Posted , 6 users are following.
hi there
ive been diagnosed with pcv 2 years ago and altho i suffer from the normal side effects like fatigue vision problems and so on.
however the itching is the worst i wonder if any fellow sufferer's have any ideas on how to stop it, an American woman mentioned protein powder before a bath or shower but im not sure so if any ideas please get in touch.
Tony
0 likes, 16 replies
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glenn_76104 tony1952
Posted
Hi Tony
Try the Gastro Resistant Asprin 75mg I was on this and then got told I didn't need it but the itching got really bad so I decided to go back on it which really helped it doesn't stop totally but loads better
Glenn
tony1952 glenn_76104
Posted
Thanks Glenn
will do and let you know
Tony
angela_o..o tony1952
Posted
Hello tony,
I stopped taking showers, which brought on the itching, and started to take baths instead. I read that if you add about a dessertspoon of baking soda to the bathwater, as it's running in, it helps.
I found that it does.
tony1952 angela_o..o
Posted
Thanks Angela
unfortunately i can't stand baths due to being the oldest of ten and having to share a tin bath with my siblings lol but thanks for the advice
Tony
angela_o..o tony1952
Posted
Lucky you, being the oldest.
I was the youngest..... 😃
tony1952 angela_o..o
Posted
unfortunately having the boilingwater poured from the kettle to warmthe bath up is a hazard i dont want to face again ha ha
by the way uin the uk or the us
Tony
angela_o..o tony1952
Posted
UK.
In the Peak District, near Sheffield.
How about you?
tony1952 angela_o..o
Posted
i live at north anston now although im from Sheffield originally youlive ina lovely place which i visit loads.
ive been diagnosed with the pcv for over 2 years now i hopeyou are in good health
Tony
angela_o..o tony1952
Posted
SITHEE!
North Anston!
North Anston's not bad either. 😃
My dad, many years ago, organised the bin men's rotas for North Anston and round that way. He used to come home with some funny stories about bin men and their work. 😃
I got diagnosed in spring 2016. Been on aspirin and venesections ever since. Should be on the old hydroxycarbamide but I refuse. So far, so good, But I can't wait for my next venesection. Feet are fizzing like mad!
tony1952 angela_o..o
Posted
Hi Angela
the binmen round here are rubbish so we no who to blame now ,only kidding lol.
i had to stop with venasection as my blood pressure used todrop do im taking the cancer drug. my right ankle is itching so bad i could cut it off lol .
i go to rotherham for my treatment due again in 3 weeks anyway stay healthy good to chat
Tony
angela_o..o tony1952
Posted
I go to Chesterfield. A lovely lot.
Stay as well as you can. All the best.
tony1952 angela_o..o
Posted
Thanks angela
same to you
Tony
john57598 tony1952
Edited
Beta Alanine. It has saved many sufferers from this plague (my name for it). I take it first thing in a morning and then 12 hours later. It does not not stop mine but it certainly helps. Showering is still a nightmare but mine was never restricted to water.
Others claim it stops it altogether.
tony1952 john57598
Posted
Thanks john
i will certainly give that a try and thanks very much for the tip
Tony
tony1952 john57598
Edited
hi john
thanks for the tip i take it everyday itchings a lot better and showering is a lot better many thanks
tony