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yellow nail syndrome

Posted , 19 users are following.

101dalmation
101dalmation

I am 46 years of age, and for the past 2 years have been asking my doctors what was wrong with my nails (fingers and toes) but getting no answer, till finally i was refered to a dermatolagist at hospital, who diagnosed it as YELLOW NAIL SYNDROME which is a rare desease, and only 100 other cases have been known to have it. thats why ive called myself 101 dalmation as i may be the 101 patient lol. I was relieved in a way to find out what it was but curious as to why i have got it. but there is no answer to my question as no one knows of yet where it comes from. So i would like to share this with anyone who wishes to read about it, and ask any questions about it. I have taken photos of my nails for future ness if anyone requests to see them.

thank you for letting me express this out into the open.

101 dalmation

3 likes, 142 replies

142 Replies

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  • lois58127
    lois58127 101dalmation

    Posted

    hello, i only started the page yesterday and its called. yellow nail syndrome community. its a closed page so you have to join to see what is being talked about. i can add you if you ask to be a member. talk soon
    • lois58127
      lois58127

      Posted

      it must be night time where you all are, beautiful sunny day here, waiting for you all to request friends from the "yellow nail community" facebook page.  hope you can find the page.
    • 101dalmation
      101dalmation lois58127

      Posted

      i will look for your page on facebook and see if i can join it. but if its a closed page you will have to invite people into it. ill let you know if i find it...if not ill try and open one myself on there like i opened this one. wish me luck. lol.

      Debbie.

    • 101dalmation
      101dalmation

      Posted

      I have just created a page called "Yellow Nail Syndrome" type this on facebook and you should be able to find it. there is a picture of my foot with big toe nail missing. hope you can find it on there so we can private message each other as well if need be. good luck all i will still keep posting on here too and updating my condition.

      Debbie.

    • 101dalmation
      101dalmation lois58127

      Posted

      we need to add them too our fb friends list for them to find it. so if anyone wants to join ask them to add us first then thewy will find it as its set private.

       

  • omri05436
    omri05436 101dalmation

    Posted

    Hello , I'm 33 years old , I had YNS since I was 11 years old until was 20 year old.

    I had it over all my nails my hands and my feet.

    When I was 13 years old I started with cornic sinusitis , then I was diagnose YNS

    I had to do 2 surgerys in my sinus .

    It didn't halp my sinus problems .

    At my 26 . Is started to get nemonia and bronchitis as well. Now

    I'm felling very week for my age. Like I'm having a flu virus 24/7, and having this lungs and bronchi problems.

    My nails is looking good for the last 14 years.

    Now I'm getting antibayotic treat every month for acut sinusitis and/or bronchitis.

    In my last CT it show bronchictasis.

    Do you think I should take ani vitamins?

    Can it halp for my sinus and lungs problems?

    Really don't know what to do, Feeling like I'm not going to be 45 yeas old.

    Thank you all

    This is a great groop.

    Sorry that my English is not so good(:

    • lois58127
      lois58127 omri05436

      Posted

      hello Omri, I can understand your english no trouble.  I am in New Zealand and others on here are from England and Ireland. Apparantly YNS is very rare and there are supposed to be only approx 100 sufferers in the world. I have been cured since January and so i want to tell you there is hope. research everything as I did. get all your info and make your own decisions about how to do the best for you. That said i went to 3 doctors, An endocrine specialist, A skin specialist, A Naturopath and had also a hair sample taken which was sent to germany for analysis. I was told to take magnesium, vit D,C,E and Zinc,  I ate well with lots of vegetables and fruit.Along with this the change for me along with this was a change in my medication. I was taking Eltroxian and when i changed to levothyroxian I was cured. almost within a week the yellowness from my nails was gone. my cough gone and i was so happy. so i can only work it out that there is something in your environment that is affecting you so take a close look at everything. see if you can find something with ingredients that is in eltroxian if you are not taking it.. maybe that will be your cure All the best to you.  Lois
    • victoria53044
      victoria53044 lois58127

      Posted

      Hello All,

      Lois, that is great news you are doing so well! I have not tried either of those medications but those are thyroid medications correct? I just had a bunch of bloodwork done and my thyroid was normal..interesting that it helped your YNS! My nails are slowly improving and the only thing I have changed in my lifestyle is I am exercising a lot more. I think the cardio and increased perfusion had helped but I still have quite a bit of sinus congestion and my lungs don't seem to have improved much. Currently I am trying to persue testing for primary ciliary dyskinesia (PCD) which has similarities to YNS but it affects the functionality of your cilia. It also has a genetic component and you can get tested for this through a blood test, however, I am told the biopsy of your cilia is the gold standard for testing. Since I live in Canada, diagnostic tests for this are limited and I may have to go to the USA to get the proper tests done. Has anyone else been tested for PCD? Since I am still young and hope to have a family one day (I'm 28) PCD can affect fertility and also can be passed down genetically so I feel it's important to rule it out as a possibility if nothing else. Hope everyone else is doing well!

    • omri05436
      omri05436 lois58127

      Posted

      Hi Lois

      And thank you so match for this great replay.

      It really giving me hope and good information the I think can really halp!

      So I see that there is a endocrine conection which YNS . Something that I didn't check before.

      Did you had thyroid problem before ?

      Is it hipper or hippo ?

      Or autoimmune thyroid disease?

      Thyroiditis ?

      I'm doing every few month TSH hormone test but it looks ok.

      Thanks again

      Omri .

      By the way

      From Israel

    • lois58127
      lois58127 omri05436

      Posted

      hi there, i started with a high tsh blood test, 15 should be no higher than 4 so i was put on levothyroxian, dose was adjusted according to test results i became very healthy and life was fantastic, until the drug was changed and without my knowledge and then i started with yellow nail syndrome, i reacted to the ingredients of Eltroxian, so something in it set me off. I suffered over 3 years with YNS in pain and while i did i tried all types of natural supplements. As soon as my medication was changed it was a miracle for me. more or less instant recovery.. all the best. i hope you can find what it is that your immune system is reacting to. good luck
    • lois58127
      lois58127 omri05436

      Posted

      hi there, i started with a high tsh blood test, 15 should be no higher than 4 so i was put on levothyroxian, dose was adjusted according to test results i became very healthy and life was fantastic, until the drug was changed and without my knowledge and then i started with yellow nail syndrome, i reacted to the ingredients of Eltroxian, so something in it set me off. I suffered over 3 years with YNS in pain and while i did i tried all types of natural supplements. As soon as my medication was changed it was a miracle for me. more or less instant recovery.. all the best. i hope you can find what it is that your immune system is reacting to. good luck
    • lois58127
      lois58127 omri05436

      Posted

      hi there, i started with a high tsh blood test, 15 should be no higher than 4 so i was put on levothyroxian, hypo thyroid, the dose was adjusted according to test results i became very healthy and life was fantastic, until the drug was changed and without my knowledge and then i started with yellow nail syndrome, i reacted to the ingredients of Eltroxian, so something in it set me off. I suffered over 3 years with YNS in pain and while i did i tried all types of natural supplements. As soon as my medication was changed it was a miracle for me. more or less instant recovery.. all the best. I am still taking thyroid medication but i am using a differant brand. i hope you can find what it is that your immune system is reacting to. good luck
    • lois58127
      lois58127 omri05436

      Posted

      hi there, i started with a high tsh blood test, 15 should be no higher than 4 so i was put on levothyroxian, hypo thyroid, the dose was adjusted according to test results i became very healthy and life was fantastic, until the drug was changed and without my knowledge and then i started with yellow nail syndrome, i reacted to the ingredients of Eltroxian, so something in it set me off. I suffered over 3 years with YNS in pain and while i did i tried all types of natural supplements. As soon as my medication was changed it was a miracle for me. more or less instant recovery.. all the best. I am still taking thyroid medication but i am using a differant brand. i hope you can find what it is that your immune system is reacting to. good luck
    • omri05436
      omri05436 lois58127

      Posted

      Thank you Lois for the information.

      It's make me happy to know that you feel better, and give me hope (:

    • Suzyk
      Suzyk lois58127

      Posted

      I am so glad that you have had some positive results!   I have tried most everything . . and admit I am so weary of DRs and tests and no effective treatment.  I have gotten more info from all of you than from Doctors.  I admit that I am really tired of dealing with all of it.   The cough is what physically bothers me the most... it's been 30 months now since i have slept through the night.  I am exhausted!  truly exhausted - whihc makes me depressed and irritable.  my poor husband!    I'm just curious - this new drug - will you have to take it the rest of your life?have you continued to take all the vitamins?     I'm willing to try anything and my primary care dr is usually good about me trying.    

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