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Hi everyone! I just read so much of this forum and decided to share my relatively new and awful experience as I sit in my baking soda bath.
I'm 28 and aside from chicken pox, common colds, and a flu here or there I have only ever had one health problem. It's called tinea versicolor and its when you get white or pink spots on your skin (my back mostly) that spread like crazy and are hard to get rid of. Its basically a skin fungus and I have read of another person who has that and LS so it makes me wonder.. I am very thin and work out/ do zumba classes regularly, and I eat pretty well but splurge on weekends with pizza, bagels, chips, etc sometimes.
A few weeks ago I noticed some on & off crazy itching in the labia minora/ clitoris area. I googled and thought i had bacterial vaginosis or something but i knew i had no discharge so it seemed strange. Ive never had ANY issues down below. Finally it was really irritated from me fussing with it and I took a look in the mirror a few days ago.. White!!! I could immediately tell this wasn't just some rash and LS came up in searches. Sounds just like what I have and I think there is some fusing already, as well as bruising and tears in the skin.
Researching was scary.. learning about the cancer risk, not being able to have sex or live a normal life, having a disfigured vagina.. I'm getting married in a few months!! Then there's the health care aspect. I'm in the US and with my typical insurance plan that I pay for monthly, I first have to spend $5000 of my own money and after that half of my medical expenses are covered by insurance. (I hope you ladies in UK have it better) I can in no way afford to spend even the hundreds to get consultations with doctors. From my tinea versicolor I already know they don't help these incurable issues anyway. I am going to visit a Planned Parenthood clinic in 2 days, which is where I used to go for annual exams before I had insurance. I guarantee they will have never seen LS before anyway but I'll give them a chance. Also trying to look Into a local naturopath.
I have used coconut oil for 2 days with some relief from the irritation and just bought castor, baking soda, borax, and lavender. After sobbing last night I feel hopeful from reading this forum. I'm still worried about what the future holds for me but I think catching this within weeks of it developing will be in my favor.
I noticed in other forums castor oil is HUGE. Is there a reason no one here uses it?
Do you ladies think it is imperative that I get the prescription cream to manage this?
And this one sounds silly...... PLEASE don't tell me I have to give up my glasses of sauvingnon blanc (wine) on the weekends?
Thanks for reading and have a good evening.
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