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Wrong diagnosis??

Posted , 9 users are following.

steve93849
steve93849

After being diagnosed with vestibular neuritis im starting to doubt the diagnosis.

i was making steady progress but have taken a massive step back this week feeling dizzy as hell when im moving about im startin to feel im on the verge of another attack of BPPV or vertigo.

surely you cant go backwards with this as i feel like ive gone back 3 months

considering having the epley performed again as i cant take much more of this hell, i still feel i have something different to what they said its just a gut feeling i have 

Anybody else made progress then gone backwards ?

 

0 likes, 43 replies

43 Replies

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  • cassie21714
    cassie21714 steve93849

    Posted

    Hi Steve93849 I too have had this issue and have just bounced back today to feeling better. When I was first diagnosed and started my VRT I felt great some days and off on other days and then for the last 3 weeks I have felt really bad, worse then ever and then today I woke up feeling great again. My dizzy specialist said to me that this kind of process is normal as its your body trying to compensate which means it is working. She told me I will feel great some days and other days will be bad and this will keep happening until one day I will feel 100 percent everyday.
    • steve93849
      steve93849 cassie21714

      Posted

      hi Cassie hope thats the same for me its funny i was due my 1st VRT session yesterday but had to cancel as i had a fueneral to attend too

      but you have given me hope at least!!

      Are VRT sessions helping you ?

    • cassie21714
      cassie21714 steve93849

      Posted

      My VRT has shown a lot of progress as well as feeling like it's not working but I will persist because it's on and off and my doctor has said this will happen and it's very common and that actually means I'm getting better so I just keep going and today I feel great again so hopefully it lasts for a while.
  • vanessa69
    vanessa69 steve93849

    Posted

    I have the dizziness for weeks now; they have done tests after finally put me on ativan. Been working but still dizzy! Try that and see what happens.im sick of being dizzy
  • cassie21714
    cassie21714 steve93849

    Posted

    If you are doing VRT keep at it and try not to take medication as it will slow down the compensation process. VRT sometimes doesn't work until after 3 months. It varies from people to people
    • vanessa69
      vanessa69 cassie21714

      Posted

      Thanks cassie; but wen I dont take the meds the dizziness is worse so your sayimg it will eventually go away! Stopped doing the exercise too.
    • cassie21714
      cassie21714 vanessa69

      Posted

      I was the same with medication, it would make me feel better but in the long run it won't help as the brain won't be able to compensate properly because medication is only a short term fix where as the VRT is a long term fix. VRT will make you terrible when you first start and actually makes the symptoms worse but once you get stuck into it more and more and you keep on it, it ends up getting better. Vestibular neuritis is actually an inflammation and damage to the vestibular nerve so it takes the exercises to compensate the brain and balance system where as the medication just helps the dizziness and doesn't fix the real problem on the inside.
    • steve93849
      steve93849 cassie21714

      Posted

      Not on no meds but drive for a living was off 4 months untill i went back aboout 2 months ago been ok to drive untill the last few days wherer  ive felt spaced out and light headed
    • cassie21714
      cassie21714 steve93849

      Posted

      I get the spaced out and get light headed too but that's just a part of the vestibular neuritis.
    • vanessa69
      vanessa69 cassie21714

      Posted

      So will this dizziness go away eventually or do I need to see an ent doctor.
    • vanessa69
      vanessa69 cassie21714

      Posted

      And I have done the exercises that they have but I stopped cause the room stopped spinning.just dizzy wen I walk or stand but not bad that's why I thought the meds were working
    • cassie21714
      cassie21714 vanessa69

      Posted

      You will need to see someone do get a proper diagnosis and then do some VRT rehabilitation they will give you specific exercises to get rid of the dizziness
    • cassie21714
      cassie21714 vanessa69

      Posted

      The exercises are the only things that help me but it may be different for other people
    • vanessa69
      vanessa69 cassie21714

      Posted

      Ok thanks alot but I till I go what's the best thing to do keep the dizziness down
    • christine42810
      christine42810 vanessa69

      Posted

      I was never given any medication because it stops the brain compensating. After 8 long months I am beginning to feel about 90% normal. I had times before where I was feeling better then a relapse for weeks at a time, but I just kept doing the VRT exercises and going to the gym and walking a lot, it all helps. Never thought I'd feel this close to normal again so here's fingers crossed.
    • vanessa69
      vanessa69 christine42810

      Posted

      Thanks christina; I do the exercises and I'm gonna start walking more to see if that helps.like I said the spinning is gone.the mornin time time and night time are the worst for me! I tried not taken meds couldn't handle it but I guess I should just feel it out so it can finally go away! Thanks again
    • christine42810
      christine42810 vanessa69

      Posted

      Hi Vanessa, when you walk make sure you don't look down, look straight ahead and fix on something tgen move your head side to side slowly, like you're window shoppin, or mor of a slow nod on each side. This helps the balance. Worst thing is to look down as this doesn't help the balance organs.

      Good luck. Christine

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