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My daughter has recently been diagnosed with GS. She is 14 and suffering from several of the symptoms described with GS. Feeling sick and extremely tired are her worst problems. Also she has headaches every day and often tummyaches as well. She has for a long time described that pushing ache under the ribs.
Some of these symptoms have been with her for many years without us knowing about GS, now they have a reason.
My daughter is struggeling to keep up with school, she is clever and doing well, but her having to stay at home often is not good.
Anybody out there with teenage GS, or parents?
I have read a lot of very good info on this site, and if only I was the patient and not my daughter...this would perhaps be easier for an adult to manage, it is a lot to keep track of for a young girl at 14.
How do you manage that?
Also, the headaches..I have read that paracetamol is a bad idea since the liver is already struggeling, what kind of painkillers are better?
By the way...
Someone asked about bili-babies...my daughter turned yellow 2 days old, but recovered without light. Don't know if this is of any interest to you now.
I hope you will excuse my spelling. We are danish, but there is almost no info about GS in Denmark. Doctors seem to think it is no big deal....wrong!
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