RecruitingNot SpecifiedInterventional

Patient portal for stroke survivors

This study explores a new online tool, called a patient portal, designed for people who have experienced a stroke. Its main goal is to see if stroke survivors can easily use this website to look at their personal health details collected during previous research. The study also wants to find out if this portal can be used to gather more health information from patients and even help them manage their own blood pressure. Researchers hope this tool could help people understand their recovery better, feel more in control, and improve their health habits. It's for people already part of the South London Stroke Register who can consent and speak English.

At a glance

Status

Recruiting

Phase

Not Specified

Enrolment target

100

Start

15 Oct 2025

Estimated completion

30 Jun 2026

Stroke

What is this study about?

This study is testing a new online tool, called a patient portal, for people in the South London Stroke Register (SLSR) who have had a stroke. Think of it like a secure personal website where you can see some of your own health information that you've previously shared with the SLSR study. The main idea is to see if this portal is easy for different stroke survivors to use and if it helps them understand their health journey better.

Researchers also want to learn if this portal could be a good way to collect new health information for future studies. As part of this, a small group of participants will be given blood pressure monitors and asked to record their readings on the portal. This part of the study aims to see if using the portal can encourage people to check their blood pressure more often and help them manage it better.

Ultimately, this study wants to find out if a patient portal can empower stroke survivors by giving them access to their own health data, help with managing conditions like high blood pressure, and make it easier to do future research that could improve care for everyone affected by stroke.

Key takeaways

New online tool to access your stroke recovery data.
Potential to help manage your blood pressure.
6-month study for people already in the South London Stroke Register.
Aims to empower stroke survivors and improve research methods.
Very low risk; potential for better understanding of your health.

Who may be eligible?

To join this study, you need to be an adult who has already been part of the South London Stroke Register (SLSR) since 1995. You would have had a confirmed stroke and lived in a specific area of South London when it happened. The study is for people who are due for one of their regular follow-up appointments with the SLSR sometime in the next year.

You also need to be able to understand the study and agree to take part. Since the online portal is currently only in English, you need to be able to understand and use English well. This study is not for people currently living in a care home, to avoid adding extra tasks for their care staff.

Basically, if you’re an adult with a history of stroke, already in the South London Stroke Register, can give your own consent, and speak English, you might be able to take part.

Could this study suit you?

Answer these quick questions to see if you may be eligible. This is a guide only — the research team makes the final call.

Are you an adult who has had a stroke?
Are you already a participant in the South London Stroke Register (SLSR)?
Can you understand and speak English?
Are you able to agree to take part in a study?
Do you currently live independently and not in a social care setting?

Answer every question to see your result.

What does participation involve?

If you decide to join this study, you'll get access to a special online portal for six months. You'll be able to see some of the health information you've already shared with the South London Stroke Register. We'll encourage you to update a part of your health information (called EQ-5D-5L) on the portal whenever you like, but at least once when you start and again after six months.

Some people in the study will also receive a blood pressure monitor. If you're one of them, we'll ask you to check and record your blood pressure on the portal twice a day for the first week, and then as often as you wish throughout the study. You’ll also do this again for one week at the end of the six months. After six months, about 40 participants will have a chat with a researcher (called a semi-structured interview) to share their thoughts and feelings about using the portal.

Potential risks and benefits

Taking part in this study could offer several benefits. You'll gain a clearer understanding of your recovery journey after stroke by seeing your own health data. This might help you feel more in control, reduce worry, and encourage healthier habits. For those monitoring blood pressure, the portal could help you manage it better, potentially improving your overall health. You'll also be contributing to important research that could improve stroke care for others. The risks are very small. While looking at your past health information or answering questions about your recovery might briefly cause some worry, these are the same types of questions you're used to from your regular SLSR follow-ups. You are always free to withdraw from the study at any time.

Locations (1)

Some site locations are approximate. We're improving this — please verify with the trial team before travelling.

Guy's & St Thomas Hospital
City only
London, United Kingdom

Common questions

What is a 'patient portal'?

It's a secure website where you can view some of your personal health information, like the health details you've already shared with the South London Stroke Register.

Why is this study being done?

Researchers want to see if this online tool can help stroke survivors understand their health better, manage conditions like blood pressure, and make future research easier and more effective.

How long will I be in the study if I join?

The study will last for six months from the time you join.

Will I have to take any new medication?

No, this study does not involve new medications. Some participants will be asked to monitor their blood pressure using a provided device and record it on the portal.

Who is running this study?

The study is being run by a team at King's College London and is funded by the National Institute for Health Research (NIHR).

How to find out more

Eva Emmett

eva.s.emmett@kcl.ac.uk +44 (0)20 7848 6613 Official trial record

Always speak to your GP or specialist before deciding to take part in a study.