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Young RA people

Posted , 5 users are following.

hawaiichick808
hawaiichick808

Hello,

I was just curious if there are any young people with RA.

Did any just found out within a few months or recently? What are your symptoms so far and what kind of medicine are you on?

Im asking because I am Sulfasalazine and Prednisone now, and it doesn't seem to be helping too much. I still feel tired, my knuckles (especially my R side) is swollen and cramps up often. The ball of my feet aches as well, weather im standing or walking around.

With the Prednisone, my doctor said he didnt want me to take it too much. So I only take it when I cant bare the pain anymore.

0 likes, 9 replies

9 Replies

  • sarah84999
    sarah84999 hawaiichick808

    Posted

    Hiya,

    I am 28 and got diagnosed last October. Mine was found by accident really after going to the gp about my knee and the nurse randomly sent me for a rheumatoid blood test and escalated from there really.

    Fast forward almost a year and things are completely different! I am in so much pain, i'm beyond tired and just have no energy whatsoever.

    I have days where sometimes everything hurts and sometimes it is a specific joint that swells and is painful, ie my ankle.

    I am on methotrexate 15mg injection weekly and due to start hydroxychloroquine 200mg daily this week, as I saw my rheumatologist Fri and he said clearly the metho isn't working by itself.

    I'm not sure I can be of much help though as because i started the meds when i had minor sumptoms i am not sure now whether i would be feeling much worse without them a year later and its naturally progressing or if the meds make me feel equally crap!

    • hawaiichick808
      hawaiichick808 sarah84999

      Posted

      Hi,

      Thank you for replying back.

      For the methotrexate injection, do you do them yourself?

      I'm asking because my doctor said I could try injections (he didn't specify what medicine it is) but he did say I would inject it myself. So I quickly said no because I couldn't do them myself.

      I hope you are able to find the right medication you need soon.

      It helps knowing what others are going through. Because all the medicine that I'm taking so far doesn't seem to be taking away the pain or the swelling.

      Good luck and take care.

    • sarah84999
      sarah84999 hawaiichick808

      Posted

      Yes i do them myself, i am slowly getting used to it, has been about 9 weeks. There are tablets of methotrexate that you can take instead, i had to switch because my sickness was very bad, but you may be ok!

      Hope you find the answers!

  • martin_F
    martin_F hawaiichick808

    Posted

    With Sulfasalazine you should get regular blood tests, mine are every 3 months, you get or ask for a record book to record your results, the CRP and PV will tell you the inflammation levels, the first stands for C-reactive protein, the PV plasma viscosity, check info online about normal levels, I always think it's good to know what's going on.

    • hawaiichick808
      hawaiichick808 martin_F

      Posted

      Hi there,

      Oh yes I do go monthly to get my blood work done.

      I'll try ask my doctor when I go back to see the crp and pv.

      Thank you.

  • icab1995
    icab1995 hawaiichick808

    Posted

    Hello, I am 21 and I have rheumatoid arthritis.

    I am in a lot of pain and my hands and feet are already deformed ever since I was nine years old but the pain really began when I was 16 years old, I am not taking any medications yet because between my mom and I we have decided that we would rather try holistic healing before we dive into heavier medications with side effects, I am very scared of the side effects and I am very scared I will take this traditional medication and see no progress. It is getting a lot worse because three days ago my right wrist started hurting and basically it has stopped functioning because I do not have the same strength and it is ruining my ability to do basic tasks like texting, blowing my nose or combing my hair, or brushing my teeth . I am actually dictating this message right now because of how much my hands hurt and I am crying out of desperation right now, I don't know what to do and I don't know any young people that has had to go through this.

    But if you are young and you're also going through this, know that you're not alone! :,(

    • hawaiichick808
      hawaiichick808 icab1995

      Posted

      Hello,

      I am so sorry that you found out so young and about your hands. Did you, your mom, and your doctor talk about surgery for your hands? I dont know much about ra myself, becuase I found out recently. But I did do some research and read that some people (if your medical covers) get surgery on their hands and or feet because of the deformities.

      I am 26. I found out a few months ago but the symptoms started months before I actually went to the doctor to check.

      You are not alone yourself. My boyfriend had told me to try go onto a forum and talk to people who also has ra and see if they are able to answer questions he cant help me with. So far it has helped a lot. Maybe try to talk to some people on here. A lot of them has some good advices. I can't imagine what your going through but try and keep your head up high and dont give up.

      Good luck and take care (:

  • ebonyrose1996
    ebonyrose1996 hawaiichick808

    Posted

    Hi there, i was diagnoised with RA 3 months ago. I am 19 years old. I was taking methotrexate with folic acid but the medication was affecting my liver and it was causing bad stomach reactions. It also wasnt helping with the ra and my rheumy wanted me to double my dose. Im thinking of going on sulfasalisine or on MTX injection seeing as it is supposed to be better for the stomach. All i know is the pain sucks and i cant do much of a day.

    You're not alone.

    Take care, god bless 😊😊

    • hawaiichick808
      hawaiichick808 ebonyrose1996

      Posted

      Hello,

      Thank you for replying back.

      I'm sorry to hear that you got diagnosed at such a you be age.

      How do you deal with the pain?

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