Young and very sick from silent reflux

Posted , 8 users are following.

Hello I am a 20 year old girl use to be a sport student but had to quit due to really severe gerd. It came out of no where last July I was very healthy never drank alcohol or smoked was studying sport at college.

First I was coughing for 6 weeks non stop to the point of coughing up blood visited doctors 8 times didn't do anything for me as they said my lungs sounded fine. Then came the constant vomiting, I woke up one night covered in vomit and had no idea how it happened in my sleep. This went on for 2 more months I vomited all day every day even water made me, I would throw up in the streets on my way to the doctor it was humiliating.

Anyway fast forward to today my gerd has turned into silent reflux I am on one omeprazole once and day and ranitidine at night. But I have a huge problem with my throat it is constantly tight and spasming to the point I can't eat or drink anymore or exercise it has completely immobilised me I have constant nausea too.

Has anyone else had this and does anyone have any remedies? Would greatly appreciate it, gerd is ruining my life to the point where I don't want to live.. thank you

1 like, 21 replies

21 Replies

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  • Posted

    Have you had a endoscopy?
    • Posted

      No I have not, the doctor mentioned it once but never referred me. Have you had one? I'm a little scared of having one

  • Posted

    If this began with coughing....,I would get tested for tuberculosis. If not properly treated, tuberculosis can spread to the stomach. This is called Abdominal Tuberculosis. It is becoming much more common. Google it, and see if it matches your symptoms.
  • Posted

    I would do a ASAP endoscopy to see if anything is going on... If not then it's something else probably...

  • Posted

    Oh my darling my heart goes out to you. I agree with the other replies you must have an endoscopy to see what is going on. Go to your doc and demand one. Tell them you are feeling suicidial. I totally understand how gerd can make u feel like this. My gerd came out of the blue too. I'd never had reflux in my life however mine started when I was 41. I thought it may be hormonal, then I thought the chiropractor may have caused it from smaking me on the back so hard (top mid spine), then I wondered if Colonic irrigation had caused it??? But I think the main contributing factor was STRESS!! It coincided with me going back to work and my daughter becoming a very difficult teenager.

    Were you under a lot of stress when it started?

    You need to find a good gastro doc. You may need to see one that specialises in LPR as it's your throats that is suffering most. My gerd is under control now but I still have relapses. I don't take stomach meds cos they don't help me. In fact make it worse. Here's list of what helps me:

    Raising top of bed with 2 bricks

    Avoiding diet triggers (they can be different for everyone. I avoid caffeine, alcohol, chocolate, spicy, citrus and dairy. Sugar is bad too)

    Dgl licorice (brilliant)

    Slippery elm (sometimes helps)

    No eating after dinner (6.30pm)

    Exercise 2 hrs after food (walking, Pilates, yoga and cycling) be careful with stomach exercises. Might have to avoid all together.

    I had terrible nausea at the start but I never actually vomitted. I think stomach meds made nausea worse. Have u tried weak ginger tea. I say weak because if you have sensitive stomach like me ginger can make it worse.

    These are tests I've had done:

    3 endoscopies over 3 years.

    1 colonoscopy

    Barium swallow

    Ultra sound (stomach, gall bladder, and pancreas)

    Ph study and 24 hr monitoring ( tests LES muscle)

    Food intolerance test ( natropath)

    SIBO test

    Fructose and lactose intolerance test

    What country do u live in? If it's free for you I would try and get all the above tests done.

    I have inflammation in my eosphagus quite high up and I have a small hiatus hernia. Also get tested for Celia disease when you have endoscopy and H pylori.

    My blessings to you Hun. Hang in on there you will get better. For stress I'm on lexapro 10mg per day. This has helped a lot. Also I do yoga and deep breathing.

    Let us know how you get on. Don't be overwhelmed by the tests. One step at a time. Also there is nothing to fear all the tests are not painful. The 24hr monitor test is uncomfortable that's all. Positive thinking can get you a long way. Try not to focus on it. You will be able to exercise again I'm sure. btw I studied PE!

    Warm blessings

    Dominique

    • Posted

      Hi, thanks so much for the reply it was really comforting smile I live in London so I think most test are free but the doctors in my area are so awful they really don't care about patients especially ones with LPR, one doctor at my surgery didn't help a pregnant woman who was bleeding she ended up going to a&e and found out it was an ectopic pregnancy! I wasn't under stress when I first had gerd I was the happiest I had ever been this has completely ruined my life I am now unemployed and not in education because of it sad but thank you for advice I'll keep trying to push for test and hope you are feeling well xx

    • Posted

      Hi Domiique, I need your advice. My reflux came suddenly last year. I was 43. I felt bitter taste in my mouth. Went doc they told me gastric. I am a vegetarian. I have cut on coffeedaoru, chocolate, spicy, citrus food and soya products. I have been having like globus in my throat since I was kid, not sure it's silent reflux or tonsils. Of late I started feeling like a needle prickling in my tounge all the time and at time feel like lack of breath also feel like the right side under my breast feels warm. Is there any remedies that can heal this. I feel so lost and sad. This has caused anxiety too.

  • Posted

    Hi Shan

    I was also having severe Gerd with many severe symptoms, but for the last week I changed my diet completely and I take omeprazole 20mg once daily,

    I eat only meat cooked with only carrots and green peas No oil at all just add some water while cooking,

    and I eat very little pasta or rice because I am avoiding carbs as they hugely aggravate my Gerd, I also eat bananas. No bread at all because of the carbs, and I drink from 6 to 8 glasses of water as they wash out the toxics from the body.

    it's also important to avoid stress and anxiety, go out and hang out with friends or watch something you interesting, Make ur self busy to forget about the pain.

    That is my diet and lifestyle at the moment and I am feeling huge differences. Wanna continue this method for 3 months then when I feel symptoms free will reintroduce the other foods very slowly.

    Get well soon

    Mo

    • Posted

      Thank you smile I have been vegetarian for 9 years now my diet is very plain but at the moment I can't eat anything speaking to the doctor again on Tuesday hopefully will have some progress

    • Posted

      Hi smile I am trying manuka honey, probiotics and dgl liquorice to help me it seems to settle my stomach but the throat is still a huge problem. I visited doctor again and they just told me to take 6 PPI's a day! I couldn't believe it I'm not going to go back to them any time soon they have pretty much wiped their hands with me. I want to try and save money to see a private doctor but I'm lucky to have £10 left at the end of the week so have been so miserable this week it's been horrible sad thank you for checking on me I really appreciate it hope you are well

    • Posted

      Hello shan I'm glad you found some things to help with stomach. Mines is really sovere reflux I can't eat Wat I want and I'm fed up with this illnesses my gp don't care about me either they just keep giving more tablets. Hope you feel better soon keep in touch:-):-)

    • Posted

      Hello my how did you get on with my advice my account got suspension but hopefully I'm back

  • Posted

    Feeling very low today, it's my 21st birthday in a few days and I can't even celebrate, eat or drink what's the point of turning 21 I have the health of a 80 year old im back on the antibiotics again this week have been on them 4 times already this year

    • Posted

      Hello shan cheer up we all need each other on here .on your birthday go and have a spa sauna steam and drive and watch a film do everything else you enjoy. I feel the same I can't eat things i enjoy or drink or smoke my whole life has been turned around within a month I was gonna end myself yesterday but Dominique and few other people on my group talked me out of it .Because life's to short we can beat this together I promise I help u we all help you and each other and we can beat this we have to work with it not against (reflux) it .I'm here for you shan;-)

    • Posted

      Thank you, you can private message me anytime you need to I find it comforting to talk to and help anyone with this horrible illness so message me smile it my not seem serious to others who don't have this but it is life changing and it's so hard to keep faith when everyday is a painful uncomfortable battle. But I'm so thankful for all of you on here and hopefully we can get through with each others support

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