Yesterday my 5 year old son was diagnosed with Perthes'

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Yesterday, after an x-ray to examine the cause of my sons limp, I was told he has Perthes' disease. I had never heard of it before and it came as a big shock. I didn't think to ask how much damage had already been done to the hip. We will be given excersises next week by the physio and I have read about limiting the amount of jumping and running he does.

My son is small for his age and a bit on the skinny side, is this a factor of the disease or does it affect all builds? Should I try building him up a bit or will this make the wear on the hip joint worse? :?

Any advice would be appreciated, the affect of this on my normal, happy, mostly pain free little boy hasn't sunk in yet.

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  • Posted

    I too was diagnosed with perthes at the age of 5-6. I have lead a very active life up untill I was about 35 and it has not held me back. This week I am having a hip replacement as I am really beginning to suffer with it. Having said that I have had great care and have lead life to the full and they did predict a new hip at 40 and I am 44 now so don' t despair just make sure he gets the right treatment.
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  • Posted

    hi,my 5yr old son was diagnosed 3 months ago. My email address is **** if you would like to get in touch.

    x

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  • Posted

    I had perthes aged 5 and 6. I'm 16 now.

    I must stress you must really limit the pressure he puts on his hip to an absolute minimum. He's quite a bit older than I was, and he''l be used to going out to play so this will be hard for you trying to stop him as much as him. He'll want to run about and you really must stop him- you'll know the consequences. But I remember no pain at all.

    I wouldn't try building him up- I'm no expert, but I think it'll make it worse. Try asking a doctor.

    I know that it must have come as an enormous shock, but at least it'll will get better. Quite honestly, I can't remember which leg I had it in. It has never affected me since I got the all-clear. I'm so grateful to my mum for making me keep still- both my legs are same length (!) and I'm completely pain-free.

    It'll be hard, but do your best and it'll all be over soon.

    xx

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  • Posted

    i too was diagnoised with perthies at 5, yeah life has been a strugle and the diseas has stop me doing sport, but it hasnt affect me as a person, more than anything i think it is hardest on the parents as they dont fully understand the diease or cannot feel the pain there child is experiancing but more than anyfin if it wasnt for my mother being there for me and supporting me through th bad times i wouldnt be the person i am2day, hope this has helped,
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