Xolair shots and Epi Pen
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For all of you taking xolair shots do you all have an epi pen.. I have heard some people say you have to have one if taking the shots.. Other people say they dont have one.. I am wondering what your thoughts are and what you were advised to do .. thank you
0 likes, 13 replies
michelle07282 jana94738
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betty83945 michelle07282
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I did allergy testing, took allergy shots for several years, did food diaries, could never find a rhyme or reason, I lived on benedryl, wore loose fitting clothing, as pressure or anything tight made condition worse. I also reacted to stress by horrible outbreaks of the huge, deep, edema type hives. This spring I began Xolair shots, and have not had a hive since, but I am experiencing what I believe to be side effects from the injections. Wondering if anyone else is experiencing any side effects from xolair ????
michelle07282 betty83945
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Meemaw29 betty83945
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Hi Betty - first off, I am happy that the Xolair is working for you. I feel very blessed because I took 6 months of injections and then chose to discontinue them due to the same side effects most other people have mentioned, Aching muscles, sore spots randomly over my body, (especially my elbows) pain on the bottoms of my feet making it difficult to walk, etc. I personally do believe that the auto immune condition compromised my immune system overall and I am left with arthritis. I am 62 years old, so at an age where arthritis is common BUT I did not have ANY symptoms until I began the Xolair injections. Good thing is that within 3 months of injections, I did not have any break outs. I do still occasionally get the red, swelling, itchy feeling like I am going to break out.....but randitine, antihistamines and Doxepin taken immediately have prevented any break outs. I am now 6 months without the injections and still doing fine. Like I said, there are residual affects, but I am dealing with those and as long as I don't develop full blow hives again, I intend to continue with my present plan of action. Everyone is different, but for me, the Xolair did work. Although I hate the residual aches and pains, I am dealing with it and it is much better to live with arthritis than debilitating hives! I'm gratefully better! And, I am steadily working at getting the 30 lbs of weight off that I gained while taking so many months of steroids!
jana94738 Meemaw29
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michelle07282 Meemaw29
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Wow it was amazing reading your side effects. Like I said before yes I’d o get aching muscles, but I have noticed one thing that has changed dramatically but I assumed maybe it was just something else that was wrong rather than it be a result from the injections. The bottom of my feet are so painful to walk on, especially in the morning but it last all day and every day. The other is how swollen and stiff my fingers get. Some days I cry because they hurt so much. I didn’t put the two together until now after reading about your feet. But again like you.... even though I’m 44 I would rather a life time of pain than them awful hives all over my body. I actually can honestly say I don’t think I could mentally cope with every part of my body covered in deep hives absolutely everywhere again. You get more support with having pain through arthritis than this illness. And the thought of being left again by doctors scares me.
rose00110 jana94738
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Rose
jana94738 rose00110
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rose00110 jana94738
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Meemaw29 jana94738
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Hi Jana; I do NOT carry an epi pen, never have. The FIRST time I received the injections, I had to wait 30 minutes to make sure that I didn't have any reaction. Now, I don't have to wait at all and I have never had an anaphylactic reaction.
jana94738 Meemaw29
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Meemaw29 jana94738
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lauren46001 jana94738
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