- recruiting
Medium to Long Term Outcomes of Selective Dorsal Rhizotomy
This study looks at how children and young people with cerebral palsy are doing several years after having Selective Dorsal Rhizotomy (SDR) surgery. We want to understand the long-term effects of the surgery on their daily lives and their families. Participants will complete surveys and have some hospital tests.
United Kingdom - not yet recruitingNA
Nebulised Hypertonic Saline to Decrease Respiratory Exacerbations in Neuromuscular Disease or Neurodisability
This study looks at whether breathing in salty water (hypertonic saline) can help people with certain muscle or brain conditions avoid frequent chest infections. Participants will use a nebuliser twice a day for a year to see if this treatment reduces the need for antibiotics.
United Kingdom - authorisedTherapeutic use (Phase IV)
Intrathecal baclofen pump versus selective dorsal rhizotomy for non-ambulatory children with cerebral palsy
This study compares two treatments, an a baclofen pump and a special surgery, for stiffness in children with cerebral palsy who can't walk. It looks at how care for the child changes over the first year.
Netherlands · Belgium - not yet recruitingNA
Best Practices Fo Early Diagnosis of Cerebral Palsy
This study aims to improve how doctors diagnose cerebral palsy earlier in premature babies. We want to make sure all clinics follow the best guidelines to help these babies get the right care sooner, which could improve their development.
Canada - not yet recruitingNA
Evaluation of the NEUROSWING Orthosis on Walking Speed in a Population With Dorsal and/or Plantar Flexor Deficits, With a View to a Reimbursement Application
This study looks at a new ankle support, the NEUROSWING orthosis, to see if it helps people with walking difficulties caused by conditions like stroke or MS. Researchers will compare it to a standard carbon ankle support to see if it improves walking speed.
France - recruiting
European Newborn Study: Early Markers for a Better LifE
This study aims to predict problems in babies with brain injuries, especially those at risk of cerebral palsy, by creating a computer model. It also explores parents' experiences to offer better support. The goal is to improve care for future babies and their families.
France · Germany · Italy - active not recruiting
NeuralNET Cerebral Palsy Pilot Study
This study aims to see if genetic testing (whole-genome sequencing) can help children with cerebral palsy (CP) in the NHS. It's looking for gene changes that cause CP, hoping to find better care options and improve understanding of the condition.
United Kingdom - recruitingNA
Metrological Properties of a Digital Motion Analysis Research Application for Assessing the Motor Abilities and Performance of Children With Cerebral Palsy
This study is looking at a new smartphone or tablet app to better understand how children with cerebral palsy move. It aims to make it easier and more accurate to check their physical abilities, helping doctors make better decisions about their care.
France - recruitingNA
Comparing Digitally and Traditionally Made Ankle Foot Orthoses
This study compares how two types of ankle-foot supports (AFOs) are made: the traditional plaster cast method and a new digital 3D printing method. We want to see if the digital AFOs work just as well for people with leg weakness, potentially making them faster and cheaper to produce.
Canada - not yet recruitingNA
Downstream Effects of Personalized 'Top-down' Participation-based Interventions Among Youth With Physical Disabilities
This study looks at how young people with physical disabilities in Quebec and Ontario benefit from taking part in activities they choose themselves. It aims to see if doing things like sledge hockey or drawing for 8 weeks can improve their movement, behaviour, and emotions.
Canada - recruitingNA
BCI@Home: Brain Computer Interface Solutions to Enable Youth Living With Severe Disabilities
This study looks at using special computer technology at home for children aged 5-18 who have severe disabilities like cerebral palsy or a brain injury. It explores if this 'brain computer interface' (BCI) can help them achieve personal life goals and become more widely available.
Canada - recruitingNA
Genetic Predisposition in Cerebral Palsy
This study looks into whether genetic factors might play a role in some cases of cerebral palsy (CP). Researchers will use genetic tests to examine the DNA of children with CP to see if certain genetic changes are present. The aim is to better understand the causes of CP.
France - recruitingNA
Pediatric Outcomes and Recovery With Peri-Operative Iron Supplement Evaluation
This study looks at how a special nutrition plan, including iron, before hip surgery for children might improve their recovery and reduce the need for blood transfusions. It's for children aged 0-18 having specific hip operations.
Canada