Worry re commencement of statins after shoulder damage!

Posted , 10 users are following.

Hi

I am worried that after stopping taking Atorvastatin 3 months ago due to severe arm & shoulder pain (still have both frozen shoulders) that despite carefull dieting my cholesterol is now 8.5. My GP has advised me to try Simvastatin 40 mg. Im frightened that my shoulders could get worse if I go back to statins. My Gp thinks that because my shoulders have not improved during my rest from Atorvastatin that it wasnt the cause (even though my phisio was convinced the Statin has caused the frozen shoulders!

I am worried re my cholesterol level as I had a heart attack last October but just as worried now re the side effects i.e shoulder and arms in severe pain and regular feet and leg cramps. Dont know what to do Drs seem to insist statins are not to blame!!!

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  • Posted

    Hi,

    Try to be referred to a lipid clinic. Mine has taken notice of what I have had to say. My cholesterol level was originally 13.8 in 1991. It finally came down to 4.8 on statins and repetitive combined. However for whatever reason over the past 5 years I have suffered excruciating pain in my shoulders plus frozen shoulders. The lipid clinic is trying to find a way forward without statins. My cholesterol level stands at about 8.5 at the present time.

  • Posted

    If I were you Chris I would avoid the statins at all costs.

    If only people would realise that cholesteryl is not the cause of ALL the problems it is supposed to be.  Actually we need it - both kinds otherwise we would die instantly!

    Having said which get your diet right live healthily and eat as much oat products eg  oatcakes, oatmeal porridge and pulses as you can... this is the best way of bringing down your cholesterol levels to what is deemed to be "normal"

    Doctors and consultants do not always know best and if I were you I would listen to my own body and forget the statins.

    I refuse point blank to have my cholesterol level ever recorded again.... I would rather drop dead of a heart attack then suffer the agonies of the damned that I had when I was on those wretched tablets particularly as I now have "total motor block" as a result of them.... and am virtually housebound and wheelchair bound .....DONT let it happen to you.

    My GP and my consultants were all very dismissive of it being due to my statins intake however my neurologists NOW agree and if I could I would hang Big Pharma out to dry.... I hate them with such a vengeance as statins have destroyed my life.

    • Posted

      Well said alzheimer, the sad thing is that there are some great doctors  and consultants out there, they jusst seem to be so few and far between. I read somewhere about the massive number of patients some GPs have - I keep thinking that if they actualy cured their patients instead of just administering pills, perhaps the numbers would go down! I did tell my GP that I thought many doctors had changed from curing sickness to simply managing disease. He laughed and told me not to blame the GPs , but blame the majority of patients who don't feel happy unless they get medication! By the way, have you read the book called Bad Pharma?

       

  • Posted

    For some of us diet isn't enough to lower our cholesterol to a safe level.  Have you tried psyllium husks?   My cholesterol is slowly coming down after taking 3 tsp in my porridge most mornings.   If you decide to try it, BE CAREFUL NOT TO EAT IT DRY as it expands on contact with moisture which is rather dangerous if it happens in your throat.

    There are also non-statin cholesterol lowering drugs, which for some reason most doctors don't try FIRST.    I started getting the same negative effects I'd had on statins, so I stopped taking them, but they may work for you - worth a try?

  • Posted

    I don't take them I had scrutiating pain in my legs like they were being broken and was afraid to go to sleep now I take Holland and Barrett cholesterol lowering caps and grapfriut each morning I'm going to ask the consultant to tell me how els can my cholesterol go up instead of familia and bad diet no exercise because my body makes natural cholesterol perhaps the problem is there??
    • Posted

      I hope you've checked all other medication you're taking because there's an enzyme in  grapefruit which makes it a contraindication for some medications.

      What's in these Holland & Barrett caps, because I don't think that brand is available in Australia?

  • Posted

    Chris, I took Simvastatin for roughly three weeks four years ago and stopped due deep pains in my arms and some research!  I now have statin induced myopathy, muscle loss to the point where I have little, I also react badly to sugar in all forms. I take CQ10  and that helps. If it were me I would seek alternative help for the shoulder problem, physiotherapy, osteopathy and research for answers but don't go near the Simvastatin.
  • Posted

    Hi All, Statins, that dreaded word, I was on them for just over six months, my cholesterol at that time was only 5.4. I was put on them to give me protection against a heart attack, lower my cholesterol and give me a further 10 years of life. What they did give me was excrutiating pain all down my left leg, to the stage I could not walk across my kitchen without the pain kicking in. So I stopped taking them just over a month ago, in myself I feel a hell of a lot better and now I have no pain in my leg.  I take porridge oats and oat bran hot or cold every morning, and a Beta-sitosterol (Lestrin) tablet as well, have cut down on red meats, and dairy products, I've lost a stone in weight, so very happy. Have got a Doctors appointment this afternoon, see what she has to say.  Definitely do not take Statins I have a couple of friends that have been on them and had terrible troubles, one, she cannot walk well at all she has lost all the muscle in her legs.
  • Posted

    Chris - I can so understand  your worries following your heart attack but for heaven's sake do NOT take simvastatin, it's one of the worst on the market for muscle and liver damage.  My cholesterol is around 9 and my doctor actually stated I was a stroke waiting to happen but having blindly accepted statins and then becoming so ill I couldnt move, I refuse point blank to take them again no matter what.  I now have chronic fibromyalgia and even though my doctors are adamant statins didnt cause it, I know for a fact I had no muscular or pain issues before I took them.  They also cause memory and cognitive issues - it's believed that this is because they artificially reduce cholesterol levels to below a healthy level - the body and brain need cholesterol and it's a fact that alzheimer sufferers present with very low cholesterol levels.  It's NOT however a fact that heart episodes are caused by high cholesterol alone - many other factors come into play and a high cholesterol reading is not the danger.  Please dont take them, you will be permanently damaged by them.
  • Posted

    I support the views of others who have responded to your post. About a year ago I was on Atorvastatin 20mg for about 6 months. I suffered extreme pains in my arms, neck and shoulders, and in both thighs and calfs.  I still have some pains in my legs so please don't expect the pain in your shoulders to disappear in 3 months. Also, I read a post recently that your cholesterol level rises for a period after stopping statin. Suggest you REJECT STATIN and work on other cholesterol lowering solutions, including exercising such as walking approximately three miles a day (or every other day) at a rate of around 15 minutes per mile (or lower). This is possible as I am 73 and my pace is just over the 13 minutes per mile mark. Good luck mate.
    • Posted

      So have you had your cholesterol checked after all that exercise?  I ask bc many non-statin remedies I've tried don't in fact make any difference, in spite of them being healthy for other reasons.

      I also point out that your level of exercise wouldn't be possible for many of us because of other health conditions:  eg I have COPD, no way I cd do it, much as I might like to

    • Posted

      Jude have you tried CQ10 or even better the upgrade ubiquitine (not sure of the spelling) 200g per day during a meal containing fat.Get them from Amazon. Holland and Barrett had no idea what I was talking about!   Also take magnesium.  Keep away from sugar if you suffer from fatigue, memory loss and breathlessness as statins raises your sugar levels.
    • Posted

      Hello Leajayse, I was given a leaflet on CQ10, when I went to my health food shop but dimissed it, what exactly is it all about, and I'm going to look up "ubiquitine"and Phyllius husks find out what that is. Sugar I don't touch,but I do have half a tea spoonful of honey in my coffee, I got that in France, works very well, also good for other things relating to the body.

      What do you take the magnesium for?

    • Posted

      I started taking CQ10 when I was on statins n the hope that it would minimise or banish the negative effects:  it made no difference but I'm still taking it.   Who is Barrett?

      Why magnesium?  I eat very little sugar but would be interested to know how sugar affects breathlessness, I've never heard of that before, or that statins raise sugar levels.  There is evidence statins may make it slightly more likely one will develop diabetes, also cataracts but both those conditions are so common anyway I wouldn't regard it as a good reason not to take statins if you believe they'll prevent heart attacks - it's a matter of balance.    

    • Posted

      That's PSYLLIUM, by the way!   Just be careful to never take the powder dry because it expands very quickly on contact with liquid and could cause choking.   I mix it into porridge, 3 tsp, which on the advice of a naturopath I'm slowly increasing to 6 tsp a day;.
    • Posted

      Yes, my cholesterol has been checked recently at 5.2, having raised from 4.5 over the past year. My GP wants me to get it down to 3 or below as I had a minor heart attack two years ago. I fully understand your comment about those who have other health conditions which prevent them from exercising, in particular COPD which I know about as my Mother-in-Law has it. However, I know many people who could exercise but simply reject it. Also, exercise alone will not lower your cholesterol sufficiently - dieting also helps a lot.
    • Posted

      Of course exercise is only part of a health regime and yes, I also know people who sit around in older years bored off their brains but won't even go for a walk, which would greatly improve their mental as well as physical health.

      I'm so glad I have a dog who gets crazy if she's not walked most days, because that gets me out of the house, I meet other locals with their dogs and it's greatly improved my periods of depression

      You do realise that your cholesterol level would've been regarded as normal decades ago before statins came on the market?   I had a minor heart attack nearly 4 years ago and struggled with bad side effects of every statin on the market, before I decided last year that I'd rather risk another heart attack than live with constant pain, exhaustion, depression and loss of libido.

      Diet doesn't help some of us with cholesterol issues:  I've never eaten a high fat, high sugar diet and have always eaten heaps of vegies, even being totally vegetarian for some years, but both my parents had high cholesterol so I reckon there's a genetic factor too.

      I think if you do some research you may find that 3 is in fact too low:  our bodies do need some cholesterol and there's some research which indicates that low cholesterol may be a factor in dementia, because our brains need it.   Maybe statins are the cause of the increase in dementia, who knows?

    • Posted

      hi powerwalker.  Please ignore your GP's opinion to get your cholesterol below 3, that is too low.  The body needs cholesterol and it's only when it gets high and causes artherosclerosis that cholesterol becomes an issue.  Please read research on dementia and Alzheimers in connection with low cholesterol levels, its very enlightening.  Diet isn't always the cause.  Like Jude I have a very healthy diet and have done since childhood but my doctor advised changing my diet would have no effect as my high cholesterol was familial, ie hereditary.   As I eat healthily, go swimming regularly and am not overweight, nor do I have high blood pressure or high blood sugar, my current view is that I'd rather risk the cholesterol level than be invalided or suffer liver damage from the statins.
    • Posted

      Hi Loxie, after being on statins for six months my cholesterol went down to 3.something, doctor said, brilliant, keep on taking them, but you mention Alzheimers, Dementia, I do think that Jude has mentioned these factors about statins, I reckon she has a good point there, it is amazing how many people are being diagnosed with these problems lately, it would be interesting to have information on how low their cholesterol is.

      I,ve stopped taking statins now, feel so much better all round.

    • Posted

      Hi Elizabeth.  Yes, unfortunately doctors are now 'advised' to lower the target level for cholesterol from its previous recommended level of just over 5 down to 3 or below.  There's lots of documented reports available online by quite eminent specialists that when cholesterol drops to the 2 - 3 range cognitive ability is detrimentally affected.  There doesn't appear to be anyone willing to state categorically that statins cause dementia I would point out, however there is clinical evidence that those with dementia and alzheimers often have lower than normal cholesterol levels and that cholesterol IS essential for brain function.  The cynics amongst us are convinced that the lowering of the advisory level is purely as a result of drug companies trying to sell more and having influenced NICE (by fair means or foul - for 'funding' read 'bribes') to then amend their guidelines to GPs on prescribing.  The habit now of prescribing statins to anyone with a '10% chance of a heart episode in the next 10 years' is ridiculous and can only be a sales ploy.
    • Posted

      Hi Loxie, Totally agree with all you have said, I wonder how many people are going to suffer from these B........drug companies, and GPs  that seem to prescribe them willy-nilly to us and then do not listen when we tell them that since being on them we start getting pains,etc; mine was totally adament the statins had nothing to do with the pains I suddenly started getting.

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