2 month long headache and b12 deficiency - driving me insane
Posted , 7 users are following.
Hi,
I'm 19 and my constant tension headaches started around 2 months ago now. Sometimes it's just pressure and most of the time it is both pain and pressure around the whole of my head. I also get stabbing pains in random areas. My neck also hurts sometimes and feels like the nerves in my back, neck and head are almost being tickled?! I had some blood tests a few weeks ago and it revealed I have a b12 deficieny. My thyroid was also right on the borderline of being low but must not be something they're overly worried about since the doc didn't mention anything else about it apart from it might be making me even more anemic. I've had 5 b12 injections over 2 weeks and for a few days my headaches did for the most part FINALLY stop. However, I kept feeling a niggling at the back of my head that they were going to start again and sure enough they have. Every time I go to the doctors they just put it down to my anxiety and I honestly don't know what to do anymore. I'm obviously worried it's something more serious, or maybe I need more b12 injections or maybe I'm just a medical freak I don't know. But it's affecting my life - I keep having time off work and often have to cancel plans with friends because my head is so bad and I'm so tired. Anyone else in the same boat??
3 likes, 46 replies
Milliemaria42
Posted
max0101 Milliemaria42
Posted
Try doing something which interest you or have activities with your friends.
Your anxiety might be magnifying the headaches. Try to do some light exercises too like swimming if possible.
Milliemaria42
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StevenRose Milliemaria42
Posted
That's wonderful new Milliemaria! Now you can at least stop worrying you have something more serious. You can also get on with your life better now as well.
So, good luck Milliemaria always here to chat and catch up.
Take care and best wishes
Milliemaria42 StevenRose
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max0101 Milliemaria42
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Didnt we already tell you not to worry. haha
Milliemaria42 max0101
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Yeeaaahhhh sorry about that, I think everyone at home is just glad I've shut up about it now as well haha
StevenRose Milliemaria42
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Take care and very best wishes. Always here to chat
StevenRose Milliemaria42
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Just getting in touch to see how you are getting on? Give me an update please.
Take care and best wishes
DaniHMcV Milliemaria42
Posted
Hi Milliemaria 😃 Just wondering if you ever got more specific findings about your illness. I wanted to write to say that it really sounds like either Chiari Malformation and/or possibly Ehlers-Danlos Syndrome. I have both (Chiari is because of EDS in my case) and the headaches are pressure/tension headaches and dizziness/balance issues are common; as are B12 and Vitamin D deficiencies. We're also very prone to low ferritin which isn't usually tested in CBC (complete blood count) bloodwork.
Do you seem to be more flexible than those around you? Or is your family (siblings and one parent) known to be more flexible than the typical person? Is your skin very, very soft (like your hands) without even using creams? If you pinch the skin on top of your hand, is it thin and easy to roll between your fingers? There are 3 types of EDS which are the mist common (with the "hypermobile type" being the most common by far) so there are many different signs one could have but these are quite common. EDS can also lead to Chiari Malformation or the same type of headaches from droopy, cerebro-spinal fluid fulled cisterns in the brain. Diamox can help a lot, as can Topamax so there is help. EDS is incredibly common in the UK or in those with ancestors from there.
Anyways, I highly doubt anyone will read this now and I really hope that means that your headaches have cleared up Milliemaria. If you would like more info about EDS or Chiari Malformation, please, don't hesitate to reply and I'll help you as much as I can. Happy Holidays!
Dani
Pingu13 Milliemaria42
Posted
Did you ever get this resolved - I’m currently on day 33 of a constant pressure headache thus any advice is welcome !
ae0200 Milliemaria42
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did you manage to resolve this?