Interdisciplinary + Intersectoral Telemedicine Evaluation, Coordination + Treatment in RhineMain+ Parkinson's Network
This study, called 'Telemedicine Evaluation, Coordination and Treatment in Parkinson's Network', explores a new approach to care for people with Parkinson's disease in the RhineMain+ region. It wants to see if using a special nurse, called an 'Advanced Practice Nurse' (APN), along with online communication tools, can improve how care is organised and help people feel better. The APN will work within an existing network of doctors and other health professionals, offering personalised plans and making sure people get the right care. The main goal is to improve long-term health by making sure treatment is tailored to each person's needs and symptoms.
At a glance
What is this study about?
This study is looking into a new way to provide support for people living with Parkinson's disease, specifically in the RhineMain+ area of Germany. The main idea is to make care more organised and personal for each patient. They are trying out a system where a specially trained nurse, known as an 'Advanced Practice Nurse' (APN), works with an existing network of doctors and other healthcare professionals.
This APN will act as a central point, using online tools to help manage your care. They will assess your individual symptoms and needs, and then create a tailored plan for your treatment and support. They'll also keep an eye on how well your plan is working, making sure you get the best possible care from all the different people involved in your treatment.
The study hopes that by improving how different healthcare providers work together and by giving patients more personal attention, people with Parkinson's will have better long-term health and a better quality of life. It’s all about making sure your care is well-coordinated and meets your specific needs.
Key takeaways
- Exploring new ways to manage Parkinson's care in the RhineMain+ area.
- Uses a special nurse and online tools for better care coordination.
- Aims for personalised treatment plans for each patient.
- Focuses on improving long-term health and wellbeing.
- Involves ongoing support and monitoring through a dedicated nurse.
Who may be eligible?
To join this study, you would need to have been diagnosed with Parkinson's disease or a similar condition, and live in parts of Hesse and Rhineland-Palatinate in Germany. You also need to be able to understand the study and agree to take part.
There are some reasons why you wouldn't be able to join. For example, if you have severe memory problems (dementia), severe depression, or other serious mental health conditions. Also, if you have other serious health problems that might make taking part difficult, or if you are pregnant or breastfeeding, you wouldn't be able to join.
People with drug or alcohol addiction, or those already taking part in another similar treatment study, cannot join. Finally, you would need to be able to read and understand the local language to participate.
Could this study suit you?
Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.
- Do I have a confirmed diagnosis of Parkinson's disease?
- Do I live in the Hesse or Rhineland-Palatinate regions?
- Am I able to understand the study and agree to take part?
- Do I have severe memory problems or severe depression?
- Am I currently pregnant or breastfeeding?
- Am I taking part in another treatment study right now?
What does participation involve?
The study involves a new way of organising your Parkinson's care. You'll be connected within the Parkinson's Network RheinMain+ and work with a specially trained nurse (APN). This nurse will assess your specific situation and create a personalised treatment and care plan. They will regularly check in with you using online or video calls to see how you're doing and make sure your plan is on track. The APN can also help arrange specific treatments or interventions if needed. The exact number of visits or calls isn't specified, but it focuses on ongoing coordination and monitoring of your care. The total duration of participation is not stated but implies long-term support.
Potential risks and benefits
Locations (2)
- Universtity of Saarland, Campus Homburg, Dept. of NeurologyVerified postcodeHomburg, Germany· Recruiting
- INSPIRE-PNRM+ Neuroimaging Center (NIC) University Medical Center of the Johannes Gutenberg University MainzVerified postcodeMainz, Germany· Recruiting
Common questions
What is an 'Advanced Practice Nurse' (APN)?
An APN is a highly trained nurse who specialises in diseases like Parkinson's. They help manage your care plan and work closely with your doctors and other healthcare professionals.
What does 'telemedical network' mean?
It means using online tools and video calls to communicate with your healthcare team, helping to coordinate your care from a distance.
Will this study change my current Parkinson's treatment?
The study aims to improve how your treatment is coordinated and tailored. It works alongside your current doctors and treatments, not replacing them, but making sure they work together better.
Who is funding this study?
The study is called 'Interdisciplinary + Intersectoral Telemedicine Evaluation, Coordination + Treatment in RhineMain+ Parkinson's Network', and seems to be a local initiative within that region.
Can my family be involved?
Yes, the study description mentions that the APNs include relatives and your supporting team in their approach, recognising their important role in your care.
How to find out more
Sergiu Groppa, Prof.
Always speak to your GP or specialist before deciding to take part in a study.
Interested in taking part?
Discussion
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