Fabry Disease, Cardiac Variant research hub
3 indexed studies · 3 currently recruiting
- recruiting
Molecular Imaging in Fabry Disease of the Heart
This study looks for better ways to find heart problems early in people with Fabry disease. Researchers are using a special scan called PET/MRI to see if it can spot inflammation in the heart, which could help doctors manage the condition better and slow its progress.
United Kingdom - enrolling by invitation
Long-Term Follow-up of Subjects Who Were Treated With ST-920
This study is checking on the long-term effects of an investigational medicine called ST-920, used for Fabry disease. It follows people who received ST-920 in an earlier trial, monitoring their health for up to five years after treatment.
United States · Australia · Canada - recruiting
Evaluation of HEArt invoLvement in Patients With FABRY Disease
This study looks at people with Fabry disease to understand how their hearts are affected. Researchers want to find out what causes heart rhythm problems, sudden heart failure, and early death, to help improve care for these patients.
Germany