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'Stuff people say to M.E. sufferers' funny video

Posted , 9 users are following.

GeorgiaS
GeorgiaS

It's such a brilliant video in youtube! So spot on and humerous. razz

1 like, 52 replies

52 Replies

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  • GeorgiaS
    GeorgiaS

    Posted

    When I asked a doctor to write me a letter of support when I was trying to get DLA he wrote 'In my opinion sick people should work!' eek

    What atrocious things have people said to you?

    Another one, I have multiple chemical sensitivities and was trying to get my son to spray his Lynx on outside the house before collage because if he did it inside I've have a headache all day.

    He said 'You're a lunatic! You just don't like the smell.' Yup.

  • artistmike
    artistmike GeorgiaS

    Posted

    Very funny...  I can just feel my blood pressure rising listening to that, as I think someone has said all of those to me at some point.. cheesygrin
    • GeorgiaS
      GeorgiaS artistmike

      Posted

      Yes Mike, me too and more! When she mentioned the Yuppie disease it reminded me of the first time I heard of ME years ago. It was 'Only Fools and Horses' Del Boy mentioning the yuppie disease.
  • Guest
    Guest GeorgiaS

    Posted

    Nice share Georgia, thats made my day.  I remember my doc once talking at me like im a complete hypochondriac saying in her most sympathetic and patronising voice "I know, you're worried because you think we must be missing something really serious" - she was a bit taken aback when i retorted with "no i'm not, you've proved i'm not dying with all the tests, i'm worried that because you think it's nothing serious you're just going to leave me like this".  I'm glad i stuck with her though as, she is actually a really nice lady and now she's used to me (and ME) she has become a lot more understanding and more willing to refer me.  

    My other favourite is when referring to rude specialists "I'm sorry they were not very sympathetic"  I don't want their sympathy, I don't care how blunt or dry they are, I'm not there for them to be my friend, I just need them to stop being so dismissive so I know they are actually hearing what i'm saying and taking me seriously.  I hadn't worked in 18 months when one specialist said to me "yes I get tired too, perhaps you're just doing too much, maybe you could try doing less hours" - at that point I knew he hadn't listened to a single word me or my partner had said - I refuse to see him now and always ask for someone else, afterall how can someone even begin to help you when they havent even listened to the problem.

    Thanks for making me smile Georgia smile

    • GeorgiaS
      GeorgiaS Guest

      Posted

      Glad you liked the vid Kirsty! That young girl is excellent isn't she. razz

      Don't get me started. When my mum and friends tell me on the phone that they're tired or have some minor affliction like a cold I just act sympathetic while my head is screaming!!! cry

    • Guest
      Guest GeorgiaS

      Posted

      oh yes!   I can't bear people who get frustrated cause they are ill for a week or two lol  my other favourite is perfeclty healthy people who by their own admission "can't be bothered" to exercise, even though they say themselves they know they will feel better in a couple of weeks once they are into a routine, if only we could have that back

       

    • GeorgiaS
      GeorgiaS Guest

      Posted

      If only they knew to appreciate their health and stop grumbling about how awful they feel to us when they have a headache or they've had a bad day, try years of bad days! It's so insensitive of them. Would they do that to a person with MS or cancer? No! So why do they do it to us?

      Because the medical profession can't make money out of us yet and if they don't take us seriously no one else does, even our nearest and dearest. Stark reality, money to be made. When they invent a drug for us people will take us seriously even if the drug doesn't work. Big pharma.

      Another thing that really gets to me is that friends and family don't realise it can hit anyone, even them, healthy people (I was very healthy when I got it, happy, on a good diet etc), young people, older people, male female.

      Anyone can be hit by this tornado but they don't realise it.

    • mary_24931
      mary_24931 GeorgiaS

      Posted

      Hear hear Georgia! We need to get you up to Hyde park Speaker's Corner! 😉
  • dragontest
    dragontest GeorgiaS

    Posted

    How many have heard this sort of thing...

    "Yep I get tired as well. you need to go to bed early thats what I do". I nearly punched the person to say the least, as I had been telling them for 2/3 minutes how bad ME/CFS is and why I was ill that day.

    • GeorgiaS
      GeorgiaS dragontest

      Posted

      I don't know whether to laugh or cry, or dissolve into a hysterical heap Dragon! lol

      All the people that need a good punching and we haven't got the energy to do it! cry

    • Guest
      Guest GeorgiaS

      Posted

      People are funny creatures, my gran has terminal cancer, they are keeping it at bay with medication but they don't know how long she has, they thought months at first but now it is looking like it could be more like years. She still gets out and about to socialise with friends and to look at her and talk to her you wouldn't have a clue anything is wrong. 

      If I mention that i'm not well I get told "you looked alright when I saw you out the other weekend". Whereas my gran is told how good it is that she still goes out and about.

      I'm not comparing my illness level to my grans by any means, but it really does show how peoples thought processes differ depending on your illness and the attitude they choose to show towards it.  I'm not quite sure why just because i'm ill with something they don't understand or accept i'm meant to constantly remain locked away behind closed doors to prove i'm ill, but someone else who i would consider much more severely ill than myself is encouraged to go out!  I think they need to make their minds up about "acceptable ill behaviour" and stick to it lol

    • GeorgiaS
      GeorgiaS Guest

      Posted

      It's crazy isn't it! I've read reports saying that people with ME can have less energy than people dying in the last stages of Aids or Cancer!

      And, I hesitate to say this because I don't want to worry anyone, but this is a terminal disease. Some people die from it, from either organ failure, usually the heart or liver, or suicide.

      It's probably not most of us but some do.

    • Guest
      Guest GeorgiaS

      Posted

      Yeah I find it so hard to get my head around that fact sometimes, it only hits home when you read about someone who is far worse off than yourself that you are reminded just how bad it can get.  

      I think I just never think of my own case as possible terminal illness as there are so many people with ME that have it much worse than I do and I don't see myself and being as ill as they are, but then I guess we are not socially conditioned to take our own illness very seriously anyway, so its hard to think of yourself as being that ill without any test results to back it up.  

    • GeorgiaS
      GeorgiaS Guest

      Posted

      Because of the unnaceptance of how ill I am by the medical profession and other people I find myself struggling too hard to do things, and I often have to remind myself of how serious it is and to be more gentle with myself.
    • Guest
      Guest GeorgiaS

      Posted

      I hear you!  I constantly make that mistake, get so sick of having to explain myself too, which I have to admit i've decided to stop doing as of now lol.  

      I've just decided to start being crabby with people instead, the amout of times I hear things like "but in your text the other day you said you weren't too bad" or "oh I thought you were feeling better" - err well yes i WAS, I now just snap back "are you calling me a liar", i've only done it twice so far but its worked quite well on both occasions smile

    • GeorgiaS
      GeorgiaS Guest

      Posted

      Definitely Kirsty, I wrote an article called Grumpy Sick People with a humerous slant. It's so hard to be pleasant when people say stupid things to us. cheesygrin
    • GeorgiaS
      GeorgiaS Guest

      Posted

      You've made such a great point there; how are people going to know how bad it is if we keep putting a brave face on it! We're not doing each other any good that way.
    • Guest
      Guest GeorgiaS

      Posted

      love it! very well put across and the grumpy looking cats just add that special touch smile
    • GeorgiaS
      GeorgiaS Guest

      Posted

      I love nothing more than a disgrunted looking cat! lol
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