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Wrong Diagnosis numbness in both legs!

Posted , 8 users are following.

emma23176
emma23176

I was dx in 2014 with MS after optic neuritis and tingling in my right hand and arm so muddled by with lyrica and steroids etc then four months ago both my feet lost feeling like I'm walking on cotton wool it then progressed to both legs I understand this is not usual for MS (having identical symptoms on both sides of the body) anyone have any ideas? Without being too crass my feminine workings are also now losing feeling I am going back to neurologist but now am using crutches and seem to have a serious intolerance to hot water I am wondering if I've been diagnosed incorrectly?

0 likes, 40 replies

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  • emma23176
    emma23176

    Posted

    Hi everyone thank you all so much for taking the time to reply! I should have probably not posted "wrong diagnosis" as the title as I seem to have created issues! MS is very new to me and can be quite scary so I apologise profusely if I upset anyone that was not my intention at all - I don't know how to edit the post to change title but thank you all for your comments

    Emma

    • Treezie
      Treezie emma23176

      Posted

      I am sorry, too.  I have had difficulties with this forum, in the past.  I use another forum PLM, and have wrote in there since 2011 (I follow a lot of the other relapsing-remitting MS patients on that site).  I received my dx in Nov 1999, but believe MS started to show up back in 1989, the year I got married.  I was getting so many notices from patient on this website every day, but was planning on unsubscribing if the posts kept on being vague and wide-ranging symptoms and people wondering if it was something else.  I know people with MS can have other problems, but it was stressful reading since people with RRMS can also move to progressive kinds, too.  I did back in 2003. I now walk with a cane. And 5 years ago I started using a walker.
    • emma23176
      emma23176 Treezie

      Posted

      It's definitely frustrating especially when I posted a vague title!! I understand what your saying I've been diagnosed with so many different things before they settled on MS so I think I second guess it sometimes! I currently walk with crutches since this latest setback my brother has MS and he's really not had many issues at all so I think I based it on that too! I hope the walker helps because I find crutches quite difficult?

    • Treezie
      Treezie emma23176

      Posted

      No, actually I don't think I would like crutches.  They look they hurt you under the arms.  I am quite a heavy person, too. So, I definitely prefer the walker.  Anyway, thanks for replying.

    • snotty
      snotty emma23176

      Posted

      I have a walker and I love it because it has a seat on it so I can sit down when walking becomes to much. It also has a shopping cart under the seat so I don't have to try and carry my shopping as well.

  • janet98774
    janet98774 emma23176

    Posted

    i know about the feminal part i am so dry and sore lots of people suffer this the cream ive been given makes the nether regions hairy and that makes it all worse. hope you inprove soon  best wishes 
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