Testing a digital, comprehensive, standardised assessment approach to improve the management of people with cancer
This study, called MyPath, is about making cancer care better by using a new digital tool. Patients with cancer will use this app on their phone or tablet to record how they are feeling, including any symptoms or concerns, before their hospital visits. This information helps their healthcare team understand their needs better and provide care that is more tailored to them. We want to see how well MyPath works in hospitals and if it helps improve how symptoms are tracked and managed. The goal is for MyPath to become a regular part of cancer treatment in hospitals. We will also ask caregivers, healthcare staff, and IT teams for their thoughts on using MyPath.
At a glance
What is this study about?
This study is looking at a new digital system called MyPath, designed to improve care for people with cancer. When someone has cancer, managing their symptoms and making sure they get the right support is really important. MyPath aims to make this process easier and more personal.
Patients will use a digital device like a mobile phone, tablet, or computer to record their symptoms and how they are feeling before their hospital appointments. This could include things like pain, how tired they are, or any worries they might have. This information goes directly to their healthcare team, giving them a much clearer picture of the patient's well-being. The main idea is that by giving patients a direct way to share their experiences, their care can be better suited to their exact needs.
Researchers want to see how well MyPath is put into practice in different hospitals and if it genuinely helps improve symptom tracking and individual care plans. They will collect information on how patients use the system and also speak with other people involved in care, such as family members, nurses, and doctors. The hope is that MyPath could become a standard part of cancer care, leading to more responsive and patient-centred treatment for everyone.
Key takeaways
- New digital tool (MyPath) to help manage cancer symptoms.
- Record symptoms on your phone, tablet, or PC.
- Aims to improve personalised care for cancer patients.
- Open to patients, caregivers, and healthcare staff.
- Your usual cancer treatment will not change.
- Information helps develop better care for the future.
Who may be eligible?
To join this study, you need to be at least 18 years old and have a cancer diagnosis. You should also be able to understand and speak the local language where the study is taking place.
It's important that you are able to give your clear agreement to take part after understanding what the study involves. If you have difficulties with thinking, understanding, or communicating that would make having a conversation or interview very difficult, then this study might not be suitable for you.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Are you 18 years old or older?
- Do you have a diagnosis of cancer?
- Can you understand and speak English (or your local language)?
- Are you able to give your informed consent to participate?
- Do you feel comfortable communicating about your health?
- Are you able to use a phone, tablet, or computer?
What does participation involve?
If you decide to take part in this study, you will use the MyPath digital tool as part of your usual cancer care. This means you would record your symptoms and how you are feeling on your mobile phone, tablet, or computer before your hospital visits.
The researchers will collect data from the MyPath system about your symptoms and how you use the app (for example, how long you spend on it or what features you click). You will also be asked to complete some extra forms from time to time, for example monthly. These forms will ask about your quality of life and any healthcare services you use. The study team may also look at some information from your medical records to see how MyPath is being used in your care. If you are a caregiver, healthcare professional, or other staff member, you might be invited to an interview about your experiences with MyPath, which would last about one to one and a half hours and be audio-recorded.
Potential risks and benefits
Locations (9)
- University of EdinburghApproximateEdinburgh, Scotland
- University of LeedsApproximateLeeds, England
- Oslo University HospitalCity onlyOslo, Norway
- Region HovedstadenApproximateCopenhagen, Denmark
- Vrije Universiteit BrusselUnverifiedBelgium
- Universiteit MaastrichtApproximateMaastricht, Netherlands
- Fondazione IRCCS Istituto Nazionale Dei TumoriCity onlyMilan, Italy
- La Fundación para la Investigación del Hospital Clínico de la Comunidad Valenciana (INCLIVA)City onlyValencia, Spain
- Hospice Casa SperanţeiCity onlyBrasov, Romania
Common questions
What is MyPath?
MyPath is a new digital tool (like an app) that helps people with cancer record their symptoms and concerns on a phone or tablet, so their healthcare team can provide better, more personal care.
Will my treatment change if I join this study?
No, your cancer treatment and follow-up care will remain exactly the same as they would be if you weren't in the study.
Who can take part in this study?
Adults aged 18 or over who have been diagnosed with cancer and can speak the local language can participate. Caregivers and healthcare staff involved with MyPath might also be asked to take part.
What happens with the information I provide?
The information you provide through MyPath and questionnaires will help researchers understand how well the system works and how to make it even better for future patients. All data is handled confidentially.
How long will the study last?
This particular part of the study is expected to run from December 2025 to August 2027.
How to find out more
Lisa Heide Koteng
Always speak to your GP or specialist before deciding to take part in a study.
Discussion
Community discussion
Powered by our forum at community.patient.info. Please be respectful — this is not medical advice.