Posted , 6 users are following.
I had decompression last year and to be honest I have been blessed that my operation was successful - I am pain and drug free except on the off chance my back is killing me..but nothing to compare prior my surgery. However I fully realized that my health care professionals have a little knowledge of this, for that reason I feel or perhaps assuming after reading lots of stories from this site - it seems not just in my area but across globally - I would like to publish a true story from all of you so that I can give it to health care professionals across the globe I will set up a separate website about this condition - I feel as though we ought to help them the more patients and health care professionals aware about this the better they are treating their patients. For all the right reason I would be grateful if you all could write a story about you and your condition- I also had contacted my local radios to speak about it - they agreed to give me 30 minutes to talk about it - so basically increase the level of awareness - because I used to be scare not knowing what had happened to me - however after finding this site - I learned a lot - therefore my intention is to share ''what is chiari malformation is all about''
Ideally the content of your story would as follows:
1. Your activities prior your condition
2. Your unknowingly symptom
3. How you try to get help That to include how difficult it is due to your health care professionals just do not understand your symptom and seems lack of knowledge of it)
4. How you are coping with that
5. What effect it is with you and your family
6. What do you expect from your health care professionals
7. What is your situation after surgery
8. Whether it is successful or unsuccessful
9. What do you wish
OR EVEN JUST A SHORT STORY ..THAT EMPHASIZING HOW DEBILITATING THIS CHIARI MALFORMATION IS AND SO WISH THAT THERE IS A MAGIC WAND TO TAKE THIS AWAY
Once I put together - I will put it in the website and you all can read it
THANK YOU SOOOOOOO MUCH
we have to help each other...THERE IS A LIGHT AT THE END OF THIS TUNNEL IF WE HELP EACH OTHER.
1 like, 7 replies