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Yes! Reached 7.5mg

Posted , 11 users are following.

Sheilamac_Fife
Sheilamac_Fife

Ha! I am so chuffed! I have reached 7.5 daily. That's 8 days running now... Thanks to you Eileen and your DSNS method. Fingers crossed it remains good. No pain just ridiculous tiredness and breathlessness. That I can cope with, annoying as it is.

I started on 15mg in July 2014 after nearly a year without a diagnosis, and am now thinking that it is possible that with this method of reduction I would have been able to come down more quickly, but who knows.... I started DSNS when I was having trouble getting down from 10mg in June. It's been straight forward ever since. Now, I know that it may well become more difficult from now on, but at least I have something to believe in. I am alone in this, apart from all you guys, because my GP isn't interested unless I reduce really quickly, so I don't see her. I arranged for blood tests now and again when I was planning a reduction or I had some pain but they've been normal since I started Prednisolone. She says, of course they are! The amount of steroids you are taking! Oh dear, I was doing my best to get them down.

Anyway, enough moaning about her! I'm doing ok thanks to your help and advice. And right now jubilant to have reached 7.5. Am going to stay on this dose for a couple of weeks more because I am going to Norway to visit my daughter and her very lively Viking boys on Thursday and I will need all the steroids I can get.... Hehe...

3 likes, 30 replies

30 Replies

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  • karen48559
    karen48559 Sheilamac_Fife

    Posted

    So pleased for you! News like this gives us all a lift and those of us on the journey real hope. Yes many of us have numpty doctors I'm sad to say. They are quick enough to put on us on pred, which is right given the diagnosis, but not as happy to do the right thing and wean us down very slowly. In 3 weeks I start the DSNS from 20mg. Cannot wait to start. Hope you have a swell time with your little Vikings. Take it easy though, you don't want a flare. x
  • pparker1213
    pparker1213 Sheilamac_Fife

    Posted

    Congrats. 7.5 seems to be a tough one for many. I think I have made 7.0 this time after 2 unsuccessful attempts. Just from my experience if you feel that pain coming back( and we all can identify that pain) as you start your next drop don't be afraid to go back and give it a couple more weeks before you try again.

    best of luck

  • Sheilamac_Fife
    Sheilamac_Fife

    Posted

    Thank you everybody. I thought I was never going to get here! Onwards and downwards.... I hope. For all of you too. Good Luck!x
  • Silver49
    Silver49 Sheilamac_Fife

    Posted

    That's great news. I am on 2nd week of 11mg though GP sheet said to go from 12.5 to 10. I decided not to risk it as I had a flare going from 15 to 12.5. It was too soon. So far, so good this time. I'm going to do 2 more weeks of 11 then go to 10. I started on 20 towards the end of May so keeping my fingers crossed. Have a lovely time in Norway. My grandchildren are coming to stay  next week. They'll be here for a week.😀😀
    • EileenH
      EileenH Silver49

      Posted

      Really - if you had a flare going from 15 to 12.5 what made them think 12.5 to 10 was a good idea? It's a bigger percentage!

      Though in my experience medics really aren't too good at arithmetic...

    • Silver49
      Silver49 EileenH

      Posted

      Yes, thank you, Eileen. You are correct. Thankfully, in some ways, they have now just left me to my own devices and  sign my repeat prescription on which I wrote what I needed and said it was to start reducing.😀😃
  • Mrs.Mac-Canada
    Mrs.Mac-Canada Sheilamac_Fife

    Posted

    Hi Shiela,

    Glad to hear of your successful reduction👍.  Reading your post started my day on a real positive note.

    I am going to begin my next decrease to 7 1/2 next week.   I have found that at this level it gets a little tricky so follow the good advice of our experts and listen to your body carefully.  

    Have a wonderful time with your grandkiddies💕.  I am envious...

    Hugs,

    Diana🌸

  • margaret22251
    margaret22251 Sheilamac_Fife

    Posted

    well done im struggling still 8.5 must be brave and try 8mg. 
    • Sheilamac_Fife
      Sheilamac_Fife margaret22251

      Posted

      Hello Margaret. Are they still questioning your diagnosis? 

      Do you still have pains on 8.5?

    • margaret22251
      margaret22251 Sheilamac_Fife

      Posted

      Hello Sheilamac, yes they are still questioning what i have, go back in Decenber.

      I have had really bad pains in my feet for 3 weeks, the worst being on holiday, but fingers crossed today i can feel a 25% improvement.

      The other thing i have noticed is, that i am having temple pain again, and not had this for about 7 weeks, also my shoulerds and neck are getting uncomfortable later on in the day, as before i was pain free.

      All i can do is see how things go, but if no better i will see my doctor, she is very good and understands.

      Thank you

    • Mrs.Mac-Canada
      Mrs.Mac-Canada margaret22251

      Posted

      Hi Mags,

      I've been away for a bit but last I read you were having more tests done because there was a question about the PMR. I'm so sorry to hear you're feeling poorly.  

      Didn't you say you had a Vit D deficiency? Is that OK now?  I know you like your Dr. now but hopefully she will send you to a specialist if she can't help you.  Here in BC, Canada, some doctors are afraid to send you to anyone because they get questioned by the medical plan. 

      Hope you're feeling better soon and they figure out what is causing your pain.

      Hugs,

      Diana🌸

  • suesing
    suesing Sheilamac_Fife

    Posted

    Well done Sheila. It's always positive when there is another reduction of Pred' and you are feeling pain free and stable.  The fatigue and breathlessness is as you say annoying, but hopefully this will improve soon.  Have a great time in Norway, pace yourself and don't rush down to 7mg too soon.
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