Hereditary Hemorrhagic Telangiectasia research hub
3 indexed studies · 2 currently recruiting
- recruitingPHASE1, PHASE2
A Study to Evaluate ALN-6400 in Healthy Volunteers and Patients With Hereditary Hemorrhagic Telangiectasia (HHT)
This study is looking into a new treatment called ALN-6400 for a genetic condition called Hereditary Hemorrhagic Telangiectasia (HHT). It's testing the treatment's safety and how well it works in both healthy volunteers and people living with HHT.
United States · Australia · Canada - active not recruiting
CHORUS - Comprehensive HHT Outcomes Registry of the United States (Formerly OUR HHT Registry)
This study, called CHORUS, aims to understand Hereditary Hemorrhagic Telangiectasia (HHT) better. Researchers are collecting information from 1,000 HHT patients in North America. The goal is to improve treatments by learning how the condition changes over time and how it affects people's daily lives.
Canada - enrolling by invitation
Quality of Life in Patients With Hemorrhagic Telangiectasia
This study looks at how Hereditary Hemorrhagic Telangiectasia (HHT) affects patients' quality of life, especially their feelings about their appearance. It uses questionnaires to understand the daily impact of this blood vessel condition.
Germany