16 year old grandson with heart problem
Posted , 6 users are following.
My very athletic 16 year old grandson had a heart scan (c.r.y. funded at his football club) which showed that his electric transmitters in his heart weren't working properly. He is seeing a cardiologist in two weeks and until then has been told not to take part in any exercise. Can anyone tell me what we can expect? It was such a shock as he is so active.
0 likes, 19 replies
derek76 JoyKF53
Posted
C.R.Y. is cardiac risk for the young. If there should be a problem he is fortunate that his club get their players tested. Is there a heart disease history in his immediate family? Someone I know was called back after having Well Man tests and his suspicious reading was caused by having been given two cups of coffee while waiting for the late arriving doctor.
The CRY site says:
Screening for cardiac diseases can be a complex situation but we are trying to adopt a cost effective screening programme and this screening programme comprises of a health questionnaire which enquires specifically about the cardinal symptoms of cardiac diseases such as chest pain, breathlessness, dizziness, palpitations or black outs and also importantly enquires about family history of cardiac conditions, because most conditions that cause sudden death in young people are hereditary – by that I mean they are genetically transmitted from one person to another so the family history's very important.
That is usually followed by a 12 lead ECG which is an electrical tracing of the heart that is designed to look for electrical faults of the heart and to raise suspicion of the cardiomyopathies. So the whole process doesn't take long and in many situations, the individual can be reassured on the spot, a small number of people, I would say 4%, need further tests. Of these 4%, 0.2% have a serious problem, about 1% have a minor problem and the other 2.8% can be reassured.
JoyKF53 derek76
Posted
Thank you so much for replying. His great grandmother had high blood pressure, myself and my husband (his grandparents) take statins for raised cholesterol, his father has a heart murmur (although the army were happy to employ him and send him to Iraq!) All questions that were asked before his scan. I'm guessing that his football playing is over, which will devastate him - he has just been nominated for an award. I'm so worried for him.
derek76 JoyKF53
Posted
Everyone has to cover their backs nowadays hence the no exercise directive. In 2001I had a stress ECG (Treadmill test) and asked how it compared to a previous one that it turned out he did not have a record of. When he got it he said it was much worse and that I needed to stay to have an angiogram the next day and probably an angioplasty. I said that I would go home and get my overnight things and he refused saying that I might fall down dead at the bus stop!
I offered to bet him a moths wages that they would find nothing wrong but he refused the bet. I had the angiogram and they said, Sorry it was a false positive but that I did have a slight murmur.
youngatheart1 JoyKF53
Posted
JoyKF53 youngatheart1
Posted
Thank you so much. We're waiting for an appointment for a cardiac treadmill stress test. It's the waiting that's hard.
youngatheart1 JoyKF53
Posted
JoyKF53 youngatheart1
Posted
Thank you for your comments. We worry so much about our grandchildren don't we? I've had cancer and a brain tumour treatment in the last two years but worry more about my grandchildren, his 13 year old sister is autistic. Plus my husband had major surgery 8 months ago for a perforated bowel and has to have two major operations in the new year! I don't know who to worry about first!
youngatheart1 JoyKF53
Posted
derek76 JoyKF53
Posted
JoyKF53 derek76
Posted
The problem that we have is this. The charity C.R.Y. funded the initial routine tests, E.C.G. and ultrasound. They then instructed his G.P. to get blood tests done. He would then be referred to a local hospital for treadmill stress test. Blood tests were done, came back clear but we're given to the wrong G.P. at our surgery. Instead of this doctor finding out why these tests had been requested he saw that they had come back clear so wrote on them "no further action required"! It was only because my daughter rang the surgery to chase them up that the mistake was found. Of course that has delayed matters so now we must wait for the correct doctor to look at them and make a referral for the treadmill test! N.H.S. don't seem to do urgency.
derek76 JoyKF53
Posted
My two earlier examples were my best ones. The worst one was when I had been diagnosed with aortic stenosis at Imperial College and referred back to my local GP to save me the long journeys to London.
It was a five week wait to see a cardiologist who then wanted me to have a stress echocardiogram. That was a 19 week wait and I had managed to get a cancellation.
I won't go into the chaos that followed but it took seven more months before getting my aortic valve replaced.
JoyKF53 derek76
Posted
I feel your pain. When my G.P. referred me to have a suspicious lump examined the waiting list was so long we used my husband's medical insurance through his job to get a diagnosis. Good job we did, I had stage 1 lymphoma of the aggressive variety which we only managed to catch in time due to an early diagnosis.
derek76 JoyKF53
Posted
My wife was on a six month wait to see a neurologist they changed the date to a month later. This week it has been cancelled to unforeseen circumstances without being given another date.
JoyKF53 derek76
Posted
derek76 JoyKF53
Posted