Hereditary Hemorrhagic Telangiectasia research hub

CHORUS - Comprehensive HHT Outcomes Registry of the United States (Formerly OUR HHT Registry)

This study, called CHORUS, aims to understand Hereditary Hemorrhagic Telangiectasia (HHT) better. Researchers are collecting information from 1,000 HHT patients in North America. The goal is to improve treatments by learning how the condition changes over time and how it affects people's daily lives.