Research.Patient.info
Pheochromocytoma and Paraganglioma (PPGL) research hub
2 indexed studies · 2 currently recruiting
- enrolling by invitation
National Study of Adrenal Tumours
This study looks at rare adrenal gland growths, including pheochromocytoma, paraganglioma, and adrenocortical cancer. We’re gathering information from patients across the UK and Ireland to better understand these conditions and improve care. Your data will be kept private.
United Kingdom - recruitingPHASE2
An Experimental Study of Belzutifan Impact on Catecholamine Metabolism
This study looks at how a drug called Belzutifan affects chemicals (adrenaline and noradrenaline) in people with a rare growth condition called pheochromocytoma or paraganglioma. We want to see if the drug changes how these chemicals are made and processed in the body over five days.
United Kingdom