Perimenopause and SEVERE joint pain - any one else??
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Hi
I am 50 and have been in perimenopause for some time. I just wanted to post here to see if anyone else has suffered extreme joint pain as a result of fluctuating estrogen.
Quick history: regular as clockwork from the age of 13 - up to and after the two pregnancies in my thirties.Then aged 47 I started to get very heavy and irregular periods. Then I went for six months with no period at all, then two very scant light periods in quick succession. I have had nothing now for two months but I do feel as if it might happen soon as sore boobs etc.
I have never had a hot flush. I do however have lots of other peri symptoms, including insomnia, heart palpitations and skipped beats, and a strange 'rushing' or whooshing feeling which starts in the abdomen which I think is an 'adrenal' surge. I also have other vague and odd symptoms, dry eyes and inside my nose, and a really vile taste in my mouth sometimes - I mean really vile, like a chemical taste, unrelated to anything I have eaten. I also have odd tingling skin sometimes, which I can only describe as feeling like 'cold' sunburn!
However, about the joint pain. Three months ago I literally woke up one morning with a sore left arm/elbow. Over a few days, the pain then moved into my shoulders, and I got really worried as if was incredibly painful, and showed no signs of going away, it just got worse and worse. It is worse in the morning when I wake up, I am as stiff as a board. It is on my mind 24/7. Doing normal things is almost impossible - I have problems carrying shopping, drying my hair,walking the dog, driving...everything seems to hurt . I have never suffered from arthritic pain, and I went to the doctor thinking I had some awful bone disease, or even polymyalgia. I was told I had nerve pain!! The GP was terrible and made me feel like a hypochondriac and it was all in my mind. I was told I had good range of movement, and no inflammation. But I am in agony, and i am not imagining it.I made the mistake of asking Dr.Google too, which is never a good idea as I scared myself half to death. I never even thought it could be related to hormones or menopause, as the pain was just SO bad and I had never heard of joint pain being a symptom.I mean I have read than meno can be bad for some women, and I expected hot flushes etc, but I didnt realise it meant pain like this.
Anyway - for the last few weeks I have been having worsening pain which has spread from left elbow and both shoulders, into left hip, both elbows and now my knees. All my joints are cracking and popping loudly and even my husband can hear the awful grating in my neck and my knees....I sound like a one man band as I go up and down the stairs!
I went In for my three yearly Cervical smear on Monday, and could hardly get up on the examining couch I was so stiff and sore. Womans health is dealt with by the Nurse Practitioners in our large practice (15 GP's) and when the NP saw my discomfort she asked me what was wrong. It turns out she has a real interest in womens health, and has been involved in HRT trials and research for many years. She informed me that my symptoms all point to fluctuating estrogen, and possible thyroid involvement. She told me a load of stuff about estrogen and cartilage, dry mucosa etc, the details of which I can't remember now but which made so much sense when she explained it - even down to the foul taste and tingling skin I have also experienced on and off for months which are both known side effects of estrogen surge as the ovaries go a bit haywire. Asmall percentage of women are very receptive to estrogen fluctuations which involve cartilage, which mainly manifest as abnormally severe joint pain/menopausal arthritis but it is not an 'obvious' symptom of perimenopause.
I asked why the GP was no help, and she just raised her eyebrows when I told her which male GP it was, and told me to make another appointment as soon as possible with a specific GP (who must be more knowledgeable about womens health.) Going in tomorrow to see her.
I can't do HRT as I have a heart condition, but maybe I can do estrogen cream, or phytoestrogen/soy.) It could last for a long time I guess until I come out the other side !
So i have not yet been diagnosed, but it sounds like it could be caused by estrogen. Sorry this has been so long....but anyone else out there feel the same way I do???
Lesley.
85 likes, 1485 replies
Natalie19901
Edited
I found this forum!!!
I am 42 and for the past 6 months have been experiencing most of the symptoms everyone is talking about. I honestly thought I was going mad as did my doctors. My GP referred me to a neurologist after initial blood work came back normal. He was very dismissive of me and the first couple of times I saw him he didn't seem interested at all and was quick to try and tell me it was just anxiety.
Last year it started when I had a disgusting taste in my mouth for a couple of weeks and it then lead to
loosing all taste for about 4 months, the only good thing was I lost weight!!. No-one could tell me why.
Then earlier this year I started getting pins and needles in my hands and feet along with aching muscles, anxiety (never had it before), insomnia, etc etc. The pain seems to move around my body too. Some days my arms are killing me and other days just my right leg is aching. Everyday is different. Every hour is different. I have also experienced blurry vision and shaking on and off as well as months now of muscle tremors.
I should never have googled my symptoms, it came up with every horrible disease known to man and I thought that's it I'm a goner.
I have had so many blood tests over the months but everything seems to come back ok. I have also had 2 MRI's and a CT over the past 6 months which have also come back clear. I was seriously thinking I was going MAD.
I don't seem to have the night sweats but noticed that during winter my feet and hands seemed to be more sensitive to the cold. I think I might try and see a Menopause specialist here in Australia and see if they can give me some hope.
My tip: I put hot wheat bags on my legs to relieve some of the pain.
Good Luck Ladies and thanks for posting I may sleep a littler easier tonight.
Susie1995 Natalie19901
Posted
hi there you sound just like me I've also had every blood test done and seen a neurologist and rheumatologist for pins and needles in my face initially then spreading to my hands and feet also dry eyes and up to loo every night The worst part then came the joint and muscle pain exactly like you describe started in one elbow spread to other joints neck both elbows wrists ankles different every day plus anxiety I've never suffered with before . Doctors were dismissive as well and with Covid and lockdown here in Ireland it's hard to even see a doctor. What I've found very helpful is anti inflammatory diet cut out potatoes tomatoes red peppers but eat plenty cherries red grapes strawberries and especially pineapple it's brilliant for taking the pain away. There's RA in my family so was concerned it was this but apparently not. I'm still miserable some days but feel so much better after finding this forum and your post. Sorry for being so long winded but couldn't believe it when i saw a mirror image of myself. Thanks for sharing I feel so much relief seeing this
josiebriones
Posted
Barbara3512
Posted
back, backside and outer thighs are now extremely painful - difficult to sit and lie. I do have a sit
down job so the past few weeks haven't been particularly easy. I attended my GP who spent
most of the time telling me about the arthritis in his neck and told me to come back if it didn't get
better. Needless to say it hasn't. I have an appointment for 11 November - which seems like a
lifetime away when you are suffering. I also have sore knees, and elbows.
I will be 50 years old next month, my periods are still regular - though I do bleed for longer. I used to suffer really bad cramp with PMT - I was diagnosed as having low Vit D and I am now prescribed
Vit d tablets from my GP - I found this did help with the cramp. I find these smptoms to be
unusual as I do not usually suffer back pain - I do have gastritis despite never having
heartburn or indigestion in my life
I also seem to have pain in my face which comes and goes together with lower jaw pain. This
all happened out of the blue.
Can anyone help or is anyone suffering. Is it still possible to be perimenopause and have
regular periods.
Needless to say this is getting me down. I have googled it - which is a mistake as I can
fit the symptoms in to most autoimmune diseases.
kerry91
Edited
i couldn't help noticing that you have gastritis, I do too and the back and shoulder pain you mentioned could well be due to this. I have a particulary nasty form, Atrophic gastritis and when i eat certain foods the pain is terrible, bizarrely it's not in my stomach but in my back and shoulders.So, I'm eating an alkaline diet and I've cut out all refined sugars which seem to have the worst effect on me. doing this keeps me relatively pain free. I'm 51 and in the perimenopause, my PMT is bad and pain is much worse just before a period. hormonal swings seem to make any weakness I'm suffering from worse.
It would help you a lot if you can get the gastritis under control. Best of luck.
BettyBoopBarton
Posted
I am 51 and in the last 6 months have put a massive 15 kilos, my skin is dry continuously and this horrid pain.
After reading this blog for the beginning I have decided the take many of your suggestions
1. Bowen Therapy
2. Vitamin D
3. Evening primrose
4. Reduce carbs and avoid sugar
5. Try stretching and meditation as yoga is just too painful
6. Eat consciously
I will talk to my doctor about HRT and fingers crossed its right for me.
And lastly be kinder to myself, I think we all just soldier on as though we are invincible. I will take time to smell the roses .
BettyBoopBarton
Posted
BettyBoopBarton
Posted
maxine97522
Posted
gillivy56
Posted
Stiffness and my knees are creaking! I do yoga, am not overweight, don't smoke don't drink much so am shocked that I get out of bed in a morning feeling like an old woman. However, I have just come across an oldish health book about the amazing merits of taking apple cider vinegar. It's brilliant for general health but also for rheumatism etc etc., It recommends two teaspoons in a tumbler of lukewarm water with a dash of honey if it's too bitter, twice a day. have started this regime today and will update this forum in a week or so! tried numerous herbal remedies but they all seem to have possible side effects. want to battle it out if I can as I can't take HRT as I have a blood clotting problem.
Loubyonline
Posted
I'm no counsellor, but if you can, get your husband to read this thread. It must be so difficult for him to understand what is happening to you as it is for anyone who hasn't suffered with this. It is so maddening to feel like almost overnight you have turned in to someone you don't recognise and your husband maybe feels the same. Talk to him, make time for each other and please be gentle with yourself. If you are having a bad day and can't do half the things you would do normally, then don't do them, but don't beat yourself up about it. I have found that you have to plan things more and have a contingency plan in place for special occasions, just in case.
Difficult thought it is, try and keep your sense of humour going. I have found that being able to laugh when I am having a bad day - with my other half or with my some of my good friends - really lifts my mood and makes me able to face up to things as they are. I accept I am not a kid anymore, (even though in my head I'm still 30 - LOL) but I don't want to be an old lady before my time and it is frustrating and scarey sometimes. But not all the time and you need to try and remember that.
I do hope things improve for you my dear, with kind thoughts and wishing you all good things for the future. x
ann44794
Posted
Thank you all for the comments (:
ann44794
Posted
Thank you all for the comments (:
JaneFlag
Posted
I found out after going through peri-menopause for 7 years now, that I the aches went away as I am getting closer to menopause. I hope this helps some people. I know everyone is different. I am not quite at menopause yet, but many of the symptoms have gotten less and less, but the aching joints have seemed to let up.
I still take klonopin for the anxiety and paxil for the depression (which I have always had and it was definitely worsened by peri-menopause). I even had to leave a job because of the problems it was causing with my employer and they are the Federal government. Anyway, I filed a discrimination EEOC complaint, but who knows what will come of that. That is another story entirely I will not relate here. The main thing is that I want to give hope to those women going through this that I hope these aches will subside in time.
Sending all my prayers and blessings from God to everyone who is having this and other troubles.
Jane
gillivy56
Posted
Gill