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I have not been officially diagnosed with Ankylosing Spondylitis but my symptoms seem to match. I’ve been looking for answers for over 3 years now. A rheumatologist told me two years ago that, though I have the genetic marker, my x-ray images didn’t clearly show the signs. He said my pain was likely due to a congenital malformation in my lower spine, but didn’t seem too sure when he said it. I have a follow-up in three weeks to see if he thinks anything has changed. For me, the symptoms have worsened noticeably. I can’t lay down at night for more than 5 hours, and I’m often up even after 2 or 3. And even that is worsening quickly. Also, even in the last few weeks, while the pain and stiffness has slowly worsened in my back generally, the pain in my tailbone/hips and lower back have increased dramatically. It almost feels like I injured my tailbone in an accident, yet I have not injured it in any way. Of course, I don’t know that I have it yet, but how common is it to see AS symptoms worsen as quickly as this?
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