RecruitingNAINTERVENTIONAL

Evaluating the Use of Educational Videos in Newly Diagnosed Patients in a Medical Oncology Sarcoma Clinic

This study aims to make sure people newly diagnosed with sarcoma feel well-informed and prepared for their first appointment with a cancer doctor (medical oncologist). We are testing if watching a series of short educational videos about sarcoma and its treatments can help patients understand their condition better. People who join the study will watch four videos before their appointment. They will then answer some simple questions before and after this first appointment to see how much they've learned and how useful the videos were. The goal is to find better ways to support patients right from the start of their journey, ensuring they have a good grasp of important information about their health.

At a glance

Status

Recruiting

Phase

Sponsor

Mount Sinai Hospital, Canada

Enrolment target

100

Start

05 May 2025

Estimated completion

01 Apr 2026

Sarcoma

What is this study about?

When you're first diagnosed with something serious like sarcoma, it can be a lot to take in. There's often a lot of new information about the disease itself and the different ways it can be treated. This can feel overwhelming, especially before your very first meeting with a specialist doctor.

This study is looking for a new and helpful way to make sure people with a new sarcoma diagnosis feel more prepared and informed. We want to see if providing short educational videos can improve how much patients understand about their sarcoma and their treatment options before they even have their first appointment with a cancer doctor, known as a medical oncologist.

The idea is that if you have a better understanding from the start, you might feel more confident and able to ask questions during your appointment. This study could help us learn new ways to support patients at the very beginning of their treatment journey.

Key takeaways

Study for newly diagnosed sarcoma patients or their caregivers.
Aims to improve understanding of sarcoma and treatment through videos.
Involves watching videos before a first medical oncology appointment.
Participants complete short surveys before and after their first appointment.
No changes to your medical treatment or extra hospital visits.

Who may be eligible?

This study is looking for adults aged 18 or over who have recently been diagnosed with a type of cancer called advanced sarcoma that has spread (metastatic). You can take part if you've never had any special medicine treatment for your sarcoma before. We also welcome family members or carers of such patients to join the study.

To be included, you need to be able to give your clear permission to take part, be able to fill out questionnaires, and be able to read and write in English. If you've already seen a cancer doctor (medical oncologist) about your sarcoma, or if you can't give your informed consent, then unfortunately you won't be able to join this particular study.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

Are you 18 years old or older?
Have you been recently diagnosed with advanced sarcoma that has spread (metastatic)?
Have you never received any specific medicine treatment for your sarcoma before?
Are you able to read and write in English?
Are you able to fill out questionnaires?

Answer every question to see your result.

What does participation involve?

If you decide to take part, you will be asked to watch four special educational videos before your first appointment with the cancer doctor. These videos will cover information about sarcoma and its treatment. You will also be asked to complete a few questionnaires. You'll fill out one questionnaire before your medical appointment and another one after your appointment. These surveys are designed to help us understand how much you've learned and how useful you found the videos. There are no additional hospital visits needed specifically for the study, and no new medications are being tested. Your involvement will mainly be focused around your initial clinic visit, and the total duration of your active participation will be relatively short, around the time of that first appointment.

Potential risks and benefits

A potential benefit of joining this study is that you might gain a better understanding of your sarcoma and its treatment options even before your first appointment, which could help you feel more prepared and confident. There are very few risks associated with this study, as it only involves watching videos and completing questionnaires. You will not receive any new or experimental treatments. You are free to withdraw from the study at any time without giving a reason, and this will not affect your medical care.

Locations (1)

Mount Sinai Hospital
Verified postcode
Toronto, Canada· Recruiting

Common questions

What is sarcoma?

Sarcoma is a type of cancer that can grow in various parts of the body, including bone, muscle, fat, blood vessels, or other connective tissues.

What does 'medical oncologist' mean?

A medical oncologist is a doctor who specialises in treating cancer with medicines, such as chemotherapy, targeted therapies, or immunotherapy.

Do I have to watch the videos at the hospital?

No, you can watch the videos in a place and at a time that is convenient for you before your first appointment. You won't need to come to the hospital just for the videos.

Will my treatment change if I join this study?

No, joining this study will not change the medical treatment you receive for your sarcoma. The study is about providing information, not about altering your treatment plan.

How long will the questionnaires take to complete?

The questionnaires are designed to be short and easy to understand, and should only take a small amount of your time to complete.

How to find out more

Clinical Trials Manager

oncology.research@sinaihealth.ca 416-586-8440 Official trial record

Always speak to your GP or specialist before deciding to take part in a study.