for the body.  Hope some of these things can help. My heart goes out to him.
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  • Posted

    Gosh he sounds in a bad way.  I have OLP too and so I know how distressing it can be...

    I agree that he needs to build up his immune system.  Start making your own bone soup, yes it sounds crazy but it is incredibly nutritious for him (Google it) and some people with Ulcerative Colitis even claim that they have gone into remission from taking this soup three or four times a week, and it will be something that he can get down without too much distress.  

    "According to an old South American proverb, "good broth will resurrect the dead." While that's undoubtedly an exaggeration, it speaks to the value placed on this wholesome food, going back through the annals of time"

    I think he needs a good probotic, multi vitamin etc too.

    I would immediately find a good Homeopathic doctor and make an appointment...Many people with Lichen Planus problems have found that Homeopathy works well, myself included.  It seems that Homeopathy is a good route  for people with skin problems....the only problem being that people with such a severe condition rarely believe it can work and therefore don't give it a try.

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  • Posted

    Hi crystal I have LP to it is an awful disease the itching is just a nightmare, does your husband have regular checks with his dentist because he should be able to help him, who first diagnosed it? Iv had it about 13 years and it's just thus last 2 years it's really bothered me my mouth burns with spicy foods I always have to watch what I eat and drink, do you know what caused the LP mine seem to come at the same time I had an abnormal smear test so I think there is definitely a link, hope things improve for him Xx
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  • Posted

    Hi Crystal, sorry to hear your husband is suffering. I have been newly diagnosed with oral LP (December 2014) and at the moment it is quite mild, Im hoping it doesn't get any worse.  I was a bit concerned about the lump/mass you mentioned. I would suggest he sees his doctor to get it checked out. My specialist said I should contact them if I have any new lumps in my mouth or ulcers that dont heal. I know that they can prescribe oral steroids for severe OLP and maybe they can give him this to help, but I think he should get the lump checked out just to be sure. Good luck and I hope he finds something to help his sore mouth. Pauline
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    • Posted

      Hi Pauline I have oral lp too I noticed mine came after an abnormal smear test u cannot eat spicy foods it burns, think I have it on my skin to it becomes very itchy xx
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