[LS, Lichen Sclerosus] STOP USING WESTERN MEDICINE!!!!!! ALMOST CURED!

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Hello ALL! PLEASE CONTINUE READING IF YOU WANT TO STOP YOUR lichen sclerosus...

So I have posted on here before, hectic flare up/ anal fissure/ uti you name it and have had lichen sclerosus for about 8-9 motnhs now. This being the worst month of my life, I got a biopsy in feb came back neg for cancer and was perscribed Celestone a steroid to put on which made it so so much worse and progressed my disease. Then I got an anal fissure from the lichen (HELL). Anyways went to a new gyno and he couldnt do a biopsy cause it was too enflamed and gave me advantan fatty cream to try and said to stop steroids. THEN

I finally decided to go to a Chinese Medicine Doctor in Sydney to try my luck as I was becoming desperate and feared I would never be able to have sex again with my amazing boyfriend of 2 years (I am 24). LONG STORY SHORT he had never heard of lichen sclerosus and did the standard chinese logical medicine exam (tounge, pulse, thyroid ect) turns out, my immune system was not functioning properly and my hormones were out of wack thus causing everything else in my body to be weak and allow for viruses and chronic diseases to attack my body very easily. He said my circulation was horrible and my digestion was not ideal for the nutrients were not being distributed throughout my body (I am so healthy its rediculous so I found this quite a shock!!) 

Anyways, had two 'treatments' with him and he said to STOP using anything western medicine gives me aka steroids and antibiotics. NO NO NO these are your worst enemy. Westen medicine is taught to treat what is enflamed, not the REASON why it is enflamed. He said one set of antibiotics can ruin your whole body system. So he gave me a cream that has chinese symbols all over it to apply to my lichen sclerosus, and brain/circulation herbs & toxic removal herbs at night & hormone balancing herbs to treat my immune system and get my balance back. He said if I get my blood count (white) back up and get my body balance back my lichen will simply "dissapear"

I was hesitant of course to stop my gyno's orders and ditch the steroids for good, yes it was frightening, do I trust a little chinese man in a dingy shop who has reputable reviews of natural cures world wide? I chose YES. and for the past 9 days I have only been using the chinese herbs and the creams and limiting my gluten/sugar to help the toxins get out of my body. AND

I sit here now. I have no itching, I have no pain, I can ride my bike, I went on a RUN today, I had sex again! I feel amazing and I feel mentally how I did about 3 years ago (NOT STRESSED AND ANXIETY FILLED) It is still not COMPLETELY healed but I am getting CLOSE GUYS. This is insane. My skin down there is becoming revujanated. I am never putting steroids down there again!!!!!

Remember, if steroids have been helping you, they are simpoly treating the symptoms NOT the disease which I know will 100% claim is an autoimmune problem mixed with hormone imbalances and stress. So guys please try a naturopath, I know its hard. But I am getting better everyday and at this rate (I know everyone is different) but I rekon I could completely rid myself of this horrible disease FOREVER. Inbox me if you would like more details. I AM SO SO HAPPY and just want everyone with this horrible disease to have hope that YOU CAN GET RID OF IT! And of course I still use chinese medicine with the "oversee-ing" of a gyno but I choose to use natural NOT steroids that are going to make me have further complications later in life. 

Other things to help all you ladies:

MANUKA HONEY- USE IT ON YOUR FLARE UPS (I use +20 grade for extra strength) Do not use any other honey for wounds or medical purposes as it will be GRADE A and will cause further harm.

EMU OIL- MOISTURIZER YES. Important to note that emu oil alone WILL NOT cure or reverse lichen sclerosus but will be an amazing natural moisturizer.

COCONUT OIL- use it on your genitals. you will have a young vagina forever. Drink/ eat 2-4 tablespoons a day you will surprise yourself it is a natural viral stopper for the body. make sure it is EXTRA VIRGIN and organic.

VASELINE- protector from peeing (if have flare up) and helps stop the vaguna opening from getting tighter (THIS WORKS) I apply every day now and can also be a lube!

RASBERRY LEAF TEA- YOUR LIFESAVER. Drink this stuff everyday. It tones the uterus linning and is AMAZING for your digestive system, it also gets your hormone levels back to normal in about 5 days of drinking 2-3 cups a day. 

There are more natural remidies which have been mentioned on this site, but in general you guys need to make sure you get heaps of sleep or your body will never recover. ALSO I only wash with emuaid Soap in the shower (bum/vag) and it is the only thing that doesn't sting for me (I have tried everything).

I HOPE this helps you guys. I will chekc back in, in another week to let you know If I am actually cured, but at this rate I believe it will be. My bits down there have never looked this good, white almost gone, wounds almost completely gone!! (had sores for 4-5 months at a time) and my pink color is coming back! My swelling is completely GONE!!! My chinese doctor said I have decreased the swelling by 68% in 5 days. I am just so excited. Stay hopefull guys xxx Dsauce

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  • Posted

    Hello,

    Thanks for sharing.  I have had a very similar experience to you and I believe wholeheartedly in it.  Our bodies are giving us messages we need to listen to.  

    Here's to treating the cause not just the symptoms!

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  • Posted

    I am so pleased and proud to see the interesting and informative dialogue going on here.

    I am standing back and just following.

    The circumstances around the creation of this new category entitled 'Alternative Medecine' came about as people were finding it difficult to explore the subject within the home category of Lichen Sclerosus. My understanding is that that was  because it was disturbing to those established members who having reconciled to their condition are interested in maintaining stablility by giving and receiving support on an every day 'chit chat' basis....(I hope I am summarising correctly here).

    In view of the conflicting desires within our category, involvement by the host, patient.info, came about. One of the chief(?) moderators attempted to mediate following concerns about 'anti conventional medecine sentiment'....which was probably correctly perceived in so far as that, as well as others, speaking personally, I was being very enthusiastic about natural medecine, and as a result was probably seen as 'evangelical'. I regret that this caused distress and completely understand that others prefer to follow the conventional route without apparently critical commentary.

    Having faith in one's Doctor of whatever persuasion is in itself healing.  

    HOWEVER instead of fading away in view of difficulty I decided to assert the interests of 'the explorers'. I am so glad I did this. It has been great to persist politely with what I believe in and thanks to the Moderator to find a way through and a resolution.

    Dealing with conflict is an issue. I don't know about anyone else but for me it holds one of life's lessons and has been a major contributor to stress and a factor in my illness. I have had to 'manage' stress and seeing it subside has been part of my recovery. Do any of you have ways to manage stress? There have been some hints already of how other members go about this I'd love to hear more.

    I do find that having control over some areas of my life is important to me but that by contrast a sense of surrender wonder mystery is also important. I like the feeling of there being something bigger out there something meaningful...that we are part of a whole and that we all influence that and so each other. We all have to be pulled back into line and also pull back into line. At the moment I have the negative effects of overly large organisations in my sights ...to be pulled back into line... and am enjoying attempts to deconstruct that wayward power ...as part of a growing movement of resisitance to it. It feels so good to be part of this...and its such fun!

    i am also grateful for the opportunity to meet with all of you and to exchange histories. It feels like this will be a long and meaningful association and now that that was what was intended. We have been given something to work out together which will involve saving the planet! 

    Love Marey x

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    • Posted

      Hi Marey,

      Dealing with stress....

      I've found yoga helpful over the years and try to practise daily.

      Lately I've joined a sangha where we practise mindfulness meditation - very helpful for discovering a few bits of personal insight and lots of freedom. I also try to listen to 20 minutes of cd meditation daily.

      I started by following Jon Kabat-Zinn. I bought a book and some cd's, and also looked him up on youtube. Followed by listening to people like Pema Chodron and Jack Kornfield. Very helpful suggestions about coping with LIFE!! smile

      A

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  • Posted

    Hello Dsauce 

    I live in Sydney and I would like to find a good chinese medicine doctor. I have an anal fissure that is killing me and I have tried everything else. Are you able to let me know who you saw. I would greatly appreciate it as I have been dealing with long term pain.

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  • Posted

    Dsauce,

    Would you please give us an update on how the chinese herbs and creams have helped you.  I was diognosed with Lichen Scloresus almost 2 years ago, then was told later by several other doctors that it was not LS.  Now, on my 4th doctor, she says it is in fact LS.  I have lost a lot of time trying to get a proper diogonisis.  Western medicine doesn't offer much hope for healing.  I am seeing a Traditional Chinese Medicine fellow now and he has started me on herbs.  I would like to know from you how you are doing on this path.  Any help would be so much appreciated!!!  Thank you so much!!!!

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  • Posted

    Would really love an update from Dsauce06763. I am in an area where it is very difficult to find alternative specialisto and been going at it on my own through a lot of Internet research. I am making progress but do not have it completely gone or under control. My mother who uses traditional medicine says do not be discouraged,  do not  elieve the doctorsvp when they say is irreversible. I am 44 and been breastfeeding fir 20 months.  I stopped 2 nights ago on everyone's insistence that my body is too run down.  I am hoping this is one of the final steps to get myself back into balance as well as Chinese medicine but I have not found the alternative specialist yet. I am using manuka honey,  vinegar,  supplements to balance thyroid and  hormones, but D, onega3s, etc and other natural ointments. I am also using bactine. I am still on occasion using steroid cream and estrogen cream but was v in both before I was diagnosed with little change.  I was on the steroid cream because I was inflamed,  it worked in past,  and drs. Didn't know I had LS and I was c on estrogen cream because there was the thought that my being older and extended nursing was the cause of the discomfort and I had already tried many natural lubricants with little relief.  I endured sex for 6 mos. to a year feeling like it was ripping me a new hole,  raw and no enjoyment,  until I stood up and told my lovely spouse how bad it really was and we stopped for now.  He is 27. I do not want either of us to lose our intimate life together. I have other serious conditions I have learned to manage and live around,  but LS is just very difficult to function with and I am terrified of  permanent disfigurement.  There are already huge changes since this went undiagnosed for about 3 years. Several times I felt it might be LS but drs. never mentioned it and my naive assumption was that it was part of standard testing and knowledge because I myself had found and considered it. However,  for this reason and that I never saw white patches I kept ruling it out. Then,  boom white patches everywhere.  Felt like it happened overnight,  but it was more likely within a 2 month period recently.  So here I am.  I feel my last step is to get the proper Chinese specialist because I need guidance.  I've been doing a good job alone,  but guidance would relive stress.  Now that I know that itching creates damages I have completely stopped but v it is hard and the itch it difficult.  If rather feel my vulva in fire than feel the itch constantly.  Most the white patches have disappeared.  I have a few small ones left that are like bumps, look like pimples almost,  and some red ones. Wherever they are, it itches. Makes me want to burn them off. I feel sad for anyone who has lived with this for so many years.  I am fearful my 22 yr old daughter also has it.  She has similar symptoms for 1 1/2 years. I do not feel the western medicine is working well and I feel I'm getting more results from alternative but I'm also being careful because I don't want additional physical changes so I'm watching carefully. I just strated back on raspberry leaf tea yesterday,  but I am still a mess hormone wise since I just stopped nursing.  I feel depressed but I am determined to beat this LS. Had sex yesterday. It wasn't the way we used to but it wasn't painful. It was the most comfortable I've been in a year while being intimate,  but still not back to normal. 
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    • Posted

      Hi Lisa, Try 99% or higher aloe vera gel for the itch. I put witch hazel in a spray bottle to clean myself...some use 2 pinches of bicarbonate of soda in 8 ounces of water in a spray bottle...cleanse yourself with either of these after toileting. If you are pretty raw...the witch hazel is going to burn...so if that's the case use the soda water. Then apply just a little aloe vera gel. Stops the itch and improves the skin over time. It's the only thing I have found that has taken the isane itching away...it's a God send.  Try it!
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  • Posted

    Hi!  Was was wondering if you can give me the name on the bottles that he gave you and the cream also.  I am now seeing a Chinese medicine doctor who is one of the best in this country.  She has people from all over the world coming to see her, but I would like to give her those names of the supplements/herbs you are using.  How are you doing since this last post?  any better?
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  • Posted

    I think a lot of people have some confusion about the steroid cream. Yes, it is used to treat the inflammation however, things work differently with an autoimmune response than with a normal immune response.

    In our case, the inflammation and immune response ITSELF is what’s causing the tissue damage, as opposed to a normal situation, where we get inflammation as a result of injury. The steroid works by blocking this inflammatory response, and preventing it from leading to tissue damage and remodelling. So, essentially, the steroid is PREVENTING the inflammation which is causing us the damage and pain! This is why it’s so important that we use it properly. Of course it isn’t always 100% effective for everyone, and I found that for me, most of the time it was because I wasn’t even applying it well enough, to all the areas. Sometimes a vaginal applicator may be easier if it’s too painful to do it yourself. I use an ointment, as it provides a barrier and softens the skin, and it can be smeared on, as oppose to rubbed in.

    There are new treatments being carried out which are aimed specifically at our condition, so it may be an idea to ask your doctor about those – I would not trust unknown medicines and creams in such a sensitive region personally, but it’s worth a shot if you want to! (I say this because I am a Pharmacy student).

    It would be interesting to know how your herbal regime has worked out for you! I hope you are feeling fully well and don’t have to deal with this condition anymore.

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    • Posted

      Instead of a strong steroid cream an alternative is suggested using Triamcinolone Cream instead.  In Australia one brand name is Aristocort.  Sorry, lost the link.

      Management of lichen sclerosus with triamcinolone ointment: effectiveness in reduction of patient symptom scores.

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  • Posted

    Thanks Dsauce and everyone else for sharing your experience with some of the gorey bits of LS - beyond the pain, it hits at the most personal and private aspects of pleasure and femininity and can really crush your self worth . The info shared in this discussion has really opened my eyes. Ive had LS probably for years but diagnosed 18 months ago. I have no labia and my clit hood has levelled off. I'm in Melbourne getting treatment through the Royal Women's Hospital ( but very curious about the LS clinic at the Mercy now I know about it, thanks Morrell) . I'm using emu oil, cortisone and oestrogen and, since seeing this discussion will be booking into TCM to sort out immune and hormone sys. My treatment at the Women's now includes a fantastic sexual health counsellor (the first person to give me hope of having a normal sex life) and a physio who specialises in pelvic damage - Anne-Florence Plante. A big prob for me is the narrowing at the vag entrance and a bum that doesnt close. I have scarring caused by sex abuse as a child. Anne-Florence went straight to it : PTSD . The treatments themselves were triggering post traumatic stress...honestly, it made so much sense. I go into full dis-association when having to apply creams or use a dialator. sometimes I sob and want my mum and then instantly think WTF is that about?? Anne Florence sent me off to get treatment for the Post traumatic stress held in my body memory ( i really recommend kinesiology and EMDR therapy) and in 3 months Ive had a massive breakthru with the pain and narrowed vag situation . My perenium had a hard ball of scarring the size of a fist and now doesn't jut thru the walls of my anus and vag anymore. Im using a dilator 10 mins a day and I've stopped the internal battle I had that refused to self-care. I wonder how many other LS sufferers were abused as children. If you are struggling with the hopelessness of it, or think you'll never have sex again  I really recommend some mind-body healing (as well as the other great info in ths discussion ). I'm still amazed at how much of the pain and physical restriction disappeared and I am (happily) working my way up thru dialators to size Regular+ 

    Next step for me is sort out the immune system. Stay positive ladieeees xx

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    • Posted

      Thanks so much for your contribution merryl. Ive been diagnosed this week and after a year of confused dr's and clear tests I was starting to feel crazy! Im glad for a diagnosis but i am terrified and mostly because I want yo maintain a good sex life and relationships. Reading your story has really helped and inspired me to stay strong and face this.

      Thank you

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    • Posted

      Good luck Lauren. It's pretty shocking isn't it. I'm sure the treatments will improve in time and there is a ton of research into immune system disorders that will hopefully mean this forum won't have to exist. Stay positive and get some healing - kinesiology, TCM, meditation.. All good. Xxx
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    • Posted

      It's interesting what you say about post traumit stress etc. My LS kind of appeared for me when I was going through a really, really difficult break-up. I drastically changed my diet to raw vegan back then too. I think the two are linked... stress, diet, shange in sex hormones etc. As far as meditation goes... I have been doing that for years, as well as yoga etc. But with kinesiology and TCm - I know very little about these. Can you explain how they've helped you and if they are things I can look into on my own - without professional help? 
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    • Posted

      lauren and merry, thanks for your exchanges which I've found very helpful.

      May I ask: is using a dilator the same as using a dildo but smaller? I've looked for dilators, no luck. Dildos on the other hand are readily available, so I got myself one very small one, that I can accomodate. The normal size is pulling however. Any suggestions?

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