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Hi I hope someone can't help.
I've been unwell for 8 months & getting worse fast.
My main symptoms are itchy burning pain in several areas including neck & back of head, weight loss despite eating lots, nausea, fevers, Rash, dizziness & worsening neuro symptoms.
The neuro things are scaring me the most as getting worse quickly & I can't take much more.
They started when the burning pain & itching hit my neck. They include, muffled hearing, feeling like I'm not conscious (not like being tired or foggy brain, it literally feels like my brain is shutting down, numb & I can't even speak or think), breathing difficulty (not hyperventilating or feeling tight chested more very shallow & slow like I have to think to breathe like my brain wants to breathe but the message isn't getting through), numbness in neck, back of head, face & pins & needles in hands, rapid heart rate, jumping with fright easily.
These are getting worse especially when falling asleep. Often I keep waking having to think to breathe. Its hell. This us all getting g worse alongside the neck pain. There are a couple of small lumps there. I can hardly move my head & often that makes the symptoms worse. Could something be affecting my nervous system? I'm getting very disabled by it all as very unwell, lost tons of weight, no energy & feel sick. I had to use a wheelchair to go to the shops recently & had to come straight home as couldn't hold my head up with the pain & the hearing loss & lack of consciousness got so bad I didn't know where I was & could hardly speak. I love going shopping so fed up I can't even manage that.
I've had MRI of brain & spine which were normal but no scans of the soft tissue.
Has anyone else had these symptoms? The breathing one especially. Drs misunderstand what I mean & say anxiety but I know how anxiety related breathing feels & its totally different. I'm not fighting for breath just have to think about it or it doesn't happen automatically.
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