'Stuff people say to M.E. sufferers' funny video

I have to take the phone off the hook sometimes and I have to keep telling some friends that I'm not ignoring them, I'm just sleeping and resting.

It's frustrating, of course I wish I could join them! But such is life.

I think I should just shut up for a while and not talk to them. I've found some good friends to talk to who have their own difficulties and understand suffering. I love my family but I'd like to bash them all in the heads! Trouble is I'm so weak I can't get out of bed to do it. 

My family make it even more stressful with not supporting me - not financially, but emotionally and being there for me, they never are.

I really sympathise and empathise with you on this.  Why do we have to go through all of this, as if M.E isn't enough, eh?!!!

Good luck Georgia.  I just think like you, I won't speak to my family for a while, or I'm likely to blow a fuse!!!

All the best with the benefit struggles; we're all frightened so you're not alone. (((hugs))) 

If we use these words and they then think how they feel when they feel "tired" there's no wonder they don't feel much sympathy...

The only comparison I was once able to give to a doctor once was that it was similar to having altitude sickness and he was able to understand that.

Having suffered from that once in the mountains there really are a lot of simlilarities, exhaustion, headaches, pain, you name it, the only difference is that with us it's permanent !

At least you know Val that we understand. Not a lot of help I know but it's a start...

Altitude sickness is an interesting comparison!

My arms, legs and back hurt so much! It's just easier to lie in bed still like a lump of concrete! :p

I got to DWP 15 minutes early.  A bloke came out to say 'Why are you early?'  I said 'because I have to get a bus and the next one would have meant me being late'.  I had to bite my tongue from saying: 'Because no-one has invented a  time-machine to beam me straight to you, or I would get to you EXACTLY at 1:30pm if I could do that - moron'!!!!

The woman I saw was not supportive even though she sighed when I sat there and cried my eyes out, and said: 'We have to do it, but why don't you get yourself a hobby, which would get you out, and stop you from becoming house-bound'!!  Before I came back at her with swear words that even I haven't heard of, I pointed to my "Walking Dead" T.shirt, and said, 'This is the government, and I hope that David Cameron gets M.E'.  She ignored me, until I repeated it 3 times!!!

I said that I needed desperately to get home to bed and that I'd cancelled the last 3 appointments because I wasn't well enough to get ready or get out of bed, and that I am begging my GP to please do other tests, in case I have Lyme's Disease, or Hashimoto's Disease, or an under-active thyroid - ALL of which have the same symptoms as M.E. and if it's proven that I DO have something else and not M.E. I could take the correct medication and get my life back, and get a job before I retire in 10 years time'.  After which she replied:  'I have another M.E. client and she can look for work and get out of bed, you just need a hobby'.

I rest my case (I wish it could have been between her eyes!!!).

Now I really DO have to crawl into bed before I collapse.

By hook or by crook, I'm going to crawl to the CAB to get into the Support Group if it kills me - watch this space!!  If I die before i get the proper help, I'll come back and haunt David Cameron.!!!!  LOL!!

A hobby, what a great idea and you came up with the perfect one. Haunt Cameron and his cronies. We could do it before we die? Well we've got nothing else to do and we feel half dead anyway.

The way I'm feeing I'm not entirely sure if I could have stopped myself from infecting her with my ME. Well if I'd bored her enough she might have got it. 

I'm so sorry to hear that you are feeling so bad today.  It's a great start to a new week eh!!  I hope that the health professionals were of some help to you?  Except for making you have to go and sit with them.  I really feel for you.

I've just managed to get up after having to lie down when I got home, and my legs are like jelly, though I don't have pain in them.  At times i feel as though I don't have any legs, it feels like they're not there, if that makes sense????

Oddly enough, after I had Glandular Fever when I was 10, I had the 'no legs' feeling a few months after I was better.  It was a Sunday morning and I went down stairs to get a cup of tea, and I 'lost my legs' and couldn't stand or walk.  I shouted to my parents upstairs, but no-one heard me.  Then as quick as it happened, the feeling came back again, and I just got up and walked upstairs!!!  Then when i was at Senior school - I was about 13 - it happened again on my home from school.  I had to sit on the floor (a bit of greenery near our home) until I got the legs back again!!!

It never happened again, until around 2011 when the M.E had 'set in' for over a year, and I get it on and off since then - very weird to say the least.

I get pain in my arms, and jip to my right knee, but that's due to a knee op in 2009!!!  I am falling apart!!!

This site is SO brilliant because we can all share our experiences with M.E. and it's amazing how many people suffer with the same things.

It makes you feel more 'normal' doesn't it - if that's what i can call it!!!  LOL!!!!!

Take care Georgia, I hope your pain subsides soon.

I'm signing off now, coz my favourite comedy is on TV in a moment - "Episodes", it has me screaming with laughter!!

The best medicine is laughter isn't it.

Did you go to Machu Piichu (think I've spelled that right?)?  I have wanted to go there for years.  I always watch stuff on TV, where they travel to these wonderful places, and so I have seen people suffering with this altitude sickness.  I remember that Michael Palin had it really bad in South America.

I always tell people that it's like jet-lag and the flu combined!!!

I wouldn't mind having jet-lag!!!

I hope you're having a good day?

Are you confusing me with someone else?  Mind you, I DO like Dr Who!!!

I am kind of a fan, though I am not too keen on the new doc!!

Yes, I can't stand the new doc Who, my favourite over the last few years, was David Tennant.  My all-time favourite was John Pertwee - showing my age eh!!  I liked his storylines better, with The Master, the old Syber men - who were far more frightening back in the 60's/70's don't you reckon?

My mum says they were too, and she was in her 30's/40's back then, so it wasn't because I was younger!!!

Also the Brigadier, I used to like him with his moustache!!  Talking of maustache's - what is it with men today, growing those ugly beards??????  Yuk- a diddly-doo!!!  In the 90's they shaved all their hair off, not it's beards and maustaches covering their handsome faces.  It makes them so ugly, do you reckon???

I loved last week's episode of The Walking Dead (my fave drama on TV and ever), and Rick shaved off his face fuzz, to reveal a gorgeous hunk!!!  It made my day!!!

I wish the doctor would come and rescue me.

Doctor Who should come and take all of us with M.E. on his journeys shouldn't he - and if he IS a doctor he could cure us too, though I don't think he's a magician as well!!!

I think we need witch doctors!!