Wow! PHN is big time pain!

Posted , 4 users are following.

This forum has certainly covered all the bases. I suggest that anyone new read all the posts thoroghly. Everyone is different and it may take a lot of trial and error to find the right combination of treatments to find relief. I'm able to function about 85%. The PHN is in a nerve on my neck that goes into my face. Since I can't turn my neck, I can't drive, but I work from home at my computer so I'm luckily satisfed with that. To re-iterate my treatment:

Doxycycletne (Cymbalta) 60mg at bedtime.

Gabapentin 600 mg every three hours that I'm awake.

Zolpidem 10mg at bedtime to aid in sleeping.

Lorazepam 1.5 mg at betime to cut down the electrical shooting pains in the nerve.

It is amazing to me that no research seems to be going on. I've spoken to my neurologist about this and he has no real answer. It doesn't seem to be a topic of interest to any of them. Amazing!

 

0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    Hi i have suffered this for over twenty years now. Ive never been sent to a neurologist ive just been left with my doctor now who has no idea of the pain. Ive kust had to finish work due to days off because of pain. Im looking to work from home. My pains in my sciatic nerve it goes doewn my leg and my rib cage and head often feel like theyre in a vice. I agree more research should be being done now and more understanding. Julie
    Report / Delete Reply
  • Posted

    Most great medical discoveries happen by accident I don't think this will be any different. Sooner rather than later I can only hope. A good example is the eye surgery to correct vision near and far sighted is performed by very average eye Doctors like it's nothing. That technology came by accident literally....a young boy in Russia was running into his house his vision was so bad his glass look like coke bottles he didn't see that the door was closed it shattered the lenses in his into his eyes and after he healed and they removed the bandages his eye sight improved they discovered the shards had accidently made cuts in his eye that partially corrected his sight. So I think this is the only way that nerve damage will be conquered, simply by accident. It could happen at any time.
    Report / Delete Reply
    • Posted

      Good accidents happen, I guess. In the meantime, I've found a clinical trial going on for a drug called AGN-214868. This is made by Allergan, so you can take a look. Unfortunately, it's nowhere near me.
      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up