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Yippeeee, Rheumo here I come!

Posted , 7 users are following.

chickabee
chickabee

Finally came to the end of 'try this, try that' for one year with various GPs, so am now awaiting a Rheumatology appt.  Ibuprofen seems to be less effective now, so am trying Ibuporfen & codeine...plus a natural fruit senna laxative to combat side effects.  Symptoms have been bad lately, so trying not to be depressed.  Activity usually cheers me up, but then suffer for it as I cannot pace myself.  Ho hum.  Tried the Epsom salt baths...this helps.

Hope you are all easing yourself through the days without too much discomfort.  Be blessed

Chickabee

1 like, 8 replies

8 Replies

  • SteV3
    SteV3 chickabee

    Posted

    Nice to here Chick!

    How come it has taken you so long to get an appointment with a Rheumatologist? You could ask your own GP to refer you to a Rheumatologist, or a Neurologist who would also refer you to a Rheumatologist. I don't understand some doctors and why they take so long to do referrals to consultants.

    Regards,

    Les.

    • diagnosisisalie
      diagnosisisalie SteV3

      Posted

      I can't answer for chickabee, but finding out that they think I have Fibro,was because of my hands hurting being sent to the Nuro. and he was the one who saw the blood work saying that I had arthritis ,so I went to him (the RA) as pain began to sink into my bones. To this day the pain that I hvae is in my bones, the doctor says different , but I know what I feel.
    • deb97936
      deb97936 diagnosisisalie

      Posted

      I is common for folk to feel the upsetting painful aching, throbbing in the bones...  I live with it everyday...   My spine and neck is bad, my hands bad, my ankles bad....

      The muscle groups rock hard, from head to toe, and internal pains and cramps are nasty.....  

      Terrible Hot and Cold body issues, can be so painful when in a flareup, otherwise it's just a daily battle of clothing changes, or remaining in a minimal cold state and puttling up with some pain.   

      My mobility is greatly affected now most days, but when body able I still have painful issues, I never get a reprieve longer than 1 day in 7 - 8 months..   

      My fatigue is huge....

      My friend was misdiagnosed and treated as Fibro, in reality she has Rhuemy and the worst kind ever!  Crippled and 6 months from a wheel chair.  Unable to wash, dress and do anything, and lost her job.  Thankfully moving to her mothers in a different State in the country mean she was then referred to the hospital there, where thankfully she was able to see a fantastic Specialist.  All her original bloods were showing Neg for any Arthritis and Rheumy...  Till he had her bloods done 'specific testing' and it showed exactly what he suspected 'Rheumy'   Sadly the worst invasive kind.  He saved her from a wheel chair with Disease modifying drugs etc... (and a form of Chemo table every week)...  She had a '%#*!' load of drugs and painkillers AND also Blood pressure tablets.   Her blood pressure was through the roof some days.   (Mine is to, hospital material but my doctor here is lazy)

      Some days my BP was even worse than hers..and hers was BAD..  Not just the SYS mmHg, but the Diastolic.... both through the roof.  

      I know when mine is bad or out of wak when I am internally really cold and nausious heading into or sometimes in a bad flareup...

      My friend was sadly a sufferer of both Rheumy and Fibro the Specialist said.  Poor woman, only young to.  She lived a very painful, depressed life.  She had the odd good days that she struggled to look well and to come across normal.  Makeup, Hair, clothes, perfume, music, FRIENDS, were her survival kit.  She used to love to bake or cook 'if and when she could struggle successfully with lifting, stirring stuff.  A friend sometimes would take things in and out of the oven for her.  Baking/cooking days were few and far between though.  She was a great networker and absolutely had the most 'Positive' attitude for other people... She LOVED people and family..  she thrived on pushing out the positives, yet sadly her own life was so so difficult and painful.  Till one day, the specialist put her on another trial drug.  She'd been on many, all with terrible, terrible side affects.  These drugs are injections.  The last Trial was 'amazing'.   She was bouncing to dam near running everywhere.  She was washing and cleaning, hanging out washing, cooking/baking.  Her hand were 'declawing' and unfolding and she could use her fingers like normal. Her legs, feet and ankles were freeing up, as I said she was bouncing, and running everywhere.  No more afternoons or full days in bed out to it asleep or struggling to sleep.  She was looking and coping with life in a near pain free state, except for the one pain in her back that ran around under her boob into her chest.  That had plagued her since I had known her.  It was getting worse.  Her BP was through the roof.  She'd ring the doc's as under instructions to do so and this went on for weeks.  She went up for her normal blood tests and discussed the pain 'again', but he said 'oh it's probably your gall bladder' and gave her another script.  He completely ignored her BP...   She died a few hours later.  One massive heart attact.   

      Where we live we are very limited with doctors... used to have 3 but now only 2 docs and a locum..  NO specialists..   So we are at their mercy.  To often folk are getting overlooked, ignored, fobbed off all because of either budget cuts or laziness on a doctors part.

      If a doctor cannot prove what your symptoms are, then they should be referring you on to someone who can.  ' They shouldn't be just guessing or throwing a dart at the board of symptoms' and leaving it at that.'  

      Angry you bet I am..... Don't let any doctor guess, ask for his actual/evidence, his proof to back up what he is claiming you suffer from...   

       

  • kaz_40
    kaz_40 chickabee

    Posted

    Hi chickabee Thats great news your going to finally going to see a rhemmy brill, now hopefully you will get some where. how ever hard it is we should try pace ourselves. as fibro has anasty way of paying us back. its finding what does work for us pain wise. I just use my hot bottles and wheat bags. all the best for when your appointment comes through hope you get a date soon. I didnt have to wait too long for my appointment take care gentle hugsmile
  • debbie_1966
    debbie_1966 chickabee

    Posted

    Glad u getting forward with ur diagnosis chickabee. I am th same cant pace myself either that why I am suffering today hope you are better soon x gentle hugs xx xx
  • diagnosisisalie
    diagnosisisalie chickabee

    Posted

    Hope it helps getting the appointment with the RA doctor. I can relate to the active lifestyle taking away the depression , but I sure pay for it.
  • lisa52101
    lisa52101 chickabee

    Posted

    Hi Chickabee,

    so glad that your finally getting somewhere. It took me two referrals to rheumatologist but from what I gather that's very unusual. The very best of luck. 

    Take care lisa

  • derek1979
    derek1979 chickabee

    Posted

    wish you all the best with the appointment good luck and hope you get the help and treatment you need
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