wpw

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my daughter who is 10 years old was diognosed with wpw last week. i also got told she has a murmur. can wpw give u a murmur? or is this something else aswel as her condition? im so stressed and so worried for her that i wrap her up in cotton wool and hate it when she goes to play out.

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  • Posted

    Hi,

    Sorry you and are daughter are going through this.

    Your doctor can provide you with the most accurate information, but I can tell you what I know as a WPW survivor. WPW and heart mirmur are two separate things. WPW is an abnormality in the heart's electrical system. In most cases it is 100% curable with a catheter ablation. If not, medication can control it well. Not to worry smile I had the ablation when I was 14. I am now 30 smile

    Heart mumur, is an extra sound that the doctor hears when they listen to your daughter's heart beat. In most cases it's benign. Nothing more than an extra sound, and people can go on living their lives normally. So also not to worry smile

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    • Posted

      hi and thank you very much for the reply. shes been reffered to the specialist cardiologist. the doctor said that she has quite a big hole in her heart. is that the murmur? and do you think she will need a operation to fix this.
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    • Posted

      Hi Rebecca,

      Having a hole in the heart is different from both WPW and heart murmur. But I'm thinking what the doctor is referring to is the "extra" pathway that comes with WPW. It's hard to visualize! This is not an actual hole you can see! It's an extra outlet for the heart's electrical activity. Your doctor can explain it to you with pictures and such smile

      WPW doesn't usually need open heart surgery. A simple operation will be get the job done. The doctor will direct very narrow laser tubes through the patient's thighs/chest towards the heart. Then he/she will use either a burning or a freezing technique to kill those cells in the heart that are sending "extra" activities. Think of it as laser hair removal! The roots are burnt and they can't produce any more hair! There is no need for hospitalization after (maybe just one night), and the patient can go back to normal living immediately after smile

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    • Posted

      hi thanks for the reply. the consultant said shes defo got a hole in her heart it can be seen clearly on xray!!! ive heard of many people having the surgery you mentioned and it didnt work they have ended up having it 3-4 times without success. what if it doesnt work what will happen next?
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    • Posted

      Any time smile

      Hmmm... Don't think about it that way smile After my ablation the doctor said there is a 25% chance that it will come back within the first year. After the first year chances are only 1%. And that was 16 years ago. I'm sure medical technology has advanced since then.

      But if operation doesn't work, there are anti-arrhythmic medications that will control the condition smile I'm sure it also depends on each person... If they are having symptoms or not... And if they are, how severe the symptoms are.

      Also, if I may say, don't read too many online forums! You might come across 10 people with failed ablation operations, and lose hope, where as the other 1,000 who had successful ablations are living their lives and not writing on discussion forums smile

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    • Posted

      Hi,

      My name is David. I am a 29 year old male.

      I had WPW ablation on 4-5. The surgery or procedure was a success and has a 1% chance of returning.

      Prior to surgery I didn't have one symptom that directly relates to WPW. The reason doctors detected the WPW was because I complained of palpitations. 3-30 I had a physical/EKG and then surgery on 4-5. I can be honest and say I was very afraid/nervous. I was very thankful I had life insurance. After diagnosis and After the surgery my head would always feel foggy and I thought I was "losing it". Three days after the surgery, 4-9, I attempted to drive and had some sort of attack on the highway that brought me to the ER. Diagnosis, panic attack. The doctors credited the "foggy" to aniexty. 4-29 I asked my doctor a million questions and that seemed to put my mind at ease as I am no longer "foggy". I still get palpitations and it is so frustrating.

      I'm not sure if this information will help your case but I pray for your daughter please give an update if u can.

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