Would like to discuss treatments of HS
Posted , 6 users are following.
Hi there. I have been newly diagnosed with HS. I've had it about 15 years and my doctor just said it was folloculitis but I was seen by a different doctor and she just diagnosed me. After reading all the stuff on HS that's exactly what I have. I go through months of nothing and then painful flare ups of multiple lesions. Sometimes I can squeeze or lance them on my own and they go away in a day or two. Others just seem to stay for days and weeks. I've previously used fucidin H cream on an occlusion bandaid and cover the lesions. I've recently started benzacin which is benzoyl peroxide and clindamycin topical. Wondering if anyone's had success with this? They're so painful it hurts to walk and sit. Majority of mine are inner thighs and some in my armpits but those are usually quite minor. Thanks.
0 likes, 11 replies
aussie76 Canada86
Posted
Hi Canada86,
Defintely using topical ointments seems to help me, especially if they're weeping and often use it before they open also. Have to keep the bio-load under control I feel. I use chlorhexidine wash on the areas in the shower and betadine afterwards. I let my infection spread a little for years and after having surgery learnt how to bandage it properly and contain a little.
I had a remission after surgery (of a big one) and 10 days of intravenous antibitiotics and then afterwards have been able pretty much nail down the flare ups to what I eat. (potatoes, paprika (nightshades) and maybe some nuts).
Also in those areas.... I found the wrong underwear will rub and aggravate... also armpits... I found polyester shirts seemed to really exaccerbate it.
I can't go on about the food intolerances enough...
aussie76
Posted
The effective antibiotics for me was clyndamicin - very effective after trying many. Although I've only ever ingested it and haven't found the topical stuff here
Canada86 aussie76
Posted
I can't tolerate oral antibiotics very well so unless it's a last resort I avoid them. That being said the lesions go away soon after starting any oral antibiotics for other conditions but within a week or two after I can get new ones so seems pointless. Yes my underwear lines are pretty much exactly where the lesions and scarring is in my groin. I'm going to try to lay off potatoes for a while and see ( this recent flare up doesn't want to go away and I have been eating potatoes more frequently in the last few weeks). The actual diagnosis is new to me although I've suffered for years. I'm definitely going to look into it the food causality. Thanks. I'll let you know if this benzaclin works.
Debbon Canada86
Posted
Canada86 Debbon
Posted
Thanks. I've never noticed a difference in relation to diet but when I did lose weight they were better (less chaffing and rubbing). Also I've noticed that if I'm more stressed, working more, sleeping less, they flare up and don't go away as easily (maybe I can get a doctors note for a vacation!). I'm going to follow the advice on here in regard to nightshade foods and try to stop them and see what happens.
Debbon Canada86
Posted
hypercat Canada86
Posted
Hi this is common as many doctors have never even heard of HS. The only way to get a firm diagnosis is to see a dermatologist and get access to the latest treatment.
The worst thing you can do is 'squeeze' or 'lance' them on your own as you risk causing damage to the lower levels of your skin and also risk spreading the infection. Don't ab's work for you? I always take those when I have a flare up but they don't help everybody. x
Canada86 hypercat
Posted
Abx work but I get violently ill and bed ridden basically so I only use them as a last resort. My question for everyone was if they had used topical abx and which ones. Like I said before fucidin H has worked in the past but I'm trying benzaclin now and wondering if anyone else has.
Valerie19955 Canada86
Posted
So many doctors have little or no knowlede of this "secret desease" PLEASE do not squeaze the "boils" this can make things worse,cause infections, they have to go down in their own. My daughter has been a sufferer for 20+years, it was hardly ever heard of then, we saw umpteen doctors who said it was this that or the other, prescribed creams anti biotics, you name it. All the family can do is be understanding, especially when it is painful. You need a dermatologist that specialises in HS.
Canada86 Valerie19955
Posted
I've been taking care of the "boils" on my own for 15 plus years and managing just fine. If this current flare up doesn't settle down I might ask to see a dermatologist. If the boils just bleed I leave them alone but if they're full of pus they need to be drained. I'm an RN.
Canada86
Posted
My question for everyone was if they had used topical abx and which ones. Like I said before fucidin H has worked in the past but I'm trying benzaclin now and wondering if anyone else has.