Worst nightmare.. My pain has spread

Posted , 6 users are following.

Hello. 

I’ve been suffering from nerve pain since last August. I had a injury to my nerve in my arm due to doctor error while performing a procedure. The pain shoots from my upper arm (under my underarm) to my first three fingers. I have the normal symptoms: pain, tingling, pins & needle, numbness etc. 

I have noticed a few days ago my foot has started to feel that pain!! It’s my foot, ankle and the lower part of my calf. My leg feels extremely heavy and it’s throbbing just like my arm/hand does. It’s a bit hard to walk and I try not to put too much pressure on my foot. 

My injury happened in my left upper arm and it’s my left foot/leg that’s hurting. 

Does this have a connection? Anyone nerve pain spread only on one side?? 

I knew nerve pain could spread but I wasn’t aware it could spread if the nerve pain was caused by trauma. 

Has this happened to anyone?? 

What should I do? 

I was just learning to deal with the pain from my arm/hand now this is horrible. 

Someone please respond I just need advice and someone to talk with about this issue. 

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14 Replies

  • Posted

    Hi Taylor

    My pain started after treatment at the dentist, I had severe burning numbness and prickling for around five years in my face, The doctor put me on Amitriptyline which was a great help but then is spread to all over my body, am on three medication because your body gets used to the tablets so I get break through pain

    It's the worst pain to cope with .

    Have you seen the doctor and has he suggested what could help ? I was told that it's is referred pain, so it is coming from my face although I feel it all over my body it still only coming from a damaged nerve in my face and has not spread to my body, it just feels like that,

    It's very difficult to explain, It also can cause depression because it's difficult to treat, I have had this for over 20 years, neurologist told my doctor to treat the symptoms as that's all they can do

    You should ask your doctor if the trapped nerve could be released, once it becomes chronic it does not seem to go away then

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    • Posted

      Wowww thank you! Yes I’ve seen multiple doctors, I’ve tried different meds and OT they help some but nothing ever takes it away. 

      I can understand your explanation maybe that’s what is going on with me. I feel the pain in my foot but it’s ciming from my arm. 

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  • Posted

    I had the nerves in my left arm damaged after a medical error as well.  In my case it was after a so called simple blood test. However, the damage has stayed in my arm and hasn’t spread to my foot or leg.  The pain and tingling moves up and down my arm starting from the blood test area.  

    There is nothing you can do about it.  The only thing my doctor would suggest was low dose anti depressants for the pain.  I refused them because I didn’t wan’t all the horrible side effects and withdrawal problems.  My doctor brushed my concerns aside but from what I read on this site, people do experience withdrawal problems and other side effects.  Patient experience is often very different to what your doctor tells you.

    It is trial and error to see what pain management works for you.  Some go to pain clinics or take low dose anti depressants or try tens machines.  Others try supplements or change their diet. There is no one size fits all solution for neuropathic pain.

    Strong sunlight is the only thing that gets rid of the neuralgia for me; cold, damp weather sets it off. I found conventional painkillers no use for this type of pain.   When my pain flares up, I ignore it.   When it started, my pain was constant, all day every day for two months.   The only improvement I have had is that it is now is come and go pain.

    Sorry I can’t give more positive advice, but the reality is there is no cure, only pain management which may or not work.

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    • Posted

      Hi Pippa

      I just replied to Taylor and suggested she enquire about    Scrambler therapy which is widely used amongst your military personnel in the US.  My pain management specialist here in am Australia uses it now with an extremely high success rate. It is non invasive.  

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    • Posted

      Wooowwww! That’s exactly how I feel!!!! 

      The warm weather makes me feel so much better. I live in a state that changes in seasons. I’m strongly considering moving to a warmer state. Snow, rain and any temperatures under 65 sets it all and once it’s set off there’s no going back! 

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    • Posted

      Bcm Hi

      Scrambler therapy is confusing your brain to believe the pain is not there.  Sounds weird I know but it does work. TRy and find it on GOOGLE because I can’t remember everything my Specialist told me. I didn’t need it but it’s just done with leads placed wherever the pain is.  As I said it’s been hugely successful. I have a feeling it’s an English “invention”...... I will see what I can find but we can’t “PASTE” things on this site but I will do my best.  Take care 

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  • Posted

    Hello Taylor

    I have heard of this happening before. May Insuggedt you seek specialist help ASAP. Do you have Pain Clinics in America? (I live in Australia).   

    I had a neurostimulator for my nerve pain but after 12 months it had to be removed. However, my Specialist suggested I try “Scrambler Therapy” which is non invasive and has a huge success rate and is also used widely in your US Military.  

    I haven’t tried it yet as I have been very lucky and  my pain is practically nil since the NS.    Good luck to you 

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  • Posted

    Hi Taylor, 

    Wow your story sounds very familiar to what happened to my husband last May. What procedure did you have done? My husband has been seen by at least 50 different doctors and once they realize it was from a doctor error they are very reluctant to help. He found answers at Mayo clinic, not the answers we wanted. I highly recommend going to Mayo Clinic. Please tell me more about your procedure. It sounds like you now have CRPS due from the trauma. 

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    • Posted

      I forgot to include this link. This video explains the pain that is happening very well. 

      Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.

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    • Posted

      That’s amazing. I believe I did get CRPS also one doctor mentioned that was possibly the case but didn’t diagnose it. I had my birth control implant removed.  What procedure did your husband have??
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    • Posted

      He had first rib resection done and the doctor broke a tool during this and injured his phrenic nerve and small nerve fibers. CRPS sucks! I feel bad for him and everyone that suffers from this. Did you see the link? If not, the video was a youtube uploaded video by Mayo. Search Dr Sletten Mayo youtube central sensitization. It is a 13 minute video. If anyone is suffering from CRPS this video was helpful for my family and I and I think could help you understand what is really going on in your body. 

      I hope that you can find relief and stop the spending. 

      Report Reply

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