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Would love some advice please

Posted , 3 users are following.

victoria_59764
victoria_59764

Hello all, 

I don't know what to do. For months now I havnt felt myself. I feel exhausted all the time, I have sharp pains in my legs after walking dog for 5 mins. I get severe back which has been a long term problem. 

I have no get up and go anymore and feel completely energy less. 

I started a new job in January as a nursing assistant at the hospital. I'm on a 6 month probation period and already I've had lots of sickness absences. I have to work 13 hr shifts and I can't begin to explain the sheer exhaustion I feel after a shift. 

This year was supposed to be a good year for me. I've not had the best of luck over the last few years. 

Previous to this job I worked in end of life care and managed to complete an access course in preparation to begin a degree. During the course I had a cancer scare after a large cyst was found on my ovary. Fortunately it was not cancerous however I'm now waiting for a hysterectomy ( which is ok as I have two beautiful girls). 

I was due to begin uni in January 17 but had to defer the course as the hysterectomy was due in June last year. 

Weeks before the op I had a letter to tell me it was cancelled due to lack of staff. My dreams were shattered. I'd cancelled the degree for nothing and by now could have completed my first year. I've now lost out on the NHS funding. 

I'm still waiting for the op but in the mean time I decided to get my foot in the door at the hospital to see if there are other options for me. 

Sorry for babbling on I just wanted to explain a bit about me. 

A couple of years ago I was jogging 15 miles a week. Now I'm struggling to walk the dog for 20 mins. 

I'm 36 years old and have so many hopes, dreams and asperations. I'm not giving up on my dream of becoming a nurse but wonder how on earth I can do this when I feel like this. 

The other thing I should mention is that my mother has MS. She was diagnosed at 30 and she's now 58, wheelchair bound and the beautiful lady I know as my mum is slowly disappearing. This is killing me! 

Is MS hereditary?? I am fearful that my symptoms might be that of MS or is it all in my head? 

I feel I've changed in the last few years from someone with huge amount of energy, bubbly, outgoing and up for anything. 

I'm now someone who feels permanently unwell, lethargic, energyless, in permanent pain, low mood. 

I've been off work for the last week with severe abdominal pains. I feel so let down by the doctors. I've had three telephone appointments this week and not once have the GP asked me to go in for a examination.

I had prolapse surgery 6 years ago and I feel like it's undoing itself. I'm also having difficulties weeing, I'm bleeding after sex which is soooo uncomfortable. The docs have referred me for a bladder scan and offered to see me NEXT Friday. I just feel I'm being fobbed off because I'm on the waiting list for hysterectomy. 

I've been in bed all weekend after sickness on Saturday, high temp. I wonder if this might be result of urine infection? But docs didn't even see me let alone request a sample. 

I just feel so let down and alone and in the mean time I've had another week off work. There's just no way I could of done 10/13 hr shifts when I'm feeling like this. Will I lose my job as I'm still in probation period?? I have contacted occupational health and self referred and awaiting an appointment. 

Who ever takes the time to read this... THANK YOU!! and I apologise for the lengthily low down. It's so hard to summarise everything. This is just the tip of the ice berg. 

Any advice would be greatly appreciated.. thanks so much. 

Vicky 

0 likes, 4 replies

4 Replies

  • DiannaO
    DiannaO victoria_59764

    Posted

    With a high fever and blood in your urine, a trip to the ER might be a good idea for the immediate issue. If you can, for long term issues, I would suggest finding someone who can take blood tests for anything and everything. You want to rule out as many things as possible. If you're diagnosed with CFS and Fibromyalgia, you'll probably need to consider the fact that there are things you're not going to be able to do at this time. Do you have family who can help you? If you continue to push yourself, your body can't heal. If you are diagnosed with MS, you don't have to believe that your life is over. And as with anything as challenging as CFS or MS, it's a long road and takes a lot of time and trial and error. For me, Western medicine doesn't work. For someone else, it might work. It's a path of discovery.

    • victoria_59764
      victoria_59764 DiannaO

      Posted

      Thanks so much Dianna. I will consider all that you've said. 

      Im supposed to be in work tomorrow. How I'll manage I don't know but I'm so frightened to lose my job. 

      I'm part of a very tiny family. To be honest I can't really ask my parents for help as dad is mums full time carer. I also help out when I can. My sister has three young children. 

      I do have a partner but we don't live together. He's fab but really doesn't understand where I'm coming from. He's not the best at dealing with illness and emotion. I'm sure he thinks I should just get on with it!! 

      Thanks so much

      Vicky 

    • DiannaO
      DiannaO victoria_59764

      Posted

      I know. It's very hard. I lost my job and my home 3 years ago but my parents took me in because I was so bad I could barely function. They are elderly and now I'm well enough that I can help them out a little bit. It has taken this whole 3 years for my boyfriend to kind of get it. Tho I don't think he'll ever really understand because unless you are  someone who has it, you can't really know what it's like. .

  • janbl
    janbl victoria_59764

    Posted

    Hi Victoria. Sorry to hear you are going through this. I somewhat understand your fatigue. I am going through similar and will be seeing a doctor in a few weeks. I think it's important that we force ourselves to get some exercise. There are some vitamins and such that are supposed to help. I will let you know how my doctor appointment goes. Please let me know what your doctor says. Jan

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