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Summary of acid reflux issues for the past dozen years.
I was going through a relationship breakup and one night experienced horrible pain on my left chest. I thought that "heartbroken" was literally happening to me. The pain subsized over night but from that point forward, I had a terrible sore throat. Months later, I started having heartburn. After months of seeing an ENT and GI doctor, I was diagnosed with acid reflux. I had all the tests done, including 3 endoscopies over the years. Basically the diagnosis is that I have mild inflammation but nothing has really popped up or panned out. And yet for years, I have heartburn and a sore throat.
I have not had much luck with the doctors I have seen. They tend to be dismissive and push PPI drugs on me. Even when I tell them PPIs don't really work but leave me with terrible side effects. My latest doctor, at least listened and didn't push a PPI on me, but instead prescribed rantidine. Which luckily hasn't caused me any side effects but also doesn't help much with my acid reflux. She scheduled me for a bravo/impedance procedure today, to be done by another doctor at the hospital. I was getting ready to be put under anaethesia when a nurse tells me that it impossible to do bravo and impedance testing at the same time. I asked for the doctor who was supposed to do the procedure and he explains to me the issue. And since my regular GI doctor wasn't around, we weren't sure exactly what she wanted (and what was submitted to the insurance company for approval). Long story short, there was so much confusion that I decided not to have anything done and went home. Thus the frustration and why I'm here. I do feel cursed by this damn disease. Why can't I or the doctors figure out what's wrong?
The kicker is this one msystery symptom that has been grinding me down. Ever since that "heartbroken" event, I have, to put it bluntly, intermmittent, extremely foul breath. From over 12 years, the best I can describe it that throughout the day, I get wafts of really foul rotten egg odor coming out of my mouth. Sometimes I can smell it and it's really awful. I can't imagine how foul it must be to others. When I can't smell it, I know an episode is happening because I can see people visibly jerk back and react when I'm talking to them. And no, this isn't all in my mind, because my mother was the first person to point this out to me. It explained why for months I noticed people jerking back from or turning away from me. And why I would sometimes smell of rotten eggs. I also asked a friend to be frank as we spent an evening together. I explained to her the situation and she promised to give me an asssessment. By the end of our dinner, she told me she did not detect regular bad breath from me but that a couple of times, there was a really foul odor from me as I was talking. So it's not constant, but what can I say...it's like oral farting. And no it's not burping, I burp a lot but that's not when maladorous episodes happen. It's more akin to like a waft of the odor seeps out of my stomach and travels out of my mouth. This happens when I'm talking, when I'm silent, when I'm alone, when I'm with people, when my stomach is empty, when my stomch is full...it happens randomly throughout the day. It happens when I'm on PPI or other acid reducers and when I'm not.
It has affected my social life and career immensely as it's disheartening to see people reacted viscerally to something coming out of your mouth. Luckily I have friends, but I pretty much stick to staying at home and found a job that allows me to work from home. I have let a lot of life and opportunities pass me by. Don't date, don't have a partner, treading water career-wise, etc.
This symptom started at exactly the same time as my acid reflux symptoms so though I can't be 100% sure, I'm convinced they are related. And yes, I have seen doctors and dentists to rule out nasal and dental causes.
I'm not sure what I'm hoping to get out of this thread. Maybe I just needed to vent. Or maybe there's a one in a million chance there's someone out there who knows what I'm going through? And has some answers to share? Please do not suggest I chew a mint or use mouthwash...I hope it's clear that this is not traditional bad breath...
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