[LS, Lichen Sclerosus] STOP USING WESTERN MEDICINE!!!!!! ALMOST CURED!
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Hello ALL! PLEASE CONTINUE READING IF YOU WANT TO STOP YOUR lichen sclerosus...
So I have posted on here before, hectic flare up/ anal fissure/ uti you name it and have had lichen sclerosus for about 8-9 motnhs now. This being the worst month of my life, I got a biopsy in feb came back neg for cancer and was perscribed Celestone a steroid to put on which made it so so much worse and progressed my disease. Then I got an anal fissure from the lichen (HELL). Anyways went to a new gyno and he couldnt do a biopsy cause it was too enflamed and gave me advantan fatty cream to try and said to stop steroids. THEN
I finally decided to go to a Chinese Medicine Doctor in Sydney to try my luck as I was becoming desperate and feared I would never be able to have sex again with my amazing boyfriend of 2 years (I am 24). LONG STORY SHORT he had never heard of lichen sclerosus and did the standard chinese logical medicine exam (tounge, pulse, thyroid ect) turns out, my immune system was not functioning properly and my hormones were out of wack thus causing everything else in my body to be weak and allow for viruses and chronic diseases to attack my body very easily. He said my circulation was horrible and my digestion was not ideal for the nutrients were not being distributed throughout my body (I am so healthy its rediculous so I found this quite a shock!!)
Anyways, had two 'treatments' with him and he said to STOP using anything western medicine gives me aka steroids and antibiotics. NO NO NO these are your worst enemy. Westen medicine is taught to treat what is enflamed, not the REASON why it is enflamed. He said one set of antibiotics can ruin your whole body system. So he gave me a cream that has chinese symbols all over it to apply to my lichen sclerosus, and brain/circulation herbs & toxic removal herbs at night & hormone balancing herbs to treat my immune system and get my balance back. He said if I get my blood count (white) back up and get my body balance back my lichen will simply "dissapear"
I was hesitant of course to stop my gyno's orders and ditch the steroids for good, yes it was frightening, do I trust a little chinese man in a dingy shop who has reputable reviews of natural cures world wide? I chose YES. and for the past 9 days I have only been using the chinese herbs and the creams and limiting my gluten/sugar to help the toxins get out of my body. AND
I sit here now. I have no itching, I have no pain, I can ride my bike, I went on a RUN today, I had sex again! I feel amazing and I feel mentally how I did about 3 years ago (NOT STRESSED AND ANXIETY FILLED) It is still not COMPLETELY healed but I am getting CLOSE GUYS. This is insane. My skin down there is becoming revujanated. I am never putting steroids down there again!!!!!
Remember, if steroids have been helping you, they are simpoly treating the symptoms NOT the disease which I know will 100% claim is an autoimmune problem mixed with hormone imbalances and stress. So guys please try a naturopath, I know its hard. But I am getting better everyday and at this rate (I know everyone is different) but I rekon I could completely rid myself of this horrible disease FOREVER. Inbox me if you would like more details. I AM SO SO HAPPY and just want everyone with this horrible disease to have hope that YOU CAN GET RID OF IT! And of course I still use chinese medicine with the "oversee-ing" of a gyno but I choose to use natural NOT steroids that are going to make me have further complications later in life.
Other things to help all you ladies:
MANUKA HONEY- USE IT ON YOUR FLARE UPS (I use +20 grade for extra strength) Do not use any other honey for wounds or medical purposes as it will be GRADE A and will cause further harm.
EMU OIL- MOISTURIZER YES. Important to note that emu oil alone WILL NOT cure or reverse lichen sclerosus but will be an amazing natural moisturizer.
COCONUT OIL- use it on your genitals. you will have a young vagina forever. Drink/ eat 2-4 tablespoons a day you will surprise yourself it is a natural viral stopper for the body. make sure it is EXTRA VIRGIN and organic.
VASELINE- protector from peeing (if have flare up) and helps stop the vaguna opening from getting tighter (THIS WORKS) I apply every day now and can also be a lube!
RASBERRY LEAF TEA- YOUR LIFESAVER. Drink this stuff everyday. It tones the uterus linning and is AMAZING for your digestive system, it also gets your hormone levels back to normal in about 5 days of drinking 2-3 cups a day.
There are more natural remidies which have been mentioned on this site, but in general you guys need to make sure you get heaps of sleep or your body will never recover. ALSO I only wash with emuaid Soap in the shower (bum/vag) and it is the only thing that doesn't sting for me (I have tried everything).
I HOPE this helps you guys. I will chekc back in, in another week to let you know If I am actually cured, but at this rate I believe it will be. My bits down there have never looked this good, white almost gone, wounds almost completely gone!! (had sores for 4-5 months at a time) and my pink color is coming back! My swelling is completely GONE!!! My chinese doctor said I have decreased the swelling by 68% in 5 days. I am just so excited. Stay hopefull guys xxx Dsauce
38 likes, 203 replies
zarathustra Dsauce06763
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marey zarathustra
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I've been following a gluten free regime with sucess plus the grass fed as much as poss, raw coconut oil, free range eggs etc...trying casein free so bye bye dairy for a while BOOO! Then back on with raw unpastuerised if I can find a source in the UK. Did you encounter the GAPS protocol all that lovely full fat cream and yoghurt yum ...but got to fini the gut heal protocol.
Keep on coming with your lively and enthusiastic ideas!
kathleen65757 Dsauce06763
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Maybe if I was 24 I would go down your path but I have too much faith in my specialists who run a special clinic that just addresses LS.The ointment is better absorbed than the cream.
i hope you have success with your choice of treatment but I am too conservative to try it at 70 years of age.
the Mercy hospital thoroughly examines the area which I would be reluctant to trust to an alternative practitioner. I saw three specialists last time and one was an older woman with many years of experience. They also know me well as I,have been going there for ten years. It is a top women's hospital in Australia. I just do not believe I can get better treatment than there but to each his own!
marey Dsauce06763
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Keep up the progress I'm doing quite well with alternative methods too. Quitting all grains and processed foods was the first step. Can't wait to hear more from you!
Love marey x
Oh yes red raspberry leaf tea ...thank you for the reminder...that was brill in the last trimester of my pregnancy and I had a lovely delivery of my daughter. I will go searching for the organic tea. I have seen an acupuncturist in the past just for a health tonic...enjoyed...may look again to see who's out there x x
Once again D ...thank you so much for your brilliant and encouraging post. Keep them coming xxxxxxxxxxxxxxxxxxx
marey Dsauce06763
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all_the_kings_horses Dsauce06763
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zarathustra all_the_kings_horses
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marey zarathustra
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marey all_the_kings_horses
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er204 marey
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Whilst probiotics are definitely good to balance out the effects of antibiotics, candida is a fungus, not bacteria, so antibiotics have no effect on it and you definitely should not be taking antibiotics to treat candida. Nystatin (mentioned by zara) is an antifungal, which is good against candida. Also, candida isn't always 'bad', as it is usually found in the nose, vagina, GI tract, etc. of healthy individuals.
esther68312 er204
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hi everyone
Well it has been a year and 2 months ago where I was suffering unbelievable pain and since discovered the root and apparently a common cause of lichen. years ago for me (and many others) is candida. I was given steroids for years and it never went away and then got really bad. When it keeps coming back it got worse each time. For all those who are suffering now, order ADP and
CAPRIN online. I order from Biotics from USA. which I cannot buy them in Canada. It clears candida naturally and candida lives a 12 week cycle. I took 3 of each daily with lethicin daily (helps the liver flush out candida). it works so well. of course the naturopath says to cut back on sugar and use honey, molasses and cane sugar. So take this for 4 months and then I take 2 a day. I am unbelievably better and no steroids. The steroids do nothing long term if you are suffering, try this e
amy_60504 Dsauce06763
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kathleen65757 Dsauce06763
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Morrell1951 kathleen65757
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The second way Candida gets mentioned is in alternative medicine where various products and diets claim to clear it out of our systems. They blame candida for a multitude of effects on the immune system. I don't go down that path. I've had to give up sex. I eat a carefully healthy diet, no chocolate, no drinking binges, no bags of chips. I'm not spending my life obsessing over every molecule I eat and getting all stressed-out over it, on the slim chance that it will 'cure' me. My vulva cannot be un-fused. I don't want cancer and I want to be able to pee in ten years. And enjoy life. So, for me those are the two ways of mentioning candida.
zarathustra Morrell1951
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Because it is an autoimmune problem, treating the symptoms and neglecting the cause leads to an ongoing and usually never-ending line of treatment. And as it appears that so many autoimmune problems are related to food processing in the gut, any disturbance of the gut by any changes in gut flora can have serious consequences.
I know from experience that overgrowth of gut flora by candida leads to problems, mine was chronic diarrhea for 14 months. During this time my medic thought it was due to metformin, reduced my dosage leading to elevated blood sugar, and as the metformin appeared to be just going straight through me, that aggrevated the bloodsugar problem, feeding the candida and leading to repeated thrush/tinea infections.
I finally took control, took nystatin (and continue to do so), changed diet to high protein high fat low carbs vegetables an milk. This has stopped the diarrhea, fixed the thrush/tinea problem, and has me feeling a lot better. I use coconut oil for cooking, also butter (our milk comes from grazing cows), free-range eggs, and lots of mineral water. Yes, I use a lot of supplements to maintain bone health and general well being; most important Vitamins A, B group, C, D3, E, K2; Calcium citrate, Magnesium citrate, trace elements zinc, selenium, iodine, and of course, probiotics as supplements, yakult and "living" greek yogurt. To my thinking, this tends to reverse the processes that caused the problems I had by restoring the proper gut flora, thereby allowing the gut to repair and reduce the leakage of food nutrients into the bloodstream.
It seems that you are trying to do this, but you have not done the nystatin treatment; I think nystatin speeds up the renewal of gut flora by killing the excess candida, and as this does root itself well into the gut wall, everything you can do to kill the excess candida is a plus.
Of course you must continue treating the symptoms, you use what is prescribed for you as over time it has been found to reduce your symptoms. By adding the candida cleanout you are helping your body heal itself.
I hope what I have written makes sense to you, and others as well; this is not "alternative" crap, but adjunct treatment.
Best of luck for the future.
Cheers.
Morrell1951 zarathustra
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I'm not against alternative medicine. I went for TCM for a solid year during menopause. She was treating psoriasis with acupuncture, which in hindsight was setting up a weekly cycle of the Koebner phenomenon. I took home bags of woody herbs and boiled up thick tea, I gave up sugar, etc. Meanwhile my LS was quickly zipping up my clitoral hood and causing scary boils in my groin.
In thirty years of having thrush outbreaks no gynae or GP or derm ever prescribed systemic nystatin. I'm not about to ask for it.
zarathustra Morrell1951
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Nystatin is not systemic, it is not absorbed from the gut, but kills the candida, allowing the desired flora to re-establish if a wide range of inoculation by probiotics is done.
The gut is the feeder of flora into the urinogenital system, so the ideal flora assay is one that contains the species that will seed the vagina and keep candida at bay; some tend to "cling" to the vaginal walls and remain, others are washed out by the normal cleansing action of vaginal fluids. Sorry, can't tell you which off the top of my head.
So the point of the nystatin is to knock the candida in the gut so the ideal flora can get re-established; this then sets the ideal flora in the vagina and vulval vestibule, rendering the area hostile to candida, and hence, thrush attacks. THat is the mechanism for thrush avoidance.
The other aspect of re-establishing the gut flora is to allow the gut to repair damage done by the candida; I mentioned "Leaky Gut Syndrome" earier, some conservative medics tend to ridicule the idea, but prescribe more medication. Your approach to fixing yourself is good, but could be much faster if you used nystatin. Of course the choice is yours, but I feel my obligation to make you aware of its use and benefit.
Also, do you know your vit D3 status? I found that raising mine by using 10,000 IU daily made a heck of a difference to my psoriasis too. Most people appear to be deficient, unless they live in tropical/subtropical regions, all this indoor living is no good for us, think about osteoporosis further down the track, the autoimmune problems are a trigger for it.
OK, must away, you take care. Cheers.
Morrell1951 zarathustra
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Morrell1951 zarathustra
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andrea58721 kathleen65757
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I'm 66 and all through my younger years, pre-LS, I had vag yeast infections every couple of months. No biggy, according to drs of the time, and eventually the meds became over-the-counter, so I just kept using them, treating the symptoms not the cause. Around the time I was diagnosed with LS 10 years ago, I had achieved a state of yeast infection throughout my system, alleviated eventually by cutting out sugar and flour and sticking with whole foods, which has also helped my LS symptoms.
There may be no connection, but we're talking the genitals being affected by both problems, and both problems responding to the same diet, so it seems to me there's a connection.
As for unqualified advice, I think any advice that's attached to good results is good advice. I find mainstream doctors are stuck on following the rules too much. I've been told by mainstream practitioners that LS is a chronic condition with no cure and no research being done on it (and no plans for research....) Meanwhile, look around on this forum. Women and alternative practitioners have been doing their own research! I want to learn all the experiences out there of this stupid disease.
C2Anna zarathustra
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