zinc oxide cream

Hello Micky. I use Paladin as do many many others. As far as I am concerned my sentiment is this. I have found something that takes away the daily misery of this complaint and keeps me sane. I could get cancer from it if I am unfortunate and it got out of hand ,so if I take a small risk that lanolin could give me a skin problem, then hey, i already have one and for twelve months now i have been calmed by a nappy rash cream. So Im sticking with it. I do hope you find some relief.JKx

Hi Jennie K - I am sorry if I have upset you but am only trying to help other women like us find something that works for them. I am not telling people to stop using the Paladin if it works for them. I am trying to research everything that can help LS and like you I may get cancer from the LS and this is why I am trying to find anything that can help ease the condtion.

I wll try the sudocream today on a small patch of the effective area and see what happens. I have only known for 2 weeks I have this condtion with nerve damage and at 29 years old did not think I would be dealing with something like this at my age. Only by research, taking advise from consultants/professors who specialise in this subject and trying new things can we go forward with this disease.

Hi, I have'nt had my confirmed diagnosis yet but just wanted to say I have used sudo for some time but find it only works for a very short time like 1hr or so and then need to get it off which then means I am washing area to much!!! I think I will order the palladin once biopsy has been done if confirmed as I think the problems that we suffer are nedding tratments that one way or the other are'nt that good for us but help relieve symptoms if only for a short time and I for one have hit rock bottom a few times so anything is worth a try. Not sure if i'm the only one but some days I just wish I could razor the skin off!!!!!! Not good really but mentally can't cope somedays.

I hope you find something that works for you X

Hi Micky 1.. Oh bless you - You have not upset me at all. The good thing about this site is that we hear every angle and every treatment that others have tried and searching for relief is our main priority as that is what affects our daily life.There are chemicals in everything and different people tolerate different products so it will always be trial and error. You would soon know if you had an adverse reaction to any product.You have to find your way in this horrible complaint, Mickey and know that we are all here to help.....The irritant in Lanolin is wool alcohol, presumably thats the reason it sticks when others fail! We can only say what is suiting us, after our search, you must do the same...You are still in pain and shock and scared to put anything else near you that might cause you more grief.I read about a woman on one of the message boards saying to her Doctor about lanolin. She had said to the doc' could I die of anything else before lanolin kills me'.Her doc said...absolutely! Everything we put in our bodies from tablets to creams, even anti aging stuff has chemicals that can react to us.This is the problem we are always faced with. I do hope you find something that suits you. JKx

Hi did you know that lanolin or one of its ingredients wool alcohol is found in many things including babys products If you search engine 'creams containing lanolin' you will learn loads .One famous product is E45,which is the recommended skin cream most widely used ! I am still using my Paladin after 6months, so I would not worry too much. Everyone could have an allergy to anything, its a lottery.poll

Hi Mickey1 and Emx and Poll. I actually run the **** site and as a fellow sufferer I just wanted to say that lots of everyones daily products have lanolin(wool alcohol) in them, from lipsticks and lip salves to hairspray to nappy creams through to even , as poll said, our very own widely used in the UK - E45. You would be amazed at the list. Skin allergies are very common and what ever we use on our bodies or in our bodies is done so with a risk of some chemical reaction if we are unlucky..We do need a barrier from wettness in our plight and the thickness of a greasier emollient or ointment seems to be better than a cream which slides off. So which ever you use Mickey, make sure its a stayer and an ointment.None of them are a treatment, as steroids are the only way to keep this condition at bay from under the epadermis. I know that there are women out there who will try absolutely anything to take away the soreness and itching and it would make your eyes water to hear some poor womens frustrations and remedies!. cooking oil spings to mind! Do take care all and I hope you find the relief you all so deserve and need...Mal x

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Thanks Mal, I am having biopsy 25th March and as soon as I have results and start treatment I will be ordering the paladin to give it a go.

I have taken a look at the message board on comfy skin and I will be joining you ladies if I get the diagnosis that we all think it is if thats okay.

Thanks again it helps to know your not alone X

Hello emx. Thank you for your comments...All the message boards give hope and comfort and you would be welcome on ours as well anytime...Everything we talk about on these sites gives us a little hope and understanding...Take care Malxx

Hi emx, my biopsy is on the 25th march too. Are you having yours done in clinic or in theatre? Hope yours go ok. Keep in touch.

gbs

The very best to both of you for the 25th.....I have just found the first sufferer in person near where I live thanks to a recommendation from my hosp doc!!!!!We are going to look into doing a support group for the Isle of Wight so if there are any ladies around there let me know on here, or on comfyskin. Take care Mal...

Hi gbs,

I m having done at a histeroscopy clinic!!! apparntley this will be best place for gynae consulatant to take biopsy he will have stirrups etc... all set up I think its a day surgery theatre within our gynae outpatients department.

I have now tried the sudocream for a few days and has helped a little but not much - will see what happend if I carry on using. I am going to e-mail my cousin in America to see if she has heard of Paladin cream and if she has can send some over to me.

I can not seem to get this under control and the steriod cream seems to help clear up the white patches but makes everything else worse and more red raw and sore. I am also on a drug which is suppose to help nerve pain and does help me sleep throughput the night but makes me feel a bit sleepy during the day. Before I was taking the drug I was not getting hardly any sleep. I have been in a really bad way since the end of October and am starting to worry it might be something more serious. The only time it seems to calm down a bit is just after my period, for about a week.

Sorry for leaving my post half done got a visitor!!!

As I was saying I will be having it done but dont know for definate if it a theatre?

Mikey1 I too have the week straight after my period as my only respite........ am totally fed up of it all at the moment as I suppose we all are.

Also thanks for the replies etc.. as I said before it's nice to know Im not alone XXX

Hi Mickey 1 ..I think you need to be a little bit more patient and wait and let the LS settle a bit before you keep changing medication. it takes at least three months before the steroid does its job and you settle to just needing ot a couple of times a week or when you flare, plus a good barrier as we have said. ...Its so hard to not stress and worry but take each day as it comes and you will see your self settle into a routine. May I ask why you are going to ask if they have Paladin Ointment in the States. That is where we all heard about it from the american message boards.Someone tried her daughters nappy cream (paladin) and was in so much trouble with flareups that she would try anything so she tried it and never looked back! It is in all drugstores and walmart etc., over there, its just flippin expensive to ship all the time. We have got it over here now and you can get it on ****. (same people) the lady suffers with LS and now gets it shipped over here for herself and us.

I am sorry I cant be more helpful for you but you will get there.JKxx

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Hello Mickey, I wondered whether epaderm emollient would help you as you say you are red raw. I dont know what you use to wash with but anything with soap or detergent near your area will not help you. Epaderm is thick and greasy but you wash with it and it does not come off as quickly as cream. Its more like a vaseline substance but absolutely comfy to use and cleanses you really well. Constant wetness used to make me more sore and its impossible to keep wetness away from that site. It might be worth a try. my routine is wash with emollient then steroid on( a tiny tiny amount each morning) then barrier cream on and repeat at night without the steroid. If the soreness starts comes I repeat steroid at night.When easier I use steroid two or three times a week. I am in a routine for a few days .Now, after 12 months i have had one bad flare only and no itch . Obviousley my bits are disappearing but thats par for the course im afraid..Before this routine LS drove me mad all the time.hope this helps SG,