Merosin Deficient Congenital Muscular Dystrophy research hub

Natural History Study of Children With LAMA2-related Dystrophies

This study looks at how a rare muscle condition called LAMA2-related dystrophy affects children in France. Researchers will follow children aged 2-15 for two years, checking their muscle strength, breathing, thinking skills, and overall well-being. The goal is to better understand the condition and prepare for future treatments.